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Users and Uses of the Biopolitics of Consent: A Study of DNA Banks

  • Pascal Ducournau
  • Anne Cambon-Thomsen

Abstract

In this chapter we intend to examine from a sociological perspective the view of a number of participants in a biobank project on the informed consent procedure they were asked to go through. Having carried out observations, conducted interviews and collected questionnaires as part of an empirical survey, we have concluded that a number of participants feel somewhat suspicious where the procedure is concerned. At least they express caution on its ability to actually serve their autonomy and freedom of choice. As they attempt to detect its potentially perverse effects in terms of power asymmetry and the consequences of diverse responsibilities being devolved to them, their perception of it is far from idealized even if they do not contest it radically. This circumambulatory tour of the users’ point of view, which will prove useful to improve communication with the general public, can also be of help in understanding how the contemporary evolutions of biopolitics are perceived.

Keywords

Explanatory Note Informed Consent Procedure Power Asymmetry Contemporary Evolution Perverse Effect 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

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Copyright information

© Springer Science + Business Media, LLC 2009

Authors and Affiliations

  • Pascal Ducournau
    • 1
  • Anne Cambon-Thomsen
  1. 1.CUFR JF Champollion - Albi/Unit 558INSERM - National Institute of Health and Medical ResearchToulouseFrance

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