Online Self-Help/Mutual Aid Groups in Mental Health Practice

  • J. Finn
  • T. Steele

Abstract

An ever-expanding number of online self-help mutual aid groups are available to provide information and support over the Internet for a wide variety of social and mental health issues. They offer advantages to consumers since they are not bound to time, place, or social presence. Research supports their benefits in areas of health, mental health, addictions, stigmatized identities, trauma and violence recovery, and grief support. Harm may also come from participation in these groups due to disinhibited communication, privacy concerns, and misinformation. Mental health practitioners need to be knowledgeable about these groups as both sources of additional support and potential stressors for consumers. Future development of online support through social networking sites and virtual communities will become new resources for consumers.

Keywords

Depression Arena Hate Dyslexia Pedophilia 

References

  1. Alao A. O., Soderberg, M., Pohl, E. L., & Alao A. L. (2006). Cybersuicide: review of the role of the internet on suicide. Cyberpsychology & Behavior: The Impact of the Internet, Multimedia and Virtual Reality on Behavior and Society, 9(4), 489–493. doi:10.1089/ cpb.2006.9.489Google Scholar
  2. Anderson, J. Q., & Rainie, L. (2006). The future of the Internet II. Pew Internet & American Life Project. Retrieved December 30, 2008, from http://www.pewinternet.org/pdfs/ PIP_Future_of_ Internet_2006.pdf.
  3. Andriessen, J. E., & Vartiainen, M. (2006). Mobile Virtual Work. New York: Springer.Google Scholar
  4. Archibald, M. E. (2007). The evolution of self-help: How a health movement became an institution. New York: Palgrave Macmillan.Google Scholar
  5. Bailenson, J. N., & Yee, N. (2005). Digital chameleons: Automatic assimilation of nonverbal gestures in immersive virtual environments. Psychological Science, 16(10), 814–819. doi:10.1111/j.1467-9280.2005.01619.xPubMedCrossRefGoogle Scholar
  6. Barak, A., & Dolev-Cohen, M. (2006). Does activity level in online support groups for distressed adolescents determine emotional relief? Counselling & Psychotherapy Research. 6(3), 186–190. doi:10.1080/14733140600848203CrossRefGoogle Scholar
  7. Barak, A., Boniel-Nissim, M., & Suler, J. (2008). Fostering empowerment in online support groups. Computers in Human Behavior, 24(5), 1867–1883. doi:10.1016/j.chb.2008.02.004CrossRefGoogle Scholar
  8. Becker, K., & Schmidt, M. (2004). Internet chat rooms and suicide. Journal of the American Academy of Child and Adolescent Psychiatry, 43(3), 246–247. doi:10.1097/01.chi.0000106848.88132.c5PubMedCrossRefGoogle Scholar
  9. Bell, V. (2007). Online information, extreme communities and Internet therapy: Is the Internet good for our mental health? Journal of Mental Health, 16(4), 445–457. doi:10.1080/09638230701482378CrossRefGoogle Scholar
  10. Bell, V., Maiden, C., Muňoz-Solomando, A., & Reddy, V. (2006). “Mind control experiences”on the Internet: Implications for the psychiatric diagnosis of delusions. Psychopathology, 39(2), 87–91. doi:10.1159/000090598PubMedCrossRefGoogle Scholar
  11. Berson, I. R. (2003). Grooming Cybervictims: The psychosocial effects of online exploitation for youth. Journal of School Violence, 2(1), 5–18. doi:10.1300/J202v02n01_02.CrossRefGoogle Scholar
  12. Biddle, L., Donovan, J., Hawton, K., Kapur, N., & Gunnell, D. (2008). Suicide and the Internet. BMJ: British Medical Journal, 336 (7648), 800. doi:10.1136 bmj.39525.442674.ADPubMedCrossRefGoogle Scholar
  13. Boreman, L. D., Brock, L. E., Hess, R., & Pasquale, F. L. (1982). Helping people to help themselves: Self -help and prevention. New York: Haworth Press.Google Scholar
  14. Bos, N,. Gergle, D., Olson, J. S., & Olson,G. M. (2001). Being there versus seeing there: trust via video, CHI ’01 extended abstracts on Human factors in computing systems. doi:10.1145/634067.634240Google Scholar
