Skip to main content

Life During and After Breast Cancer: Providing Community-based Comprehensive Services to Latinas

  • Chapter
  • First Online:
Creating Infrastructures for Latino Mental Health

Abstract

Breast cancer can have a significant impact on the emotional and psychological well-being of Latinas who are diagnosed with the disease. Although psychosocial interventions can alleviate the psychological distress experienced by survivors, the benefits of psychosocial support remain elusive for many Latina women due to lack of access to mental health services in their community. To meet the rising need for services among Latina breast cancer survivors, new infrastructures are needed to increase access to culturally congruent and comprehensive mental health services. Within this chapter, we propose that community-based nonprofit organizations can play a key role in the expansion of mental health services for Latina breast cancer survivors. First, we describe the range of psychological concerns of breast cancer survivors to underscore the need for mental health services. Next, we present a model of comprehensive mental health services within the nonprofit sector. The final section provides further infrastructure recommendations for narrowing this critical mental health services disparity.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 79.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 99.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Alfano, C., & Rowland, J. (2006). Recovery issues in cancer survivorship: A new challenge for supportive care. Cancer Journal, 12(5), 432–443.

    Article  Google Scholar 

  • Alferi, S., Carver, C., Antoni, M., Weiss, S., & Durán, R. (2001). An exploratory study of social support, distress, and life disruption among low-income Hispanic women under treatment for early stage breast cancer. Health Psychology, 20(1), 41–46. doi:10.1037//0278-6133.20.1.41

    Article  PubMed  CAS  Google Scholar 

  • Altman, R. (1996). The politics of breast cancer: Waking up, fighting back. Boston, MA: Little, Brown.

    Google Scholar 

  • American Cancer Society. (2009). Cancer facts and figures for Hispanics. Retrieved from http://www.cancer.org/Research/CancerFactsFigures/CancerFactsFiguresforHispanicsLatinos/cancer-facts-figures-for-hispanics-latinos-2009-2011

    Google Scholar 

  • American Cancer Society. (2010, November). Breast cancer. Retrieved from http://www.cancer.org/Cancer/BreastCancer/DetailedGuide/index

    Google Scholar 

  • Arias, E. (2010). United States life tables by Hispanic origin. Vital & Health Statistics, 2(152), 2010–1352.

    Google Scholar 

  • Ashing-Giwa, K., & Lim, J. (2010). Exploring the association between functional strain and emotional well-being among a population-based sample of breast cancer survivors. Psycho-Oncology, 19(2), 150–159. doi:10.1002/pon.1517

    Article  PubMed  Google Scholar 

  • Ashing-Giwa, K., Padilla, G., Bohorquez, D., Tejero, J., & Garcia, M. (2006). Understanding the breast cancer experience of Latina women. Journal of Psychosocial Oncology, 24(3), 19–52. doi:10.1300/J077v24n03_02

    Article  PubMed  Google Scholar 

  • Ashing-Giwa, K. T., Padilla, G., Tejero, J., Kraemer, J., Wright, K., Coscarelli, A., …Hills, D. (2004). Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and Caucasian cancer survivors. Psycho-Oncology, 13(6), 408–428. doi:10.1002/pon.750

    Article  PubMed  Google Scholar 

  • Ashing-Giwa, K., Tejero, J., Kim, J., Padilla, V., & Hellemann, G. (2007). Examining predictive models of HRQOL in a population-based, multiethnic sample of women with breast carcinoma. Quality of Life Research, 16(3), 413–428. doi:10.1007/s11136-006-9138-4

    Article  PubMed  Google Scholar 

  • Avis, N., Crawford, S., & Manuel, J. (2004). Psychosocial problems among younger women with breast cancer. Psycho-Oncology, 13(5), 295–308.

    Article  PubMed  Google Scholar 

  • Badger, T., Braden, C., Mishel, M., & Longman, A. (2004). Depression burden, psychological adjustment, and quality of life in women with breast cancer: Patterns over time. Research in Nursing & Health, 27(1), 19–28. doi:10.1002/nur.20002

    Article  Google Scholar 

  • Bauer, K., Brown, M., Cress, R., Parise, C., & Caggiano, V. (2007). Descriptive analysis of estrogen receptor (er)negative, progesterone receptor (pr)-negative, and her2-negative invasive breast cancer, the so-called triple-negative phenotype: A population-based study from the California Cancer Registry. Cancer, 109(9), 1721–1728. doi:10.1002/cncr.22618

