Abstract
Breast cancer can have a significant impact on the emotional and psychological well-being of Latinas who are diagnosed with the disease. Although psychosocial interventions can alleviate the psychological distress experienced by survivors, the benefits of psychosocial support remain elusive for many Latina women due to lack of access to mental health services in their community. To meet the rising need for services among Latina breast cancer survivors, new infrastructures are needed to increase access to culturally congruent and comprehensive mental health services. Within this chapter, we propose that community-based nonprofit organizations can play a key role in the expansion of mental health services for Latina breast cancer survivors. First, we describe the range of psychological concerns of breast cancer survivors to underscore the need for mental health services. Next, we present a model of comprehensive mental health services within the nonprofit sector. The final section provides further infrastructure recommendations for narrowing this critical mental health services disparity.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Alfano, C., & Rowland, J. (2006). Recovery issues in cancer survivorship: A new challenge for supportive care. Cancer Journal, 12(5), 432–443.
Alferi, S., Carver, C., Antoni, M., Weiss, S., & Durán, R. (2001). An exploratory study of social support, distress, and life disruption among low-income Hispanic women under treatment for early stage breast cancer. Health Psychology, 20(1), 41–46. doi:10.1037//0278-6133.20.1.41
Altman, R. (1996). The politics of breast cancer: Waking up, fighting back. Boston, MA: Little, Brown.
American Cancer Society. (2009). Cancer facts and figures for Hispanics. Retrieved from http://www.cancer.org/Research/CancerFactsFigures/CancerFactsFiguresforHispanicsLatinos/cancer-facts-figures-for-hispanics-latinos-2009-2011
American Cancer Society. (2010, November). Breast cancer. Retrieved from http://www.cancer.org/Cancer/BreastCancer/DetailedGuide/index
Arias, E. (2010). United States life tables by Hispanic origin. Vital & Health Statistics, 2(152), 2010–1352.
Ashing-Giwa, K., & Lim, J. (2010). Exploring the association between functional strain and emotional well-being among a population-based sample of breast cancer survivors. Psycho-Oncology, 19(2), 150–159. doi:10.1002/pon.1517
Ashing-Giwa, K., Padilla, G., Bohorquez, D., Tejero, J., & Garcia, M. (2006). Understanding the breast cancer experience of Latina women. Journal of Psychosocial Oncology, 24(3), 19–52. doi:10.1300/J077v24n03_02
Ashing-Giwa, K. T., Padilla, G., Tejero, J., Kraemer, J., Wright, K., Coscarelli, A., …Hills, D. (2004). Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and Caucasian cancer survivors. Psycho-Oncology, 13(6), 408–428. doi:10.1002/pon.750
Ashing-Giwa, K., Tejero, J., Kim, J., Padilla, V., & Hellemann, G. (2007). Examining predictive models of HRQOL in a population-based, multiethnic sample of women with breast carcinoma. Quality of Life Research, 16(3), 413–428. doi:10.1007/s11136-006-9138-4
Avis, N., Crawford, S., & Manuel, J. (2004). Psychosocial problems among younger women with breast cancer. Psycho-Oncology, 13(5), 295–308.
Badger, T., Braden, C., Mishel, M., & Longman, A. (2004). Depression burden, psychological adjustment, and quality of life in women with breast cancer: Patterns over time. Research in Nursing & Health, 27(1), 19–28. doi:10.1002/nur.20002
Bauer, K., Brown, M., Cress, R., Parise, C., & Caggiano, V. (2007). Descriptive analysis of estrogen receptor (er)negative, progesterone receptor (pr)-negative, and her2-negative invasive breast cancer, the so-called triple-negative phenotype: A population-based study from the California Cancer Registry. Cancer, 109(9), 1721–1728. doi:10.1002/cncr.22618
Beard, H., Al Ghatrif, M., Samper-Ternent, R., Gerst, K., & Markides, K. (2009). Trends in diabetes prevalence and diabetes-related complications in older Mexican Americans from 1993–1994 to 2004–2005. Diabetes Care, 32(12), 2212–2217. doi:10.2337/dc09-0938
Beckjord, E., & Compas, B. (2007). Sexual quality of life in women with newly diagnosed breast cancer. Journal of Psychosocial Oncology, 25(2), 19–36. doi:10.1300/8077v2502_02
Bower, J. (2008). Behavioral symptoms in patients with breast cancer and survivors. Journal of Clinical Oncology, 26(5), 768–777. doi:10.1200/JCO.2007.14.3248
Buki, L. P., & Grupski, A. (2010). Identified gaps in our readiness to meet the psychosocial needs of Latina women with breast cancer. Unpublished manuscript.