  15. Boyd, D. M., & Ellison, N. B. (2007). Social Network Sites: Definition, History, and Scholarship. Journal of Computer-Mediated Communication, 13(1), article 11. Retrieved December 24, 2008, from http://jcmc.indiana.edu/vol13/ issue1/boyd.ellison.html.CrossRefGoogle Scholar
  16. Braithwaite, D. O., Waldron, V. R., & Finn, J. (1999). Communication of social support in computer-mediated groups for people with disabilities. Health Communication, 11(2), 123–151. doi:10.1207/s15327027hc1102_2PubMedCrossRefGoogle Scholar
  17. Brown, L. D., Shepherd, M. D., Wituk, S. A., & Meissen, G. (2007). Goal achievement and the accountability of consumer-run organizations. Journal of Behavioral Health Services and Research, 34, 73–82.PubMedCrossRefGoogle Scholar
  18. Chang, B. L., Bakken, S., Brown, S. S., Houston, T. K., Kreps, G. L., & Kukafka, R., et al. (2004). Bridging the digital divide: Reaching vulnerable populations. Journal – American Medical Informatics Association, 11, 448–457. doi:10.1197/jamia.M1535CrossRefGoogle Scholar
  19. Coiera E., & Clarke R. (2004). E-Consent: The design and implementation of consumer consent mechanisms in an electronic environment. Journal of the American Medical Informatics Association : JAMIA, 11(2). doi:10.1197/jamia.M1480Google Scholar
  20. Coulson, N. S., & Knibb, R. C. (2007). Coping with food allergy: Exploring the role of the online support group. CyberPsychology and Behavior, 10, 145–148.PubMedCrossRefGoogle Scholar
  21. Davies, P., & Lipsey, Z. (2003). Ana’s gone surfing. The Psychologist, 16, 424–425.Google Scholar
  22. Dinsmore, C. (1991). From surviving to thriving: Incest, feminism and recovery. Albany, NY: State University of New York Press.Google Scholar
  23. Eichhorn, K. (2008). Soliciting and providing social support over the Internet: An Investigation of online eating disorder support groups. Journal of Computer Mediated Communication, 14(1), 67–68. Retrieved December 19, 2008, from http://www3.interscience.wiley.com. offcampus.lib.washington.edu/ cgi-bin/fulltext/121527996/PDFSTART. doi:10.1111/j.1083-6101.2008.01431.xCrossRefGoogle Scholar
  24. Eysenbach, G., Powell, J., Englesakis, M., Ruizo, C., & Stern, A. (2004). Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. British Medical Journal, 328(7449), 1166–1172. doi:10.1136/bmj.328.7449.1166PubMedCrossRefGoogle Scholar
  25. Eysenbach, G. (2000). Consumer health informatics. British Medical Journal, 320(7251), 1713-1716. doi:10.1136/bmj.320.7251.1713PubMedCrossRefGoogle Scholar
  26. Freddolino, P.,& Blaschkem C. M. (2008). Therapeutic applications of online gaming. Journal of Technology and Human Services, 26 (2–4), 423–446.CrossRefGoogle Scholar
  27. Feldman M. D. (2000). Munchausen by Internet: detecting factitious illness and crisis on the Internet. Southern Medical Journal, 93, 669–672. doi:10.1080/ 15228830802099998PubMedGoogle Scholar
  28. Ferguson, T. (1996). Health online. Reading, MA: Addison-Wesley.Google Scholar
  29. Finn, J., & Schoech, D. (2008). Internet-delivered therapeutic interventions in human services: Methods, issues, and evaluation. 3 volume issue of Journal of Technology and Human Services, 26 (2–4). Philadelphia, PA: Haworth Press.Google Scholar
  30. Finn, J. (2002). MSW Student Perception of the Ethics and Efficacy of Online Therapy. Journal of Social Work Education, 38(3), 403–420. Retrieved December 30, 2008, from http://eric.ed.gov/ ERICWebPortal/recordDetail?accno=EJ657601.Google Scholar
  31. Finn, J., & Banach, M. (2000). Victimization Online: The downside of seeking services for women on the Internet. Cyberpsychology and Behavior, 3(2), 776–785. doi:10.1089/10949310050191764CrossRefGoogle Scholar
  32. Finn, J. (1995). Computer-based self-help groups: A new resource to supplement support groups. Social Work with Groups, 18(1), 109–117. doi:10.1300/J009v18n01_11CrossRefGoogle Scholar
  33. Finn, J., & Lavitt, M. (1994). Computer-based self-help groups for sexual abuse survivors. Social Work with Groups, 17(1/2), 21–45. doi:10.1300/J009v17n01_03CrossRefGoogle Scholar