    Article  PubMed  Google Scholar 

  • Beard, H., Al Ghatrif, M., Samper-Ternent, R., Gerst, K., & Markides, K. (2009). Trends in diabetes prevalence and diabetes-related complications in older Mexican Americans from 1993–1994 to 2004–2005. Diabetes Care, 32(12), 2212–2217. doi:10.2337/dc09-0938

    Article  PubMed  Google Scholar 

  • Beckjord, E., & Compas, B. (2007). Sexual quality of life in women with newly diagnosed breast cancer. Journal of Psychosocial Oncology, 25(2), 19–36. doi:10.1300/8077v2502_02

    Article  PubMed  Google Scholar 

  • Bower, J. (2008). Behavioral symptoms in patients with breast cancer and survivors. Journal of Clinical Oncology, 26(5), 768–777. doi:10.1200/JCO.2007.14.3248

    Article  PubMed  Google Scholar 

  • Buki, L. P., & Grupski, A. (2010). Identified gaps in our readiness to meet the psychosocial needs of Latina women with breast cancer. Unpublished manuscript.

    Google Scholar 

  • Buki, L. P., & Selem, M. (2009). Cancer screening and survivorship in Latino populations: A primer for psychologists. In F. A. Villarruel, G. Carlo, J. M. Grau, M. Azmitia, N. Cabrera, & T. J. Chahin (Eds.), U.S. handbook of Latina/o psychology (pp. 363–378). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Buki, L. P., Garcés, D. M., Hinestrosa, M. C., Kogan, L., Carrillo, I. Y., & French, B. (2008). Latina breast cancer survivors’ lived experiences: Diagnosis, treatment, and beyond. Cultural Diversity & Ethnic Minority Psychology, 14(2), 163–167.

    Article  Google Scholar 

  • Burgess, C., Cornelius, V., Love, S., Graham, J., Richards, M., & Ramirez, A. (2005, February 4). Depression and anxiety in women with early breast cancer: Five-year observational cohort study. British Medical Journal (Compact ed.), 330(7493), 702-705. doi: 10.1136/bmj.38343.670868.D3

    Article  Google Scholar 

  • Campesino, M., Ruiz, E., Glover, J., & Koithan, M. (2009). Counternarratives of Mexican-origin women with breast cancer. ANS Advances in Nursing Science, 32(2), E57–E67. doi:10.1097/ANS.0b013e3181a3b47c

    PubMed  Google Scholar 

  • Carver, C. S., Smith, R. G., Petronis, V. M., & Antoni, M. H. (2006). Quality of life among long-term survivors of breast cancer: Different types of antecedents predict different classes of outcomes. Psycho-Oncology, 15, 749-758. doi: 10.1002/pon.1006

    Article  PubMed  Google Scholar 

  • Centers for Disease Control and Prevention. (2007). HIV/AIDS surveillance report, 2007. Atlanta, GA: U.S. Department of Health and Human Services, 1–63. Retrieved from http://www.cdc.gov/hiv/surveillance/resources/reports/2007report/

    Google Scholar 

  • Christie, K., Meyerowitz, B., & Maly, R. (2009). Depression and sexual adjustment following breast cancer in low-income Hispanic and non-Hispanic white women. Psycho-Oncology, 19(10), 1069–1077. doi:10.1002/pon.1661

    Article  Google Scholar 

  • Cohen, S. (2004). Social relationships and health. American Psychologist, 59(8), 676–684.

    Article  PubMed  Google Scholar 

  • Dausch, B. M., Compas, B. E., Beckjord, E., Luecken, L., Anderson-Hanley, C., Sherman, M., & Grossman, C. (2004). Rates and correlates of DSM-IV diagnoses in women newly diagnosed with breast cancer. Journal of Clinical Psychology in Medical Settings, 11(3), 159–169.

    Article  Google Scholar 

  • Dwight-Johnson, M., Ell, K., & Lee, P. (2005). Can collaborative care address the needs of low-income Latinas with comorbid depression and cancer? Results from a randomized pilot study. Psychosomatics, 46, 224–232.

