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Abstract

The involvement of users in mental health services is now a requirement of government policy (Box 17.1) but such ‘user involvement’ cannot simply be viewed as an ‘add-on’ to existing ways of working. It involves significant changes in attitudes and practice at all levels:

  • Individual: user participation at a direct care level in the planning and delivery of individual care, treatment and support.

  • Operational: user involvement in determining the practices and operation of individual teams, units and services.

  • Strategic: involvement of the recipients of services in strategic planning and the development of services.

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References

  • Avon Measure Working Group (1996) The Avon Mental Health Measure. A User Centred Approach to Assessing Need, London, MIND Publications.

    Google Scholar 

  • Barker, I. and Peck, E. (1996) User empowerment — a decade of experience, Mental Health review, 1(4), 5–13.

    Article  Google Scholar 

  • Bingley, W. (1990) An Introduction to Advocacy, London, Good Practices in Mental Health Information Pack.

    Google Scholar 

  • Bond, G.R., Drake, R.E. and Meuser, K.T. et al. (1997) ‘An update on supported employment for people with severe mental illness’, Psychiatric Services, 48, 335–46.

    Article  CAS  PubMed  Google Scholar 

  • Bowl, R. (1996) ‘Involving service users in mental health services: Social services departments and the NHS and Community Care Act 1990’, Journal of Mental Health, 5, 287–303.

    Article  Google Scholar 

  • Campbell, P. (1996) The history of the user movement, in T. Heller, J. Reynolds, R. Gomm, R. Muston and S. Pattison (eds), Mental Health Matters, London, Macmillan.

    Google Scholar 

  • Campbell, P. (1996b) ‘What we want from crisis services’, in J. Read and J. Reynolds (eds), Speaking Our Minds, Milton Keynes, Open University Press.

    Google Scholar 

  • Campbell, P. (1996c) ‘Challenging loss of power’, in J. Read and J. Reynolds (eds), Speaking Our Minds, Milton Keynes, Open University Press.

    Google Scholar 

  • Campbell, P. (1997) ‘Citizen Smith’, Nursing Times, 93, 31–2.

    CAS  PubMed  Google Scholar 

  • Chamberlin, J. (1997) On Our Own, New York, McGraw-Hill.

    Google Scholar 

  • Conlan, E. (1996) ‘Shaking hands with the devil’, in J. Read and J. Reynolds (eds), Speaking Our Minds, Milton Keynes, Open University Press.

    Google Scholar 

  • Conlan, E., Gell, C. and Graley, R. et al. (1994) User group Advocacy: A Code of Practice, London, Department of Health Mental Health Task Force.

    Google Scholar 

  • Crepaz-Keay, D. (1996) ‘Who do you represent?’, in J. Read and J. Reynolds (eds), Speaking Our Minds, Milton Keynes, Open University Press.

    Google Scholar 

  • David, A. (1990) ‘Insight and psychosis’, British Journal of Psychiatry, 156, 798–808.

    Article  CAS  PubMed  Google Scholar 

  • Department of Health (1998) Modernising Mental Health Services: Safe, Sound and Supportive, London, The Stationery Office.

    Google Scholar 

  • Department of Health (1999) National Service Framework for Mental Health, London, Department of Health.

    Google Scholar 

  • Department of Health (2000) Effective Care Co-ordination in Mental Health Services: Modernising the Care Programme Approach, London, Department of Health.

    Google Scholar 

  • East Yorkshire Monitoring Team (1997) Monitoring Our Services Ourselves: User-led Monitoring of Mental Health Services, Beverley, East Yorkshire Monitoring Team.

    Google Scholar 

  • Faulkner, A. and Layzell, S. (2000) Strategies for Living: A Report of User-Led Research into People’s Strategies for Living with Mental Distress, London, The Mental Health Foundation.

    Google Scholar 

  • Greenwood, E. (1957) ‘The Attributes of a Profession’, Social Work, 2, 45–55.

    Google Scholar 

  • Health Select Committee (1993) Report of the Inquiry Into Mental Illness Services, London, HMSO.

    Google Scholar 

  • Leader, A. (1995) Direct Power, Brighton, Pavilion Publishing.

    Google Scholar 

  • Leader, A. and Crosby, K. (1998) Power Tools. A Resource Pack for those Committed to the Development of Mental Health Advocacy into the Millennium, Brighton, Pavilion Publishing.

    Google Scholar 

  • Leete, E. (1988) The Role of The Consumer Movement and the Persons with Mental Illness; Presentation at the 12th Mary Switzer Memorial Seminar in Rehabilitation, Washington, DC, 15–16 June.

    Google Scholar 

  • Lewis, A. (1934) ‘The Psychopathology of Insight’, British Journal of Medical Psychology, 14, 332–48.

