Education and Support Programs for Family Caregivers: Current Practices Across Health-Care Scenarios
Family caregiving in the United States occurs within the context of several important societal changes that impinge directly upon the experience and adjustment of persons who live with a chronic and debilitating health condition. In their day-to-day routines, families have more influence on the personal health of each member than any other individual or any health service provider (Elliott & Shewchuk, 2004). Unfortunately, family members are typically viewed as informal, ancillary factors in health service delivery and most health-care delivery systems overlook their role as front-line service providers for many persons who live with chronic and debilitating health-conditions.
KeywordsFamily Caregiver Chronic Health Condition Caregiver Role Psychoeducational Program Telephone Session
This chapter was supported by grants from the National Institute on Child Health and Human Development (1 R01 HD37661-01A3), and from the National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services, U. S. Department of Education (grant numbers H133B90016 and H133A021927), and from the National Center for Injury Prevention and Control and the Disabilities Prevention Program, National Center for Environmental Health (grant number R49/CCR412718-01). Its contents are solely the responsibility of the author and do not necessarily represent the official views of the funding agencies.
- Crewe, N. (1993). Spousal relationships and disability. In F. P. Haseltine, S. Cole, & D. Gray (Eds.), Reproductive issues for persons with physical disabilities (pp. 141–151). Baltimore: Paul H. Brookes Publishing.Google Scholar
- Eisendorfer, C., Craja, S., Loewenstein, D., Rubert, M., Arguelles, S., Mitrani, V., et al. (2003). The effect of a family therapy and technology-based intervention on caregiver depression. The Gerontologist, 43, 521–531.Google Scholar
- Elliott, T., Rivera, P., & Tucker, E. (2004). Groups in behavioral health and medical settings. In J. L. DeLucia-Waack, D. Gerrity, C. Kalodner, & M. Riva (Eds.), Handbook of group counseling and psychotherapy (pp. 338–350). New York: Sage.Google Scholar
- Elliott, T., & Shewchuk, R. (2004). Family adaptation in illness, disease, and disability: Implications for research, policy, and practice. In J. Racynski, L. Bradley, & L. Leviton (Eds.), Health and behavior handbook (Vol. II, pp. 379–403). Washington, D. C.: American Psychological Association Press.Google Scholar
- Gallagher-Thompson, D., Coon, D., Solano, N., Ambler, C., Rabinowitz, Y., & Thompson, L. (2003). Change in indices of distress among latino and anglo female caregivers of elderly relatives with dementia: Site-specific results from the REACH national collaborative study. The Gerontologist, 43, 580–591.PubMedGoogle Scholar
- Haaga, D. A., & Stiles, W. (2000). Randomized clinical trials in psychotherapy research: Methodology, design, and evaluation. In C. R. Snyder & R. E. Ingram (Eds.), Handbook of psychological change: Psychotherapy processes and practices for the 21st Century (pp. 14–39). New York: Wiley.Google Scholar
- Horn, S. D. (1997). Clinical practice improvement methodology: Implementation and evaluation. New York: Faulkner & Gray.Google Scholar
- Institute of Medicine. (2001). Crossing the quality chasm: A new health system for the 21st century. Washington D. C.: National Academy Press.Google Scholar
- Lengnick-Hall, C. A. (1995). The patient as the pivot point for quality in health care delivery. Hospital & Health Services Administration, 40, 25–39.Google Scholar
- Mahoney, D. F., Burns, R., & Harrow, B. (2000). From intervention studies to public policy: Translating research into practice. In R. Schulz (Ed.), Handbook on dementia caregiving: Evidenced-based interventions in family caregiving (pp. 249–281). New York: Springer.Google Scholar
- Mittelman, M. S., Roth, D., Haley, W., & Zarit, S. (2004). Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patients with Alzheimer’s disease: Results of a randomized trial. Journal of Gerontology: Psychological Sciences, 59B, P27–P34.Google Scholar
- Moore, L. I. (1989). Behavioral changes in male spinal cord injured following two types of psychosocial rehabilitation experience. Unpublished doctoral dissertation: St. Louis University.Google Scholar
- Olkin, R. (1999). What psychotherapists should know about disability. New York: Guilford Press.Google Scholar
- Partnerships for Solutions. (2004). Chronic conditions: Making the case for ongoing care. Baltimore: Johns Hopkins University.Google Scholar
- Sahler, O., Fairclough, D., Phipps, S., Mulhern, R., Dolgin, M., Noll, R., et al. (2005). Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: Report of a multisite randomized trial. Journal of Consulting and Clinical Psychology, 73, 272–283.PubMedCrossRefGoogle Scholar
- Shewchuk, R., & Elliott, T. (2000). Family caregiving in chronic disease and disability: Implications for rehabilitation psychology. In R. G. Frank & T. Elliott (Eds.), Handbook of rehabilitation psychology (pp. 553–563). Washington, D. C.: American Psychological Association Press.CrossRefGoogle Scholar
- Thoits, P. A. (1995). Stress, coping, and social support processes: Where are we? What next? Journal of Health and Social Behavior(suppl.), 53–79.Google Scholar
- U. S. Department of Health and Human Services. (2000). Healthy people 2010. Washington, D. C.: U. S. Department of Health and Human Services. Available at http://www.health-gov.healthypeople.
- Surgeon General’s Workshop on Women’s Mental Health, Workshop Report (November 30 – December 1, 2005). (2005). Washington, D. C.: Department of Health and Human Services.Google Scholar
- Zarit, S. H., & Pearlin, L. I. (1993). Family caregiving: Integrating informal and formal systems for care. In S. H. Zarit, L. I. Pearlin, & K. W. Schaie (Eds.), Caregiving systems: Informal and formal helpers (pp. 303–316). Hillsdale: Lawrence Erlbaum.Google Scholar