Health-Related Quality of Life Instruments for Adolescents with Chronic Diseases

  • Alexandra L. Quittner
  • Ivette Cruz
  • Avani C. Modi
  • Kristen K. Marciel
Chapter

Over the past two decades, tremendous progress has been made in defining and measuring health-related quality of life (HRQOL) and in recognizing its importance as a health outcome (Palermo et al., 2008; Quittner, Davis, & Modi, 2003). More than 50 years ago, the World Health Organization proposed the first definition of HRQOL as “a state of complete physical, mental, and social well-being, and not merely the absence of disease or infirmity” (World Health Organization [WHO], 1947, p. 29). A consensus definition of HRQOL has now emerged, with agreement that it is multidimensional and includes four core domains: (1) disease state and physical symptoms, (2) functional status (e.g., performing daily activities), (3) psychological and emotional functioning, and (4) social functioning (Hays, 2005; Rothman et al., 2007).

Keywords

Internal Consistency Cystic Fibrosis Convergent Validity Good Internal Consistency Minimal Clinically Important Difference 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

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Copyright information

© Springer Science+Business Media, LLC 2009

Authors and Affiliations

  • Alexandra L. Quittner
    • 1
  • Ivette Cruz
    • 1
  • Avani C. Modi
    • 2
  • Kristen K. Marciel
  1. 1.Department of Psychology & PediatricsUniversity of MiamiMiamiUSA
  2. 2.Division of Behavioral Medicine and Clinical PsychologyCincinnati Children’s HospitalCincinnatiUSA

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