  34. Fischer, M. A. (2006, February). Reader’s Digest. Retrieved December 30, 2008, from http://www.rd.com/living-healthy/ choking-games-and-thrills-that-kill /article19581.html.
  35. Gavin, J., Rodham, K., & Poyer, H. (2008). The presentation of “pro-anorexia” in online group interactions. Qualitative Health Research, 18(3), 325–333. doi:10.1177/1049732307311640PubMedCrossRefGoogle Scholar
  36. Grace-Farfaglia, P., Dekkers, A., Sundararajan, B., Peters, L., & Park, S.-H. (2006). Multinational web uses and gratifications: measuring the social impact of online community participation across national boundaries. Electronic Commerce Research, 6 (1), 75–101. doi:10.1007/s10660-006-5989-6CrossRefGoogle Scholar
  37. Greenfield P., & Yan Z. (2006). Children, adolescents, and the internet: A new field of inquiry in developmental psychology. Developmental Psychology, 42(3), 391–394. doi:10.1037/0012-1649.42.3.391PubMedCrossRefGoogle Scholar
  38. Horrigan, J. (2001). Online communities: Networks that nurture long-distance relationships and local ties. Washington DC: Pew Internet & American Life Project. Retrieved February 8, 2008 from: http://www.pewInternet.org/PPF/r/47/report_display.asp.Google Scholar
  39. Howard, P., Rainie, L., & Jones, S. (2001). Days and nights on the internet: The impact of a diffusing technology. American Behavioral Scientist, 45(3), 383–404. doi:10.1177/0002764201045003003Google Scholar
  40. Hwang, K. O., Farheen, K., Johnson, C. W., Thomas, E. J., Barnes, A. S., & Bernstam, E. V. (2007). Quality of weight loss advice on Internet forums. American Journal of Medicine, 120, 604–609. doi:10.1016/j.amjmed.2007.04.017PubMedCrossRefGoogle Scholar
  41. Istepanian, R. S. H., Laxminarayan, S., & Pattichis, C. S. (2006). M-health: Emerging mobile health systems. New York: Springer.Google Scholar
  42. Katz, A. H. (1992). Self help: Concepts and applications. Philadelphia, PA: Charles Press.Google Scholar
  43. Kernsmith, P. D., & Kernsmith, R. M. (2008). A safe place for predators: Online treatment of recovering sex offenders. Journal of Technology in Human Services, 26 (2/4), 223–238. doi:10.1080/15228830802096598CrossRefGoogle Scholar
  44. Kraut, R., Patterson., M., Lundmark, V., Kiesler, S., Mukhopadhyay, T., & Scherlis, W. (1998). Internet paradox: A social technology that reduces social involvement and psychological well-being? American Psychologist, 53, 1017–1031. doi:10.1037/0003-066X.53.9.1017PubMedCrossRefGoogle Scholar
  45. Kummervold, P. E., Gammon, D., Bergvik, S., Johnsen, J. K., Hasvold, T., & Rosenvinge, J. H. (2002). Social support in a wired world. Use of online mental health forums in Norway. Nordic Journal of Psychiatry, 65, 56–59. doi:10.1080/08039480252803945Google Scholar
  46. Kurtz, L. F. (1997). Self-help and support groups: A handbook for practitioners. Thousand Oaks, CA: Sage.Google Scholar
  47. Lebow, J. (1998). Not just talk, maybe some risk: The therapeutic potentials and pitfalls of computer-mediated conversation. Journal of Marital and Family Therapy, 24, 203–206. doi:10.1111/j.1752-0606.1998.tb01076.xPubMedCrossRefGoogle Scholar
  48. Lieberman, M.A. (1976). Change induction in small groups. Annual Review of Psychology, 27, 217–250.PubMedCrossRefGoogle Scholar
  49. Loundy, D. (n.d.). Internet governance through self-help remedies. Retrieved December 21, 2008, from http://www.loundy.com/CPSR-Self-Help.html.
  50. Maloney-Krichmar, D., & Preece, J. (2002). The meaning of an online health community in the lives of its members: Roles, relationships and group dynamics social implications of information and communication technology. 2002 International Symposium on Technology and Society ISTAS’02, 20-27. Retrieved December 30, 2008, from http://www.ifsm.umbc.edu/ ∼preece/Papers/02_The_meaning_of_an_online_health_community.pdf
  51. Marvin, L. E. (1995). Spoof, spam, lurk and lag: The aesthetics of text-based virtual realities. Journal of Computer-Mediated Communication, 1(2). Retrieved December 30, 2008, from http://jcmc.indiana.edu/vol1/issue2/marvin.html