    Article  PubMed  Google Scholar 

  • Ell, K., Sanchez, K, Vourlekis, B., Lee, P., Dwight-Johnson, M., Lagomasino, I., … Russell, C. (2005). Depression, correlates of depression, and receipt of depression care among low-income women with breast or gynecologic cancer. Journal of Clinical Oncology, 23(13), 3052–3060. doi:10.1200/JCO.2005.08.041

    Article  PubMed  Google Scholar 

  • Figueiredo, M., Fries, E., & Ingram, K. (2004). The role of disclosure patterns and unsupportive social interactions in the well-being of breast cancer patients. Psycho-Oncology, 13(2), 96–105. doi:10.1002/pon.717

    Article  PubMed  Google Scholar 

  • Fisher, B., Anderson, S., Bryant, J., Margolese, R., Deutsch, M., Fisher, E., … Wolmark, N. (2002). Twenty-year follow-up of a randomized trial comparing total mastectomy, lumpectomy, and lumpectomy plus irradiation for the treatment of invasive breast cancer. New England Journal of Medicine, 347(16), 1233–1241.

    Article  PubMed  Google Scholar 

  • Galván, N., Buki, L. P., & Garcés, D. M. (2009). Suddenly, a carriage appears: Social support needs of Latina breast cancer survivors. Journal of Psychosocial Oncology, 27, 361–382.

    Article  PubMed  Google Scholar 

  • Ganz, P., Kwan, L., Stanton, A., Krupnick, J., Rowland, J., Meyerowitz, B., … Belin, T. (2004). Quality of life at the end of primary treatment of breast cancer: First results from the Moving Beyond Cancer randomized trial. Journal of the National Cancer Institute, 96(5), 376–387. doi:10.1093/jnci/djh060

    Article  PubMed  Google Scholar 

  • Giedzinska, A., Meyerowitz, B., Ganz, P., & Rowland, J. (2004). Health-related quality of life in a multiethnic sample of breast cancer survivors. Annals of Behavioral Medicine, 28(1), 39–51.

    Article  PubMed  Google Scholar 

  • Golden-Kreutz, D., & Andersen, B. (2004). Depressive symptoms after breast cancer surgery: Relationships with global, cancer-related, and life event stress. Psycho-Oncology, 13(3), 211–220. doi:10.1002/pon.736

    Article  PubMed  Google Scholar 

  • Grieve, M. (2003). Nonprofit organizations in the Canadian breast cancer network. In K. L. Brock & K. G. Banting (Eds.), The nonprofit sector in interesting times (pp. 99–128). Montreal: McGill-Queen’s University Press.

    Google Scholar 

  • Institute of Medicine. (2002). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: National Academies Press.

    Google Scholar 

  • Institute of Medicine. (2004). Health literacy: A prescription to end confusion. Washington, DC: National Academies Press.

    Google Scholar 

  • Institute of Medicine. (2005). From cancer patient to cancer survivor: Lost in transition. Washington, DC: National Academies Press.

    Google Scholar 

  • Janz, N., Mujahid, M., Hawley, S., Griggs, J., Alderman, A., Hamilton, A., … Katz, S. (2009). Racial/ethnic differences in quality of life after diagnosis of breast cancer. Journal of Cancer Survivorship, 3(4), 212–222.

    Article  PubMed  Google Scholar 

  • Living Beyond Breast Cancer. (n.d.). About LBBC. Retrieved May 2, 2007 from http://www.lbbc.org/mission-statement.asp

    Google Scholar 

  • Livingston, G., Minushkin, S., & Cohn, D. (2008). Hispanics and health care in the United States: Access, information, and knowledge. Retrieved from Pew Hispanic Center website at http://pewhispanic.org/reports/report.php?ReportID=91

    Google Scholar 

  • Love, A., Grabsch, B., Clarke, D., Bloch, S., & Kissane, D. (2004). Screening for depression in women with metastatic breast cancer: A comparison of the Beck Depression Inventory Short Form and the Hospital Anxiety and Depression Scale. Australian & New Zealand Journal of Psychiatry, 38(7), 526–531.

    Article  Google Scholar 

  • Metcalfe, K., Esplen, J., Goel, V., & Narod, S. (2004). Psychosocial functioning in women who have undergone bilateral prophylactic mastectomy. Psycho-Oncology, 13(1), 14–25.

    Article  PubMed  Google Scholar 

  • Nápoles-Springer, A., Ortíz, C., Díaz-Méndez, M., & Pérez-Stable, E. (2007). Use of support groups among Latina breast cancer survivors. Psycho-Oncology, 16(3), S61–S62.

