Abstract
Over the last 20 years or so there has been a growing realisation among professionals of the need to maintain accurate records of families with genetic disease. This idea is not new, in fact Joseph Adams (1756–1818) wrote in 1814:
That to lessen anxiety, as well as from a regard to the moral principle, family peculiarities, instead of being carefully concealed should be accurately traced and faithfully recorded, with a delicacy suited to the subject, and with a discrimination adopted to the only purpose for which such registers can be useful (Adams, 1814).
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References
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© 1991 The Galton Institute
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Emery, A.E.H. (1991). Genetic Registers: Problems Old and New. In: Roberts, D.F., Chester, R. (eds) Molecular Genetics in Medicine. Palgrave Macmillan, London. https://doi.org/10.1007/978-1-349-10874-9_12
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DOI: https://doi.org/10.1007/978-1-349-10874-9_12
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