  52. McKenna, K.Y.A., & Seidman, G. (2005). You, me, and we: Interpersonal processes in online groups. In Y. A. Hamburger (Ed.), The social net: The social psychology of the Internet (pp. 191–217). New York: Oxford University Press.Google Scholar
  53. McKenna, K.Y.A., Green, A. S., & Gleason, M. E. J. (2002). Relationship formation on the Internet: What’s the big attraction? Journal of Social Issues, 58, 9–31. doi:10.1111/1540-4560.00246CrossRefGoogle Scholar
  54. Meier, A. (2004). Technology-mediated groups. In C. D. Garvin, L. M. Gutie’rrez, & M. J. Galinsky (Eds.), Handbook of social work with groups (pp. 479–503). New York: Guilford.Google Scholar
  55. Moody, E. (2001). Internet use and its relationship to loneliness. Cyberpsychology and Behavior, 4, 393–401. doi:10.1089/109493101300210303PubMedCrossRefGoogle Scholar
  56. Murguía, E., Tackett-Gibson, M., & Lessem, A. (2007). Real drugs in a virtual world: Drug discourse and community online. Lanham, MD: Lexington Books.Google Scholar
  57. Murphy, L., MacFadden, R., & Mitchell, D. (2008). Cybercounseling online: The development of a university-based training program for e-mail counseling. Journal of Technology in Human Services, 26 (2,3,4), 447–469. doi:10.1080/15228830802102081CrossRefGoogle Scholar
  58. Murray, C. D., & Fox, J. (2006). Do Internet self-harm discussion groups alleviate or exacerbate self-harming behaviour? Australian e-Journal for the Advancement of Mental Health, 5(3) 1–9. Retrieved December 30, 2008, from http://www.auseinet.com/ journal/vol5iss3/murray.pdf Google Scholar
  59. Nelson, J. A. (1995). The Internet, the virtual community and those with disabilities. Disability Quarterly, 15 (2), 15–20.Google Scholar
  60. O’Boyle, E. J. (2002). An ethical decision-making process for computing professionals. Ethics and Information Technology, 4(4), 267–277. doi:10.1023/A:1021320617495CrossRefGoogle Scholar
  61. Prior, T. I. (2004). Suicide methods from the Internet. American Journal of Psychiatry, 161, 1500–1501. doi:10.1176/appi.ajp.161.8.1500-aPubMedCrossRefGoogle Scholar
  62. Radin, P. (2006). “To me, it’s my life”: Medical communication, trust, and activism in cyberspace. Social Science and Medicine, 62, 591–601.PubMedCrossRefGoogle Scholar
  63. Rajagopal, S. (2004). Suicide pacts and the Internet. British Medical Journal, 329(7478), 1298–1299. revisited. Journal of Social Issues, 58, 49–74. doi:10.1136/bmj.329.7478.1298Google Scholar
  64. Ralston J. D, Carrell D, Reid R, Anderson M, Moran M, & Hereford J. (2007). Patient web services integrated with a shared medical record: Patient use and satisfaction. Journal of the American Medical Informatics Association, 14(6). doi:10.1197/jamia.M2302Google Scholar
  65. Riegelsberger, J., Sasse, M. A., & McCarthy, J. D. (2003). The researcher’s dilemma: Evaluating trust in computer-mediated communication. International Journal of Human Computer Studies, 58, 759–782. doi:10.1016/S1071-5819(03)00042-9CrossRefGoogle Scholar
  66. Segal, S. P., Silverman, C., & Temkin, T. (1993). Empowerment and self-help agency practice for people with mental disabilities. Social Work, 38(6), 705–712. Retrieved December 30, 2008, from http://eric.ed.gov/ ERICWebPortal/ recordDetail?accno=EJ482963 PubMedGoogle Scholar
  67. Stoppard, M. (2008, December 9). How safe are Internet health forums? – Dear Miriam – Mirror.co.uk. Retrieved December 23, 2008, from http://blogs.mirror.co.uk/ dear-miriam/2008/12/ how-safe-are-internet-health-f.html.
  68. Spears, R., Postmes, T., Lea, M., & Wolbert, A. (2002). When are net effects gross products? The power of influence and the influence of power in computer-mediated communication. Journal of Social Issues, 58, 91–107. doi:10.1111/1540-4560.00250CrossRefGoogle Scholar
  69. Southworth, C., Finn, J., Dawson, S., Fraser, C., & Tucker, S. (2007). Intimate partner violence, technology, and stalking. Violence Against Women, 13(8), 842–856. doi:10.1177/1077801207302045PubMedCrossRefGoogle Scholar
