Assessing Health-Related Quality of Life in Disorders of Sex Development: Phase I – Item Generation
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Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical . Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation.
This work was supported by NICHD awards R21HD044398 and R01HD053637.
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