Advertisement

Listening to the Voices of Disability: Experiences of Caring for Children with Cerebral Palsy in a Rural South African Setting

  • Joanne Barratt
  • Claire Penn
Chapter

Abstract

In this chapter we will foreground the narratives of the participants of this research in an attempt to demonstrate the relationship between these variables and to inform intervention and training models. While the focus of our study was on the condition of cerebral palsy, it became clear that the voices of this study seemed to echo those of many other individuals and communities living with the challenge of disability and highlights the relationship between disability and contextual aspects such as poverty and social exclusion.

Keywords

Cerebral Palsy Disable Person African National Congress Mpumalanga Province Disability Grant 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

Acknowledgements

We pay tribute to the informants in this study whose qualities of resilience and endurance in the context of profound marginalization will hopefully influence future policy and practice for all those living with disability in South Africa.

The authors are grateful to Dr L Vivian, Dept of Anthropology, University of Cape Town for valuable comments on an earlier version of this manuscript.

References

  1. Anderson, G, & Phohole, M (2003). ‘Situational Analysis of Children Living in the Molanantsi Area of the Northern Province: Childhood Disability Research Unit: University of Pretoria’, (Unpublished document)Google Scholar
  2. Ashworth, A (2005). ‘Muthi, medicine and witchcraft: Regulating African science in post-apartheid South Africa’, Social Dynamics. 31(2):211–242CrossRefGoogle Scholar
  3. Bhorat, H, Poswell, L, & Naidoo, P (2006). Dimensions of poverty in post-apartheid South Africa: 1996–2001. Available online at: http://www.commerce.uct.ac.za/poverty_status_report [Accessed 23 February 2007]
  4. Cancian, F, & Oliker, J (1998). Caring and Gender. Alla Mira Press: Walnut Creek, CAGoogle Scholar
  5. Christianson, A, Zwane, M, Manga, P, Rosen, E, Venter, A, Downs, D, & Kromber, J (2002). ‘Children with intellectual disability in rural South Africa: Prevalence and associated disability’, Journal of Intellectual Disability Research. 46(2):179–186PubMedCrossRefGoogle Scholar
  6. Couper, J (2002). ‘Prevalence of childhood disability in rural KwaZulu Natal’, South African Medical Journal. 92:549–552PubMedGoogle Scholar
  7. Crawford, R (1994). ‘The boundaries of the self and the unhealthy other: Reflections of health, culture and AIDS’, Journal of Social Science and Medicine. 38(10):1347–1365CrossRefGoogle Scholar
  8. Goldstein, S, Ntuli, A, & Coulson, N (1998). Promoting health in South Africa. Heineman Higher and Further Education: JohannesburgGoogle Scholar
  9. Hammond-Tooke, D (1970). ‘Urbanization and the meaning of misfortune’, Africa. 40(1):25–38CrossRefGoogle Scholar
  10. Hutcherson, P (1991). ‘Community based rehabilitation in the Diocese of Eldoret, Kenya’ (Anglican Church of Kenya), http://www.kenyamission.org/kehidrehab.htm [Accessed 18th November 2005]
  11. Kuper, H (1963). The Swazi: A South African Kingdom, Holt, Rinehart, and Winston: New York, NYGoogle Scholar
  12. Levin, K (2005). ‘I am what I am because of who we all are: International perspectives on rehabilitation: South Africa’, Paediatric Rehabilitation. 9(3):285–292Google Scholar
  13. Maverick, B (1966). The Swazi: An Ethnographic Account of the Natives of the Swaziland Protectorate. Frank Cass/Cambridge University Press:London/CambridgeGoogle Scholar
  14. Meyer, C, & Moagi, S (2000). ‘Determining priority needs of mothers with disabled children in Winterveldt’, South African Journal of Occupational Therapy. 30(2):7–11Google Scholar
  15. Mweshi, M, & Mpofu, R (2001). ‘The perceptions of parents and caregivers on the causes of disabilities in children with cerebral palsy: A qualitative investigation’, South African Journal of Physiotherapy. 57(2):28–31Google Scholar
  16. Ngwisha, J (2003). ‘The concept of poverty: It’s analysis and application to Swaziland’, in Kanduza, A, & DuPont-Mkhonza, S (eds), Poverty in Swaziland: Historical and Contemporary Forms. (pp.8–34) OSSREA Swaziland ChapterGoogle Scholar
  17. Nkomazi Spatial Development Framework (2003). http://www.ledc.co.za/docs/Nkomazi local municipality/spatial development framework [Accessed 14th April 2005]
  18. Nkomazi Integrated Development Plan (2006–2007). Available from: http://www.nkomazimun.co.za/idp.html [Accessed 6th August 2008]
  19. Nutbeam, D (2000). ‘Health literacy as a public health goal: A challenge for contemporary health education and communication strategies into the 21st century’, Health Promotion International. 15:259–267CrossRefGoogle Scholar
  20. Penn, C (2000). ‘Cultural narratives: Bridging the gap educating speech-language pathologists to work in multicultural populations’, The South African Journal of Communication Disorders. 47:71–78Google Scholar
  21. Pfeiffer, J (2003). ‘International NGO’s and primary healthcare in Mozambique: The need for a new collaborative model’, Journal of Social Science and Medicine. 56:725–738CrossRefGoogle Scholar
  22. Potterton, J (1996). ‘Cerebral palsy in Giyani’. South African Journal of Physiotherapy. 52(3):66–68Google Scholar
  23. Rehle, T, & Shisana, O (2003). ‘Epidemiological and demographic HIV/AIDS projections: South Africa’, South African Journal of AIDS Research. 2(1):1–8CrossRefGoogle Scholar
  24. Scheper-Hughes, N (1990). ‘Three propositions for a critically applied medical anthropology’, Social Science and Medicine. 30(2):189–197PubMedCrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2009

Authors and Affiliations

  • Joanne Barratt
    • 1
  • Claire Penn
    • 1
  1. 1.Speech Therapy DepartmentUniversity of the WitwatersrandJohannesburgSouth Africa

Personalised recommendations