Listening to the Voices of Disability: Experiences of Caring for Children with Cerebral Palsy in a Rural South African Setting

  • Joanne Barratt
  • Claire Penn


In this chapter we will foreground the narratives of the participants of this research in an attempt to demonstrate the relationship between these variables and to inform intervention and training models. While the focus of our study was on the condition of cerebral palsy, it became clear that the voices of this study seemed to echo those of many other individuals and communities living with the challenge of disability and highlights the relationship between disability and contextual aspects such as poverty and social exclusion.


Cerebral Palsy Disable Person African National Congress Mpumalanga Province Disability Grant 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.



We pay tribute to the informants in this study whose qualities of resilience and endurance in the context of profound marginalization will hopefully influence future policy and practice for all those living with disability in South Africa.

The authors are grateful to Dr L Vivian, Dept of Anthropology, University of Cape Town for valuable comments on an earlier version of this manuscript.


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Copyright information

© Springer Science+Business Media, LLC 2009

Authors and Affiliations

  • Joanne Barratt
    • 1
  • Claire Penn
    • 1
  1. 1.Speech Therapy DepartmentUniversity of the WitwatersrandJohannesburgSouth Africa

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