    Google Scholar 

  • National Breast Cancer Coalition. (2006). About NBCC and NBCCF. Retrieved May 2, 2007 from http://www.natlbcc.org/bin/index.asp?strid=537&depid=1&btnid=0

    Google Scholar 

  • Norman, S., Localio, A., Potashnik, S., Torpey, H., Kallan, M., Weber, A., … Solin, L. (2008). Lymphedema in breast cancer survivors: Incidence, degree, time course, treatment, and symptoms. Journal of Clinical Oncology, 27(3), 390–397. doi:10.1200/JCO.2008.17.9291

    Article  PubMed  Google Scholar 

  • Nueva Vida. (n.d.). Retrieved September 10, 2007, from http://www.nueva-vida.org/index.htm

    Google Scholar 

  • Parker, P., Baile, W., de Moor, C., & Cohen, L. (2003). Psychosocial and demographic predictors of quality of life in a large sample of cancer patients. Psycho-Oncology, (12)2, 183–193. doi:10.1002/pon.635

    Article  PubMed  Google Scholar 

  • Paskett, E. D., & Stark, N. N. (2000). Lymphedema: Knowledge, treatment, and impact among breast cancer survivors. Breast Journal, 6(6), 373–378. doi:10.1046/j.1524-4741.2000.99072.x

    Article  PubMed  Google Scholar 

  • Patel, T., Colon-Otero, G., Hume, C., Copland, J., & Perez, E. (2010). Breast cancer in Latinas: Gene expression, differential response to treatments, and differential toxicities in Latinas compared with other population groups. The Oncologist, 15(5), 466–475. doi:10.1634/theoncologist.2010-0004

    Article  PubMed  Google Scholar 

  • Petronis, V., Carver, C., Antoni, M., & Weiss, S. (2003). Investment in body image and psychosocial well-being among women treated for early stage breast cancer: Partial replication and extension. Psychology & Health, 1(18), 1–13.

    Article  Google Scholar 

  • Pinquart, M., & Duberstein, P. (2010). Depression and cancer mortality: A meta-analysis. Psychological Medicine, 40(11), 1797–1810. doi:10.1017/S0033291709992285

    Article  PubMed  CAS  Google Scholar 

  • Ramakrishnan, S. & Viramontes, C. (2006). Civil inequalities: Immigrant volunteerism and community organizations in California. San Francisco, CA: Public Policy Institute of California.

    Google Scholar 

  • Sammarco, A., & Konecny, L. (2010). Quality of life, social support, and uncertainty among Latina and Caucasian breast cancer survivors: A comparative study. Oncology Nursing Forum, 37(1), 93–99.

    Article  PubMed  Google Scholar 

  • Shavers, V., Harlan, L., & Stevens, J. (2003). Racial/ethnic variation in clinical presentation, treatment, and survival among breast cancer patients under age 35. Cancer, 97(1), 134–147.

    Article  PubMed  Google Scholar 

  • Shelby, R. A., Taylor, K. L., Kerner, J. F., Coleman, E., & Blum, D. (2002). The role of community-based and philanthropic organizations in meeting cancer patient and caregiver needs. CA: A Cancer Journal for Clinicians, 52, 229–246.

    Article  Google Scholar 

  • The Sister Network, Inc. (n.d.). History. Retrieved May 2, 2007 from http://www.sistersnetworkinc.org/about-us.asp

    Google Scholar 

  • Spencer, S., Lehman, J., Wynings, C., Arena, P., Carver, C., Antoni, M., … Ironson, G. (1999). Concerns about breast cancer and relations to psychosocial well-being in a multiethnic sample of early-stage patients. Health Psychology, 18(2), 159–168.

    Article  PubMed  CAS  Google Scholar 

  • Taylor, S., & Stanton, A. (2007). Coping resources, coping processes, and mental health. Annual Review of Clinical Psychology, 3(1), 377–401. doi:10.1146/annurev.clinpsy.3.022806.091520

    Article  PubMed  Google Scholar 

  • Zakowski, S., Ramati, A., Morton, C., Johnson, P., & Flanigan, R. (2004). Written emotional disclosure buffers the effects of social constraints on distress among cancer patients. Health Psychology, 23(6), 555–563. doi:10.1037/0278-6133.23.6.555

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Jennifer B. Mayfield .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2011 Springer Science+Business Media, LLC

About this chapter

Cite this chapter

Mayfield, J.B., Buki, L.P. (2011). Life During and After Breast Cancer: Providing Community-based Comprehensive Services to Latinas. In: Buki, L., Piedra, L. (eds) Creating Infrastructures for Latino Mental Health. Springer, New York, NY. https://doi.org/10.1007/978-1-4419-9452-3_12

Download citation

  • DOI: https://doi.org/10.1007/978-1-4419-9452-3_12

  • Published:

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4419-9451-6

  • Online ISBN: 978-1-4419-9452-3

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics