Coping and Adjustment of Children with Neurological Disorder

  • Timothy B. Whelan
  • Marie L. Walker

The opportunity to test the limits of one's clinical acumen is clearly apparent in the field of clinical child neuropsychology.


Neurological Disorder Cerebral Palsy Chronic Illness Duchenne Muscular Dystrophy Coping Style 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


  1. Abramson, L. Y., Seligman, M. E. P., & Teasdale, J. D. (1978). Learned helplessness in humans: Critique and reformulation. Journal of Abnormal Psychology, 87, 49-74.PubMedGoogle Scholar
  2. Adams, C. D., Streisand, R. M., Zawacki, T., & Joseph, K. E. (2002). Living with a chronic illness: A measure of social functioning for children and adolescents. Journal of Pediatric Psychology, 27, 593-605.PubMedGoogle Scholar
  3. Allan, J., Townley, R., & Phelen, P. (1974). Family response to cystic fibrosis. Australian Pediatrics Journal, 10, 136-146.Google Scholar
  4. Bachanas, P. J., Kullgren, K. A., Schwarts, K. S., Lanier, B., McDaniel, J. S., Smith, J., et al. (2001). Predictors of psychological adjustment in school-age children infected with HIV. Journal of Pediatric Psychology, 26, 343-352.PubMedGoogle Scholar
  5. Bailey, D. B., & Simeonsson, R. J. (1984). Critical issues underlying research and intervention with families of young handicapped children. Journal of the Division for Early Childhood, 8, 38-48.Google Scholar
  6. Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84, 191-215.PubMedGoogle Scholar
  7. Battle, C. U. (1984). Disruptions in the socialization of a young, severely handicapped child. In R. P. Marinelli & A. E. Del-Orto (Eds.), The psychological and social impact of physical disability. Berlin: Springer.Google Scholar
  8. Bernstein, J. H., & Waber, D. P. (1990). Developmental neuropsychological assessment: In A. A. Boulton, G. B. Baker, & M. Hiscock (Eds.), Neuromethods: Vol. 17, Neuropsychology (pp. 311-371). Clifton, NJ: Humana Press.Google Scholar
  9. Bibace, R., & Walsh, M. E. (1979). Developmental stages in children's conceptions of illness. In G. C. Stone, F. Cohen, & N. E. Adler (Eds.), Health psychology (pp. 285-301). San Francisco: Jossey-Bass.Google Scholar
  10. Blacher, J. (1984). Sequential stages of parental adjustment to the birth of a child with handicaps: Fact or artifact? Mental Retardation, 22, 359-371.Google Scholar
  11. Blumberg, S. H., & Izard, C. E. (1985). Affective and cognitive characteristics of depression in 10 and 11 year old children. Journal of Personality and Social Psychology, 49, 194-202.PubMedGoogle Scholar
  12. Boekaerts, M. & Roder, I. (1999). Stress, coping, and adjustment in children with a chronic disease: A review of the literature. Disability and Rehabilitation, 21, 311-337.PubMedGoogle Scholar
  13. Boll, T. (1985). Developing issues in clinical neuropsychology. Journal of Clinical and Experimental Neuropsychology, 7, 473-485.PubMedGoogle Scholar
  14. Boone, S. E., Roessler, R. T., & Cooper, P. G. (1978). Hope and manifest anxiety: Motivational dynamics of acceptance of disability. Journal of Counseling Psychology, 25, 551-556.Google Scholar
  15. Brackney, B. E., & Westman, A. S. (1992). Relationships among hope, psychosocial development, and locus of control. Psychological Reports, 70, 864-867.PubMedGoogle Scholar
  16. Brewster, A. B. (1982). Chronically ill hospitalized children's concepts of their illness. Pediatrics, 69, 355-362.PubMedGoogle Scholar
  17. Brodie, B. (1974). View of healthy children toward illness. American Journal of Public Health, 64, 1156-1159.PubMedGoogle Scholar
  18. Brody, H. (1981). Hope. Journal of the American Medical Association, 246, 1411-1412.PubMedGoogle Scholar
  19. Bronheim, S. M., & Jacobstein, D. M. (1984). Psychosocial assessment in chronic and fatal illness. In P. R. Magrab (Ed.), Psychological and behavioral assessment: Impact on pediatric care. New York: Plenum Press.Google Scholar
  20. Butkowsky, I. S., & Willows, D. M. (1980). Cognitive-motivational characteristics of children varying in reading ability: Evidence for learned helplessness in poor readers. Journal of Educational Psychology, 72, 408-422.PubMedGoogle Scholar
  21. Cadman, D., Boyle, M. H., Szatmari, P., & Offord, D. R. (1987). Chronic illness, disability, and mental and social well-being: Findings of the Ontario Child Health Study. Pediatrics, 79, 805-813.PubMedGoogle Scholar
  22. Campbell, J. D. (1975) Illness is a point of view. The development of children's concepts of illness. Child Development, 46, 92-100.Google Scholar
  23. Carandang, M. L. A., Folkins, C. H., Hines, P. A., & Steward, M. S. (1979). The role of cognitive level and sibling illness in children's conceptualizations of illness. American Journal of Orthopsychiatry, 49, 474-481.PubMedGoogle Scholar
  24. Chan, K. B. (1977). Individual differences in reactions to stress and their personality and situational determinants: Some implications for community mental health. Social Science and Medicine, 11, 89-103.Google Scholar
  25. Christ, A. E. (1978). Therapy of the child with true brain damage. American Journal of Orthopsychiatry, 48, 505-515.PubMedGoogle Scholar
  26. Curry, S. L. & Russ, S. W. (1985). Identifying coping strategies in children. Journal of Clinical Child Psychology, 14, 61-69.Google Scholar
  27. Diener, C. I., & Dweck, C. S. (1978). An analysis of learned helplessness: Effects of aversive stimulation on subsequent performance. Journal of Experimental Psychology: Human Perception and Performance, 1, 411-417.Google Scholar
  28. Drotar, D. (1981). Psychological perspectives in chronic childhood illness. Journal of Pediatric Psychology, 6, 211-228.PubMedGoogle Scholar
  29. Drotar, D. (2006). Theoretical models and frameworks for psychological intervention. In D. Drotar (Ed.), Psychological interventions in childhood chronic illness. Washington, DC: American Psychological Association.Google Scholar
  30. Drotar, D., & Bush, M. (1985). Mental health issues and services. In N. Hobbs & J. M. Perrin (Eds.), Issues in the care of children with chronic illness (pp. 514-550). San Francisco: Jossey-Bass.Google Scholar
  31. Drotar, D., Baskiewicz, A., Irvin, N., Kennell, J., & Klaus, M. (1975). The adaptation of parents to the birth of an infant with a congenital malformation: A hypothetical model. Pediatrics, 56, 710-717PubMedGoogle Scholar
  32. Drotar, D., Crawford, P., & Bush, M. (1984). The family context of chronic childhood illness: Implications for psychological intervention. In M. Eisenberg (Ed.), Chronic illness and disability through the life span: Effects on self and family. Berlin: Springer.Google Scholar
  33. Dubowitz, V. (1977). Mental retardation in Duchenne muscular dystrophy. In L. P. Rowland (Ed.), Pathogenesis of human muscular dystrophies. Amsterdam: Excerpta Medica.Google Scholar
  34. Dubree, M., & Voge'pohl, R. (1980). When hope dies—so might the patient. American Journal of Nursing, 80, 2046-2049.PubMedGoogle Scholar
  35. Dweck, C. S. (1975). The role of expectations and attributions in the alleviation of learned helplessness. Journal of Personality and Social Psychology, 31, 674-685.Google Scholar
  36. Edelstein, B. A., & Couture, E. T. (Eds.), (1984). Behavioral assessment and rehabilitation of the traumatically braindamaged. New York: Plenum Press.Google Scholar
  37. Engle, G. (1977). The clinical application of the biopsychosocial model. American Journal of Psychiatry, 137, 535-544.Google Scholar
  38. Engle, G. (1980). The need for a new medical model: The challenge for biomedicine. Science, 196, 129-136.Google Scholar
  39. Erickson, R. C., Post, R. D., & Paige, A. B. (1975). Hope as a psychiatric variable. Journal of Clinical Psychology, 31, 324-330.PubMedGoogle Scholar
  40. Folkman, S., & