DES Action is a consumer group representing those exposed in utero to diethylstilbestrol and their mothers. We work to educate the public and health-care providers about DES, to provide medical information and referrals, to monitor research, and to act as advocates for the DES-exposed. DES Action has 30 chapters in 22 states in the United States as well as foreign affiliates in Australia, Canada, England, France, Ireland, and the Netherlands. Research reports on such major concerns as fertility and pregnancy and risks for breast cancer make possible our special publications on these topics. As the DES-exposed cohort ages, there remain some major unanswered questions: effects on the children of DES daughters and sons? Extent of immune system impairment? Effects on the endocrine system? Research into these questions will shed light on anecdotally observed health effects from DES exposure.
KeywordsArthritis Estrogen Adenocarcinoma Infertility Cryptorchidism
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