Abstract
Patient registries are defined as “organized systems that use observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes” [8]. While randomized clinical trials (RCTs) provide a high level of scientific evidence, patient registries provide a unique opportunity to study devices and outcomes in a real-world environment when RCTs are not feasible, practical, or ethical. Registries are ideal when longitudinal follow-up is necessary, when large sample sizes are required to detect rare events, and when examining outcomes in patients with various comorbidities and in different practice settings [8].
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Paxton, E.W., Inacio, M.C.S., Maletis, G.B., Desmond, J.L., Funahashi, T.T. (2013). What Have We Learned from the Kaiser Permanente Anterior Cruciate Ligament Reconstruction Registry (KP ACLRR)?. In: Sanchis-Alfonso, V., Monllau, J. (eds) The ACL-Deficient Knee. Springer, London. https://doi.org/10.1007/978-1-4471-4270-6_1
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