Buki, L. P., & Selem, M. (2009). Cancer screening and survivorship in Latino populations: A primer for psychologists. In F. A. Villarruel, G. Carlo, J. M. Grau, M. Azmitia, N. Cabrera, & T. J. Chahin (Eds.), U.S. handbook of Latina/o psychology (pp. 363–378). Thousand Oaks, CA: Sage.
Buki, L. P., Garcés, D. M., Hinestrosa, M. C., Kogan, L., Carrillo, I. Y., & French, B. (2008). Latina breast cancer survivors’ lived experiences: Diagnosis, treatment, and beyond. Cultural Diversity & Ethnic Minority Psychology, 14(2), 163–167.
Burgess, C., Cornelius, V., Love, S., Graham, J., Richards, M., & Ramirez, A. (2005, February 4). Depression and anxiety in women with early breast cancer: Five-year observational cohort study. British Medical Journal (Compact ed.), 330(7493), 702-705. doi: 10.1136/bmj.38343.670868.D3
Campesino, M., Ruiz, E., Glover, J., & Koithan, M. (2009). Counternarratives of Mexican-origin women with breast cancer. ANS Advances in Nursing Science, 32(2), E57–E67. doi:10.1097/ANS.0b013e3181a3b47c
Carver, C. S., Smith, R. G., Petronis, V. M., & Antoni, M. H. (2006). Quality of life among long-term survivors of breast cancer: Different types of antecedents predict different classes of outcomes. Psycho-Oncology, 15, 749-758. doi: 10.1002/pon.1006
Centers for Disease Control and Prevention. (2007). HIV/AIDS surveillance report, 2007. Atlanta, GA: U.S. Department of Health and Human Services, 1–63. Retrieved from http://www.cdc.gov/hiv/surveillance/resources/reports/2007report/
Christie, K., Meyerowitz, B., & Maly, R. (2009). Depression and sexual adjustment following breast cancer in low-income Hispanic and non-Hispanic white women. Psycho-Oncology, 19(10), 1069–1077. doi:10.1002/pon.1661
Cohen, S. (2004). Social relationships and health. American Psychologist, 59(8), 676–684.
Dausch, B. M., Compas, B. E., Beckjord, E., Luecken, L., Anderson-Hanley, C., Sherman, M., & Grossman, C. (2004). Rates and correlates of DSM-IV diagnoses in women newly diagnosed with breast cancer. Journal of Clinical Psychology in Medical Settings, 11(3), 159–169.
Dwight-Johnson, M., Ell, K., & Lee, P. (2005). Can collaborative care address the needs of low-income Latinas with comorbid depression and cancer? Results from a randomized pilot study. Psychosomatics, 46, 224–232.
