Skip to main content
SpringerLink
Log in
Book cover

Designing Socially Embedded Technologies in the Real-World pp 357–381Cite as

Designing for Lived Health: A Practice-Based Approach for Person-Centered Health Information Technologies

  • Chapter

  • 847 Accesses

Part of the book series: Computer Supported Cooperative Work ((CSCW))

Abstract

Health is almost always a deeply personal issue. As individuals, people struggle to maintain and enhance their health within their own “messiness”—their values, practices, and beliefs.

This is a preview of subscription content, log in via an institution.

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD   54.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

Notes

  1. 1.

    In this paper we use “community” in the common usage to refer to a group of people living in the same place (e.g., Flint community) or having common characteristics (e.g., medical informatics community). We use the technical term “lifeworld” to talk about an individual’s view of their lives and social contexts. For a fuller discussion of the “lifeworld,” see Luckmann (1970), Shutz and Luckmann (1973), and Schutz (1967). We will use the term “social world” to talk about specific collectivities that form and encapsulate social contexts. For a fuller discussion of “social world,” see Strauss (1991, 1993).

  2. 2.

    Practices here focus on human action (e.g., what people do). Health practices refer to the ways that people manage their health through specific, situated actions. For example, a person organizing their prescriptions on the kitchen counter in order to remember taking their daily medications.

  3. 3.

    In earlier work (1999), Berg outlined a “sociotechnical” approach to designing health information technology. This framework, he writes, “overtly critical of approaches that denounce the ‘messy’ and ‘ad hoc’ nature of health care work, and that attempt to structure this work through the formal, standardized and ‘rational’ nature of IT systems. […] It engages in constructive critique rather than in delivering yet another set of guidelines for design and implementation.” For Berg, design work should start with a nuanced understanding of health practices, where practices include networks of people, tools, organizational routines, and documents. For another interpretation of “mess” in design, see Dourish and Bell (2011).

References

  • Ackerman, M. S. (2000). The intellectual challenge of CSCW: The gap between social requirements and technical feasibility. Human-Computer Interaction, 15(2–3), 179–203.

    Article  Google Scholar 

  • Angst, C., Agarwal, R., & Downing, J. (2006). An empirical examination of the importance of defining the PHR for research and for practice. Retrieved September 28, 2013, from http://ssrn.com/abstract=904611

  • Archer, N., Fevrier-Thomas, U., & Lokker, C. (2011). Personal health records: A scoping review. Journal of the American Medical Informatics Association, 18, 515–522.

    Article  Google Scholar 

  • Bardram, J., Frost, M., Szanto, K., Faurholt-Jepsen, M., Vinberg, M., & Kessing, L. (2013). Designing mobile health technology for bipolar disorder: A field trial of the MONARCA system. In Proceedings of CHI 2013 (pp. 2627–2636). New York: ACM Press.

    Google Scholar 

  • Barry, C., Stevenson, F., Britten, N., Barber, N., & Bradley, C. (2001). Giving voice to the lifeworld. More humane, more effective medical care? A qualitative study of doctor-patient communication in general practice. Social Science & Medicine, 53, 487–505.

    Article  Google Scholar 

  • Berg, M. (1999). Patient care information systems and health care work: A sociotechnical approach. International Journal of Medical Informatics, 55, 87–101.

    Article  Google Scholar 

  • Berg, M., & Harterink, P. (2004). Embodying the patient: Records and bodies in early 20th century US medical practice. Body and Society, 10, 13–41.

    Article  Google Scholar 

  • Bowler, K. (2013). Blessed: A history of the American prosperity gospel. New York: Oxford University Press.

    Book  Google Scholar 

  • Caine, K., Zimmerman, C., Hazlewood, W., Schall-Zimmerman, Z., Sulgrove, A., Camp, L. J., Connelly, K., Lorenzen-Huber, L., & Shankar, K. (2010). DigiSwitch: Design and evaluation of a device for older adults to preserve privacy while monitoring health at home. In Proceedings of the 1st ACM international health informatics symposium (IHI’10) (pp. 153–162). New York: ACM.

    Google Scholar 

  • Crete-Nishihata, M., Baecker, R., Massimi, M., Ptak, D., Campigotto, R., Kaufman, L., Brickman, A., Turner, G., Steinerman, J., & Black, S. (2012). Reconstructing the past: Personal memory technologies are not just personal and not just for memory. Human-Computer Interaction, 27(1–2), 92–123.

    Google Scholar 

  • Danholt, P. (2008). Interacting bodies: Posthuman enactments of the problem of diabetes: Relating science, technology and society-studies, user-centered design and diabetes practices (Datalogiske Skrifter; No.120). Roskilde: Roskilde Universitet.

    Google Scholar 

  • Dourish, P., & Bell, G. (2011). Divining a digital future: Mess and mythology in Ubiquitous computing. Cambridge, MA: MIT.

    Book  Google Scholar 

  • Enquist, H., & Tollmar, K. (2008). The memory stone: A personal ICT device in health care. In Proceedings of the 5th nordic conference on human-computer interaction-NordiCHI’08 (pp. 103–112). New York: ACM Press.

