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University of Michigan Disorders of Sex Development (DSD) Research and Quality Improvement Symposium

  • David E. SandbergEmail author
  • Anthony J. Asciutto
  • Emily Haddad
Conference paper
Part of the Advances in Experimental Medicine and Biology book series (AEMB, volume 707)

Abstract

Disorders of sex development (DSD) are “congenital conditions in which development of chromosomal, gonadal, or anatomic sex is atypical” [1]. For families, the birth of a child with a DSD, and the attendant uncertainty about the child’s gender and future psychological and sexual development, is believed to be extraordinarily stressful. For health-care professionals, genital ambiguity and discordance among genotype, gonads, and anatomy can be the most challenging aspects of an already complex medical condition for which long-standing controversy over the most appropriate model of care exists [2].

Keywords

Gender Identity Collaborative Learning Turner Syndrome Affected Person Complete Androgen Insensitivity Syndrome 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

Acknowledgments

The authors gratefully acknowledge Sharon Benjamin, PhD, Principal, Alchemy; Susan Salem-Schatz, ScD, Principal, HealthCare Quality Initiatives; and Ilene Rosin, MPH, President, Ilene Rosin, Inc. for their roles in conference design and facilitation. We also thank the following content experts who delivered the Conversation Café talks: Tom Mazur, PsyD, University at Buffalo and Women and Children’s Hospital of Buffalo; Anne Tamar-Mattis, JD, Executive Director, Advocates for Informed Choice (AIC); Helen Sharp, PhD CCC-SLP, Department of Speech Pathology & Audiology, Western Michigan University; and Laura A. Siminoff, PhD, Professor and Chair, Department of Social and Behavioral Health, School of Medicine, Virginia Commonwealth University. We also thank Carol Andreae-Nickles, Events & Public Relations Coordinator, Department of Pediatrics & Communicable Diseases, and Accord Alliance for providing conference logistics support. The DSD Research and Quality Improvement Symposium was supported by a symposium grant from the University of Michigan Office of the Vice President for Research, Initiative on Rare Disease, grants from the University of Michigan Departments of Pediatrics & Communicable Diseases, Surgery and Urology, and the Michigan Department of Community Health.

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Copyright information

© Springer Science+Business Media, LLC 2011

Authors and Affiliations

  • David E. Sandberg
    • 1
    Email author
  • Anthony J. Asciutto
    • 2
  • Emily Haddad
    • 1
  1. 1.Division of Child and Behavioral Health, Department of Pediatrics & Communicable DiseasesUniversity of MichiganAnn ArborUSA
  2. 2.Accord AllianceBostonUSA

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