Building Disability Research Capacity in Low-Income Contexts: Possibilities and Challenges



In this chapter I focus on the impact of these larger issues on what at first blush may seem a straightforward task – building research capacity for disabled people in lower-income contexts, drawing on my own work in this field in southern Africa. I begin by locating the politics of disability within broader debates in identity politics and the politics of exclusion. I then examine the way in which criteria set for disability research may be influenced by disability politics in ways that are not always helpful. I then discuss an example of research capacity building as a way of building a case for a broader discussion of knowledge management issues in disability work in lower-income contexts. The brief conclusion makes some recommendations for further work.


Knowledge Management Disable People Research Capacity Social Model Blind Participant 
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  1. Albert, B (2004). ‘Is disability really on the development agenda? A review of official disability policies of the major governmental and international development agencies’, [accessed 13th January 2008]
  2. Bolognesi, N, & Swartz, L (2008). ‘The media management of HIV/AIDS in Sub-Saharan Africa with particular reference to South Africa: A window to developing communication strategies for the epidemic in the region’, in: Mansell, R.E. (ed.), Reports prepared for UNESCO for the International Association of Media and Communication Research (IAMCR) 50th Anniversary Conference 2007. Media, Communication and Information: Celebrating 50 years of theories and practice (pp. 3–33), Paris: UNESCOGoogle Scholar
  3. Butchart, A (1998). The Anatomy of Power: European Constructions of the African Body, London: Zed booksGoogle Scholar
  4. Chalklen, S, Swartz, L, & Watermeyer, B (2006). ‘Establishing the Secretariat for the African Decade of Persons with Disabilities’, in Watermeyer, B, Swartz, L, Lorenzo, T, Schneider, M, & Priestley, M (eds.), Disability and Social Change. A South African Agenda (pp. 93–98), Cape Town: HSRC PressGoogle Scholar
  5. Chigwedere, P, Seage, GR, Gruskin, S, Lee, T, & Essex, M (2008). ‘Estimating the Lost Benefits of Antiretroviral Drug Use in South Africa’, JAIDS, Journal of Acquired Immune Deficiency Syndromes, 49(4): 410–415CrossRefGoogle Scholar
  6. Denzin, N, & Lincoln, Y (eds.) (2007). Collecting and Interpreting Qualitative Materials (3rd ed.), Engelwood Cliffs, NJ: SageGoogle Scholar
  7. DFID (2008). ‘Research strategy 2008–2013: Working Paper Series: Capacity Building’,
  8. Felstiner, M (2007). Out of Joint: A Private and Public Story of Arthritis, New York: Bison BooksGoogle Scholar
  9. Lifton, RJ (2000). The Nazi Doctors: Medical Killing and the Psychology of Genocide, New York: Basic BooksGoogle Scholar
  10. Lorde, A (1984). Sister Outsider: Essays and Speeches, Trumansburg, New York: Crossing Press, p.110Google Scholar
  11. Lorenzo, T (2003). ‘No African renaissance without disabled women: a communal approach to human development in Cape Town South Africa’, Disability & Society, 18(6), 759–778CrossRefGoogle Scholar
  12. Mairs, N (1997). Waist-High in the World: A Life Among the Nondisabled, Boston, MA: Beacon PressGoogle Scholar
  13. Mbembe, A (2001). On the Postcolony. Berkeley, CA: University of California PressGoogle Scholar
  14. Nattrass, N (2007). Mortal Combat: AIDS Denialism and the Struggle for Antiretrovirals in South Africa. Pietermaritzburg, South Africa: University of KwaZulu Natal PressGoogle Scholar
  15. Oliver, M (1995). Understanding Disability: From Theory to Practice, London: Palgrave MacmillanGoogle Scholar
  16. Rohleder, P, Braathen, SH, Swartz, L, & Eide, AH (2009). ‘HIV/AIDS and disability in southern Africa: A Review of relevant literature’, Disability & Rehabilitation, 31, 51–59CrossRefGoogle Scholar
  17. Said, E (1979). Orientalism, New York: VintageGoogle Scholar
  18. Shakespeare, T (2006). Disability Rights and Wrongs, London: RoutledgeGoogle Scholar
  19. Spivak, GC (2006). In Other Worlds: Essays in Cultural Politics, New York: RoutledgeGoogle Scholar
  20. Stanovich, KE (2007). How to Think Straight About Psychology (8th ed.), New York: Addison-WesleyGoogle Scholar
  21. Swartz, L (1998). Culture and Mental Health: A Southern African View, Cape Town: Oxford University PressGoogle Scholar
  22. Turmusani, M (2003). Disabled People and Economic Needs in the Developing World: A Political Perspective from Jordan, London: Ashgate PublishingGoogle Scholar

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© Springer Science+Business Media, LLC 2009

Authors and Affiliations

  1. 1.Department of PsychologyStellenbosch UniversityStellenboschSouth Africa

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