    Article  Google Scholar 

  • Lindow, V. (1994) Purchasing Mental Health Services: Self-help Alternatives, London, MIND Publications.

    Google Scholar 

  • Lindow, V. (1996) ‘What we want from community psychiatric nurses’, in J. Read and J. Reynolds (eds), Speaking Our Minds, Milton Keynes, Open University Press.

    Google Scholar 

  • Luckstead, A. and Coursey, R.D. (1995) ‘Consumer perceptions of pressure and force in psychiatric treatment’, Hospital and Community Psychiatry, 26, 146–52.

    Google Scholar 

  • NHS Executive Mental Health Task Force (1994) Building on Experience: A Training Pack for Mental Health Service Users Working as Trainers, Speakers and Workshop Facilitators, London, NHSE.

    Google Scholar 

  • National Schizophrenia Fellowship (in conjunction with Royal College of Psychiatrists Research Unit, Royal College of Nursing Research Institute and University of East Anglia Department of Social Work) (2000) CUES — Service User Version, London, National Schizophrenia Fellowship.

    Google Scholar 

  • Onyett, S.R., Heppleston, T. and Bushnell, D. (1994) ‘A national survey of community mental health teams’, Journal of Mental Health, 3, 175–94.

    Article  Google Scholar 

  • Perkins, R.E. (1996) ‘Seen but not heard: Can ‘user involvement’ become more than empty rhetoric?’, The Mental Health Review, 1, 16–20.

    Article  Google Scholar 

  • Perkins, R.E., Buckfield, R. and Choy, D. (1997) ‘Access to employment: A supported employment project to enable mental health service users to obtain jobs within mental health teams’, Journal of Mental Health, 6, 307–18.

    Article  Google Scholar 

  • Perkins, R.E. and Fisher, N.R. (1996) Beyond mere existence: The auditing of care plans, Journal of Mental Health, 5, 275–86.

    Article  Google Scholar 

  • Perkins, R.E. and Repper, J.M. (1998) Dilemmas in Community Mental Health Practice: Choice or Control. Oxford, Radliffe Medical Press.

    Google Scholar 

  • Perkins, R.E. (1998) ‘An act to follow?’, A Life in the Day, 2, 15–20.

    Article  Google Scholar 

  • Read, J. (1996) ‘What We Want From Mental Health Services’, in J. Read and J. Reynolds (eds), Speaking Our Minds, Milton Keynes, Open University Press.

    Chapter  Google Scholar 

  • Ridgeway, P. (1988) The Voice of Consumers in Mental Health Systems: A Call for Change, Burlington, VT, Center for Community Change Through Housing and Support.

    Google Scholar 

  • Rinaldi, M. (2000) personal communication concerning a survey conducted by Merton Mind.

    Google Scholar 

  • Rogers, A., Pilgrim, D. and Lacey, R. (1993) Experiencing Psychiatry: Users’ Views of Services, Basingstoke, Macmillan.

    Book  Google Scholar 

  • Rose, D. (1996) Living in the Community, London, Sainsbury Centre for Mental Health.

    Google Scholar 

  • Sainsbury Centre for Mental Health (1997) Pulling Together: The Future Roles and Training of Mental Health Staff, London: Sainsbury Centre for Mental Health.

    Google Scholar 

  • Sang, B. and O’Brien, J. (1984) Advocacy: The UK and American Experience, London, King’s Fund.

    Google Scholar 

  • Sayce, L. (2000) From Psychiatric Patient to Citizen: Overcoming Discrimination and Social Exclusion, London, Macmillan.

    Book  Google Scholar 

  • Showalter, E. (1985) The Female Malady: Women, Madness and English Culture 1830–1980, London, Virago.

    Google Scholar 

  • Tanzman, B. (1993) ‘An overview of surveys of mental health consumers’ preferences for housing and support services’, Hospital and Community Psychiatry, 44, 5.

    Google Scholar 

  • Torrey, E.F. (1986) ‘Finally, a cure for homelessness: but it takes some strong medicine’, Washington Monthly, 10, 95–7.

    Google Scholar 

  • Wilson Besio, S. (1987) The Role of Ex-Patients and Consumers in Human Resource Development for the 1990s, Burlington, VT, Center for Community Change Through Housing and Support.

    Google Scholar 

Download references

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© 2002 Neil Harris, Steve Williams, Tim Bradshaw

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Perkins, R. (2002). Involving Service Users. In: Harris, N., Williams, S., Bradshaw, T. (eds) Psychosocial Interventions for People with Schizophrenia. Palgrave, London. https://doi.org/10.1007/978-1-4039-3759-9_17

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