    Chapter  Google Scholar 

  • Fitzpatrick, G., & Ellingsen, G. (2012). A review of 25 years of CSCW research in healthcare: Contributions, challenges and future agendas. Computer Supported Cooperative Work, 22, 609–665.

    Article  Google Scholar 

  • Gearson, C. (2007). Perspectives on the future of personal health records. Report prepared for California HealthCare Foundation. Retrieved August 27, 2013, from http://www.chcf.org/publications/2007/06/perspectives-on-the-future-of-personal-health-records

  • Hall, D. (1997). Introduction. In D. D. Hall (Ed.), Lived religion in America: Toward a history of practice. Princeton: Princeton University Press.

    Google Scholar 

  • Haraway, D. (1991). A cyborg manifesto: Science, technology, and socialist feminism in the late twentieth century. In D. J. Haraway (Ed.), Simians, cyborgs, and women: The reinvention of nature. New York: Routledge.

    Google Scholar 

  • Iakovidis, I. (1998). Towards personal health record: Current situation, obstacles and trends implementation of electronic healthcare record in Europe. International Journal of Medical Informatics, 52(1), 105–115.

    Article  Google Scholar 

  • Jones, D. A., Shipman, J. P., Plaut, D. A., & Selden, C. R. (2010). Characteristics of personal health records: Findings of the medical library association/national library of medicine joint electronic task force. Journal of the Medical Library Association, 98, 243–249.

    Article  Google Scholar 

  • Kaelber, D. C., Jha, A. K., Johnston, D., Middleton, B., & Bates, D. W. (2008). A research agenda for personal health records (PHRs). Journal of the American Medical Informatics Association, 15(6), 729–736.

    Article  Google Scholar 

  • Kaziunas, E., Ackerman, M. S., & Veinot, T. C. E. (2013). Localizing chronic disease management: Information work and health translations. In Proceedings from ASIST 2013, Montreal, Quebec, Canada.

    Google Scholar 

  • Kientz, J. A., Arriaga, R. I., & Abowd, G. D. (2009). Baby steps: Evaluation of a system to support record-keeping for parents of young children. In Proceedings of the conference on human factors in computing systems-CHI 2009 (pp. 1713–1722). New York: ACM Press.

    Google Scholar 

  • Kim, J., Jung, H., & Bates, D. (2011). History and trends of “personal health record” research in PubMed. Healthcare Informatics Research, 17(1), 3–17.

    Article  Google Scholar 

  • Klasnja, P., Hartzler, A., Powell, C., Phan, G., & Pratt, W. (2010). HealthWeaver mobile: Designing a mobile tool for managing personal health information during cancer care. In AMIA 2010 symposium proceedings (pp. 392–396). New York: ACM Press.

    Google Scholar 

  • Luckmann, B. (1970). The small life-worlds of modern man. Social Research, 37, 580–596.

    Google Scholar 

  • Mamykina, L., Mynatt, E., Davidson, P., & Greenblatt, D. (2008). MAHI: Investigation of social scaffolding for reflective thinking in diabetes management. In Proceedings of CHI’08, Florence, Italy (pp. 477–486). New York: ACM Press.

    Google Scholar 

  • Markle Foundation. (2003). Connecting for health: The personal health working group final report. Retrieved June 13, 2013, from http://www.connectingforhealth.org/resources/final_phwg_report1.pdf

  • Mishler, E. G. (1984). The discourse of medicine: The dialectics of medical interviews. Norwood: Ablex.

    Google Scholar 

  • Mol, A. (2002). The body multiple: Ontology in medical practice. Durham/London: Duke University Press.

    Book  Google Scholar 

  • Mol, A. (2008). The logic of care. New York: Routledge.

    Google Scholar 

  • Mynatt, E., Rowan, J., Jacobs, A., & Craighill, S. (2001). Digital family portraits: Supporting peace of mind for extended family members. In Proceedings of CHI’01 (pp. 333–340). New York: ACM Press.

    Google Scholar 

  • National Alliance for Health Information Technology (U.S.). (2008). Report to the Office of the National Coordinator for Health Information Technology on Defining Key Health Information Technology Terms. Released by the United States Department of Health & Human Services. Retrieved March 14, 2014, from http://cdm16064.contentdm.oclc.org/cdm/singleitem/collection/p266901coll4/id/2086/rec/10

  • Nazi, K. (2013). The personal health record paradox: Health care professionals’ perspectives and the Information ecology of personal health record systems in organizational and clinical settings. Journal of Medical Internet Research, 15(4), e70.

    Article  Google Scholar 

  • Orlikowski, W. J. (2000). Using technology and constituting structures: A practice lens for studying technology in organizations. Organization Science, 11(4), 404–428.

    Article  Google Scholar 

  • Orsi, R. (2002). The Madonna of 115th street: Faith and community in Italian Harlem, 1880–1950. New Haven: Yale University Press.