  70. Suler, J. R. (2004). The online disinhibition effect. CyberPsychology and Behavior, 7, 321–326. doi:10.1089/1094931041291295PubMedCrossRefGoogle Scholar
  71. Sullivan, C. F. (2003). Gendered cybersupport: A thematic analysis of two online cancer support groups. Journal of Health Psychology, 8, 83–103.PubMedCrossRefGoogle Scholar
  72. Sum, S., Mathews, M. R., Pourghasem, M., & Hughes, I. (2008). Internet technology and social capital: How the internet affects seniors’ social capital and wellbeing. Journal of Computer Mediated Communication [Electric Edition],14(1), 202–220. doi:10.1111/j.1083-6101.2008.01437.xCrossRefGoogle Scholar
  73. Tavani, H. T., & Grodzinsky, F. S. (2002). Cyberstalking, personal privacy, and moral responsibility. Ethics and Information Technology, 4(2), 123–132. doi:10.1023/A:1019927824326CrossRefGoogle Scholar
  74. Tichon, J. G., & Shapiro, M. (2003). The process of sharing social support in cyberspace. CyberPsychology and Behavior, 6, 161–170.PubMedCrossRefGoogle Scholar
  75. Tierney, S. (2006). The dangers and draw of online communication: Pro-Anorexia websites and their implications for users, practitioners, and researchers. Eating Disorders: The Journal of Treatment & Prevention, 14(3), 181–190. doi:10.1080/10640260600638865CrossRefGoogle Scholar
  76. Vallee, J. (1982). The network revolution: Confessions of a computer scientist. Berkeley, CA: And/Or Press.Google Scholar
  77. van Dam, H. A., van der Horst, F. G., Knoops, L., Ryckman, R. M., Crebolder Harry, F. J. M., & van den Borne Bart, H. W. (2005). Social support in diabetes: A systematic review of controlled intervention studies. Patient Education and Counseling, 59, 1–12.PubMedCrossRefGoogle Scholar
  78. Vasisht, D. (2003, April 11). E-medicine is just what the doctor didn’t order. Delhi Times-Cities-The Times of India. The Times of India. Retrieved December 23, 2008, from http://timesofindia. indiatimes.com/ articleshow/43007827.cms.
  79. Waldron, V., Lavitt, M., & Kelley, D. (2000). The nature and prevention of harm in technology mediated self-help settings: Three exemplars. Journal of Technology in Human Services, 17(1, 2, 3), 267–294. doi:10.1300/J017v17n02_09CrossRefGoogle Scholar
  80. Walther, J. (1997). Group and interpersonal effects in international computer-mediated communication. Human Communication Research, 23, 342–369. doi:10.1111/j.14682958.1997.tb00400.xCrossRefGoogle Scholar
  81. Weis, R., Stamm, K., Smith, C., Nilan, M., Clark, F., Weis, J., & Kennedy, K. (2003).Communities of care and caring: The case of MSWatch com. Journal of Health Psychology, 8, 135–148.PubMedCrossRefGoogle Scholar
  82. Woolley, D.R. (1994). DR. PLATO: The emergence of online community. Retrieved November 5, 2008 from http://thinkofit.com/plato/dwplato.htm.
  83. Worotynec, Z. S. (2000). The good, the bad and the ugly: Listserv as support. CyberPsychology and Behavior, 3, 797–810.CrossRefGoogle Scholar
  84. Wright, K. B., & Bell, S. B. (2003). Health-related support groups on the Internet: Linking empirical findings to social support and computer-mediated communication theory. Journal of Health Psychology, 8, 39–54. doi:10.1177/1359105303008001429PubMedCrossRefGoogle Scholar
  85. Yalom, I (1985). Theory and practice of group psychotherapy. New York: Basic Books.Google Scholar
  86. Young, K. S. (1998). Caught in the Net. New York: Wiley.Google Scholar
  87. Zhou, L., Burgoon, J. K., Zhang, D., & Nunamaker, J. F. (2004). Language dominance in interpersonal deception in computer-mediated communication. Computers in Human Behavior, 20(3), 381–402. doi:10.1016/S0747-5632(03)00051-7CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2010

Authors and Affiliations

  • J. Finn
    • 1
  • T. Steele
    • 2
  1. 1.Social Work ProgramUniversity of WashingtonTacomaUSA
  2. 2.MSW studentUniversity of WashingtonTacomaUSA

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