Ell, K., Sanchez, K, Vourlekis, B., Lee, P., Dwight-Johnson, M., Lagomasino, I., … Russell, C. (2005). Depression, correlates of depression, and receipt of depression care among low-income women with breast or gynecologic cancer. Journal of Clinical Oncology, 23(13), 3052–3060. doi:10.1200/JCO.2005.08.041
Figueiredo, M., Fries, E., & Ingram, K. (2004). The role of disclosure patterns and unsupportive social interactions in the well-being of breast cancer patients. Psycho-Oncology, 13(2), 96–105. doi:10.1002/pon.717
Fisher, B., Anderson, S., Bryant, J., Margolese, R., Deutsch, M., Fisher, E., … Wolmark, N. (2002). Twenty-year follow-up of a randomized trial comparing total mastectomy, lumpectomy, and lumpectomy plus irradiation for the treatment of invasive breast cancer. New England Journal of Medicine, 347(16), 1233–1241.
Galván, N., Buki, L. P., & Garcés, D. M. (2009). Suddenly, a carriage appears: Social support needs of Latina breast cancer survivors. Journal of Psychosocial Oncology, 27, 361–382.
Ganz, P., Kwan, L., Stanton, A., Krupnick, J., Rowland, J., Meyerowitz, B., … Belin, T. (2004). Quality of life at the end of primary treatment of breast cancer: First results from the Moving Beyond Cancer randomized trial. Journal of the National Cancer Institute, 96(5), 376–387. doi:10.1093/jnci/djh060
Giedzinska, A., Meyerowitz, B., Ganz, P., & Rowland, J. (2004). Health-related quality of life in a multiethnic sample of breast cancer survivors. Annals of Behavioral Medicine, 28(1), 39–51.
Golden-Kreutz, D., & Andersen, B. (2004). Depressive symptoms after breast cancer surgery: Relationships with global, cancer-related, and life event stress. Psycho-Oncology, 13(3), 211–220. doi:10.1002/pon.736
Grieve, M. (2003). Nonprofit organizations in the Canadian breast cancer network. In K. L. Brock & K. G. Banting (Eds.), The nonprofit sector in interesting times (pp. 99–128). Montreal: McGill-Queen’s University Press.
Institute of Medicine. (2002). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: National Academies Press.
Institute of Medicine. (2004). Health literacy: A prescription to end confusion. Washington, DC: National Academies Press.
Institute of Medicine. (2005). From cancer patient to cancer survivor: Lost in transition. Washington, DC: National Academies Press.
Janz, N., Mujahid, M., Hawley, S., Griggs, J., Alderman, A., Hamilton, A., … Katz, S. (2009). Racial/ethnic differences in quality of life after diagnosis of breast cancer. Journal of Cancer Survivorship, 3(4), 212–222.
Living Beyond Breast Cancer. (n.d.). About LBBC. Retrieved May 2, 2007 from http://www.lbbc.org/mission-statement.asp
Livingston, G., Minushkin, S., & Cohn, D. (2008). Hispanics and health care in the United States: Access, information, and knowledge. Retrieved from Pew Hispanic Center website at http://pewhispanic.org/reports/report.php?ReportID=91
Love, A., Grabsch, B., Clarke, D., Bloch, S., & Kissane, D. (2004). Screening for depression in women with metastatic breast cancer: A comparison of the Beck Depression Inventory Short Form and the Hospital Anxiety and Depression Scale. Australian & New Zealand Journal of Psychiatry, 38(7), 526–531.
Metcalfe, K., Esplen, J., Goel, V., & Narod, S. (2004). Psychosocial functioning in women who have undergone bilateral prophylactic mastectomy. Psycho-Oncology, 13(1), 14–25.
Nápoles-Springer, A., OrtÃz, C., DÃaz-Méndez, M., & Pérez-Stable, E. (2007). Use of support groups among Latina breast cancer survivors. Psycho-Oncology, 16(3), S61–S62.
