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Investigating the needs of and provisions for families caring for children with life-limiting incurable disorders

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Research Issues in Community Nursing

Part of the book series: Community Health Care Series ((CHCS))

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Abstract

Although death in childhood is rare, a small but significant number of families in the UK live with the day-to-day reality that their child will not reach adulthood. This has a profound effect upon these families, who require good professional support for their caring role (While, 1989). Many life-limiting incurable disorders make heavy demands upon families in all domains, including physical, emotional, social and financial areas. Thus family life may revolve around a constant daily routine of basic caring procedures punctuated by visits to secondary care centres.

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Authors
  1. Alison While
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Editor information

Editors and Affiliations

  1. Department of Nursing and Community Health, Glasgow Caledonian University, UK

    Jean McIntosh RGN, BSc(HonsSoc), PhD, FRCN (QNI Professor of Community Nursing Research) (QNI Professor of Community Nursing Research)

Copyright information

© 1999 Alison While

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While, A. (1999). Investigating the needs of and provisions for families caring for children with life-limiting incurable disorders. In: McIntosh, J. (eds) Research Issues in Community Nursing. Community Health Care Series. Palgrave, London. https://doi.org/10.1007/978-1-349-14850-9_9

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  • DOI: https://doi.org/10.1007/978-1-349-14850-9_9

  • Publisher Name: Palgrave, London

  • Print ISBN: 978-0-333-73504-6

  • Online ISBN: 978-1-349-14850-9

  • eBook Packages: MedicineMedicine (R0)

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