Coercion, Control, and Consequence in Genetic Testing
Recent discoveries about the genetic basis of disease and well-being have raised important public policy issues involving insurance markets. These concerns involve coercion, control, and consequence. In the insurance context, coercion refers to the possibility that individuals will be forced to undergo genetic tests as a precondition for obtaining insurance. When testing occurs, control refers to questions about who will have access to genetic test results and under what conditions. Finally, consequence takes into account the various ways in which genetic test information can be used; paramount here is a concern about possible discrimination in access to insurance.
KeywordsOvarian Cancer Genetic Testing Public Opinion Life Insurance Cancer History
Unable to display preview. Download preview PDF.
- Andrews, Lori (1997), ‘Body Science’, American Bar Association Journal, Vol. 83, April, pp. 44–9.Google Scholar
- ‘Clinton Fighting Bias Based on Genetic Histories’ (1997), San Francisco Chronicle, July 15, p.A3.Google Scholar
- Elmer-Dewitt, Philip (1994), ‘The Genetic Revolution,’ Time, Vol. 143, January 17, pp. 46–54.Google Scholar
- ‘Europe Ambivalent on Biotechnology’ (1997), Nature, Vol. 387, June 26, pp. 845–7.Google Scholar
- Herrmann, Sterngold, and Warland (in press), ‘Comparing Alternative Question Forms for Assessing Consumer Concerns’, Journal of Consumer Affairs, Vol. 32,No. 1, Summer.Google Scholar
- Index to International Public Opinion, 1995–96 (1997), Greenwood Press: Westport, CT.Google Scholar
- Index to International Public Opinion, 1993–94 (1995), Greenwood Press: Westport, CT.Google Scholar
- Lapham, E. Virginia, Chahira Kozma, and Joan O. Weiss (1996), ‘Genetic Discrimination: Perspectives of Consumers’, Science, Vol. 274, October 25, pp. 621–5.Google Scholar
- Louis Harris and Associates (1997), 1992 Genetic Testing Survey, Archival Study Number S912074, Institute for Research in Social Science: Chapel Hill, NC.Google Scholar
- Schmitt, Frederick (1997), ‘Insurers Oppose Arizona Genetic Test Law’, National Underwriter: Life & Health/Financial Services Edition, May 19, pp. 3, 57.Google Scholar