National Breast Cancer Coalition. (2006). About NBCC and NBCCF. Retrieved May 2, 2007 from http://www.natlbcc.org/bin/index.asp?strid=537&depid=1&btnid=0
Norman, S., Localio, A., Potashnik, S., Torpey, H., Kallan, M., Weber, A., … Solin, L. (2008). Lymphedema in breast cancer survivors: Incidence, degree, time course, treatment, and symptoms. Journal of Clinical Oncology, 27(3), 390–397. doi:10.1200/JCO.2008.17.9291
Nueva Vida. (n.d.). Retrieved September 10, 2007, from http://www.nueva-vida.org/index.htm
Parker, P., Baile, W., de Moor, C., & Cohen, L. (2003). Psychosocial and demographic predictors of quality of life in a large sample of cancer patients. Psycho-Oncology, (12)2, 183–193. doi:10.1002/pon.635
Paskett, E. D., & Stark, N. N. (2000). Lymphedema: Knowledge, treatment, and impact among breast cancer survivors. Breast Journal, 6(6), 373–378. doi:10.1046/j.1524-4741.2000.99072.x
Patel, T., Colon-Otero, G., Hume, C., Copland, J., & Perez, E. (2010). Breast cancer in Latinas: Gene expression, differential response to treatments, and differential toxicities in Latinas compared with other population groups. The Oncologist, 15(5), 466–475. doi:10.1634/theoncologist.2010-0004
Petronis, V., Carver, C., Antoni, M., & Weiss, S. (2003). Investment in body image and psychosocial well-being among women treated for early stage breast cancer: Partial replication and extension. Psychology & Health, 1(18), 1–13.
Pinquart, M., & Duberstein, P. (2010). Depression and cancer mortality: A meta-analysis. Psychological Medicine, 40(11), 1797–1810. doi:10.1017/S0033291709992285
Ramakrishnan, S. & Viramontes, C. (2006). Civil inequalities: Immigrant volunteerism and community organizations in California. San Francisco, CA: Public Policy Institute of California.
Sammarco, A., & Konecny, L. (2010). Quality of life, social support, and uncertainty among Latina and Caucasian breast cancer survivors: A comparative study. Oncology Nursing Forum, 37(1), 93–99.
Shavers, V., Harlan, L., & Stevens, J. (2003). Racial/ethnic variation in clinical presentation, treatment, and survival among breast cancer patients under age 35. Cancer, 97(1), 134–147.
Shelby, R. A., Taylor, K. L., Kerner, J. F., Coleman, E., & Blum, D. (2002). The role of community-based and philanthropic organizations in meeting cancer patient and caregiver needs. CA: A Cancer Journal for Clinicians, 52, 229–246.
The Sister Network, Inc. (n.d.). History. Retrieved May 2, 2007 from http://www.sistersnetworkinc.org/about-us.asp
Spencer, S., Lehman, J., Wynings, C., Arena, P., Carver, C., Antoni, M., … Ironson, G. (1999). Concerns about breast cancer and relations to psychosocial well-being in a multiethnic sample of early-stage patients. Health Psychology, 18(2), 159–168.
Taylor, S., & Stanton, A. (2007). Coping resources, coping processes, and mental health. Annual Review of Clinical Psychology, 3(1), 377–401. doi:10.1146/annurev.clinpsy.3.022806.091520
Zakowski, S., Ramati, A., Morton, C., Johnson, P., & Flanigan, R. (2004). Written emotional disclosure buffers the effects of social constraints on distress among cancer patients. Health Psychology, 23(6), 555–563. doi:10.1037/0278-6133.23.6.555
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2011 Springer Science+Business Media, LLC
About this chapter
Cite this chapter
Mayfield, J.B., Buki, L.P. (2011). Life During and After Breast Cancer: Providing Community-based Comprehensive Services to Latinas. In: Buki, L., Piedra, L. (eds) Creating Infrastructures for Latino Mental Health. Springer, New York, NY. https://doi.org/10.1007/978-1-4419-9452-3_12
Download citation
DOI: https://doi.org/10.1007/978-1-4419-9452-3_12
Published:
Publisher Name: Springer, New York, NY
Print ISBN: 978-1-4419-9451-6
Online ISBN: 978-1-4419-9452-3
eBook Packages: MedicineMedicine (R0)