    Google Scholar 

  • Osterlund, C., Kensing, F., & Davidson, E. J. (2011, June 24). Personal health records in the US and Denmark: From visions to versions? In The third international workshop: Infrastructures for healthcare. University of Copenhagen.

    Google Scholar 

  • Rodin, G., Mackay, J. A., Zimmermann, C., Mayer, C., Howell, D., Katz, M., Sussman, J., & Brouwers, M. (2009). Clinician patient communication: A systematic review (Supportive care in cancer, Vol. 17, pp. 627–644). Berlin: Springer.

    Google Scholar 

  • Scambler, G., & Britten, N. (2001). System, lifeworld and doctor-patient interaction: Issues of trust in a changing world. In G. Scambler (Ed.), Habermas, critical theory and health (pp. 45–67). London/New York: Routledge.

    Google Scholar 

  • Schatzki, T., Knorr Cetina, K., & von Savigny, E. (Eds.). (2001). The practice turn in contemporary theory. London: Routledge.

    Google Scholar 

  • Schutz, A. (1967). The phenomenology of the social world. Evanston: Northwestern University Press.

    Google Scholar 

  • Shutz, A., & Luckmann, T. (1973). Structures of the life-world (Vol. 1). Evanston: Northwestern University Press.

    Google Scholar 

  • Sittig, D. (2001). Personal health records on the internet: A snapshot of the pioneers at the end of 20th century. International Journal of Medical Informatics, 65, 1–6.

    Article  Google Scholar 

  • Strauss, A. L. (1991). Creating sociological awareness: Collective images and symbolic representations. New Brunswick: Transaction Publishers.

    Google Scholar 

  • Strauss, A. L. (1993). Continual permutations of action. New Brunswick: Transaction Publishers.

    Google Scholar 

  • Suchman, L. (2007). Human-machine reconfigurations: Plans and situated actions (2nd ed.). New York: Cambridge University Press.

    Google Scholar 

  • Tang, P., Ash, J., Bates, D., Overhage, J. M., & Sands, D. (2006). Personal health records: Definitions, benefits, and strategies for overcoming barriers to adoption. Journal of the American Medical Informatics Association, 13, 121–126.

    Article  Google Scholar 

  • Veinot, T. C., Campbell, T. R., Kruger, D. J., & Grodzinski, A. (2013). A question of trust: User-centered design requirements for an informatics intervention to promote the sexual health of African-American youth. Journal of the American Medical Informatics Association, 20(4), 758–765.

    Article  Google Scholar 

  • Waizkin, H. (1989). A critical theory of medical discourse: Ideology, social control, and the processing of social context in medical encounters. Journal of Health and Social Behavior, 30(2), 220–239.

    Article  Google Scholar 

  • Waizkin, H. (1991). The politics of medical encounters: How patients and doctors deal with social problems. New Haven: Yale University Press.

    Google Scholar 

Download references

Acknowledgments

The first author was funded by a National Science Foundation IGERT fellowship (0903629, Open Data). The work was also funded, in part, by the School of Information, the US Institute of Museum and Library Services (LG-52-11-0212-11), and the National Science Foundation (0903629). Any views, findings, conclusions, or recommendations expressed in this publication do not necessarily represent those of IMLS or the NSF. The authors want to thank our study participants and also Tiffany Veinot, Myriam Lewkowicz, Hilda Tellogiu, Volker Wulf, Melissa Chalmers, Pedja Klasnja, Kai Zheng, Charles Senteio, Chris Wolf, Ayse Buyuktur, Tao Dong, Jasmine Jones, and Pei-Yao Hung for their insights and comments. We also thank Angus Lo for the FIT prototype.

Author information

Authors and Affiliations

  1. School of Information, University of Michigan, Ann Arbor, MI, USA

    Elizabeth Kaziunas & Mark S. Ackerman

Authors
  1. Elizabeth Kaziunas
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Mark S. Ackerman
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Elizabeth Kaziunas .

Editor information

Editors and Affiliations

  1. School of Media and Information, University of Siegen, Siegen, Germany

    Volker Wulf

  2. Department of Organization, Copenhagen Business School, Frederiksberg, Denmark

    Kjeld Schmidt

  3. School of Media and Information, University of Siegen, Siegen, Germany

    David Randall

Rights and permissions

Reprints and permissions

Copyright information

© 2015 Springer-Verlag London

About this chapter

Cite this chapter

Kaziunas, E., Ackerman, M.S. (2015). Designing for Lived Health: A Practice-Based Approach for Person-Centered Health Information Technologies. In: Wulf, V., Schmidt, K., Randall, D. (eds) Designing Socially Embedded Technologies in the Real-World. Computer Supported Cooperative Work. Springer, London. https://doi.org/10.1007/978-1-4471-6720-4_15

Download citation

  • DOI: https://doi.org/10.1007/978-1-4471-6720-4_15

  • Publisher Name: Springer, London

  • Print ISBN: 978-1-4471-6719-8

  • Online ISBN: 978-1-4471-6720-4

  • eBook Packages: Computer ScienceComputer Science (R0)

Publish with us

Policies and ethics

Search

Navigation