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Role of Support Group for the Family Caregiver of Dementia: Recent Developments in the Structure of the Support System

  • Alice Barbara Vickers
Chapter
Part of the Advances in Experimental Medicine and Biology book series (AEMB, volume 282)

Abstract

In the last few years there has been a growing interest in self-help and a proliferation of such groups for various reasons. Some are associated with everyday living, such as the Parent and Childbirth Education Society, and others have a special interest, such as the Epilepsy Foundation of America. Some groups are led by peers and others by professionals, some are for parents or siblings and others for people with special needs. Several states and many cities and counties have developed clearinghouses for information about such groups. Many organizations, such as the American Diabetes Association, have developed their own self-help groups and materials on how to do it. The Family Survival Project (FSP) has served the San Francisco area since 1977 with information, support groups and advocacy about chronic brain disorders and head traumas which occur in adults. One of the pioneers of the Alzheimer’s Association was a caregiver, Bobbie Glaze Custer (1), who personally called people all over the country in order to help them with advice and help in establishing groups, thus establishing a network of caring people. She refers to her own personal story as “like a funeral that never ends.”

Keywords

Support Group Family Caregiver Relate Disorder Association Area Agency Dementia Caregiver 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

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Copyright information

© Plenum Press, New York 1990

Authors and Affiliations

  • Alice Barbara Vickers
    • 1
  1. 1.Alzheimer’s Disease and RelatedDisorders AssociationAlbanyUSA

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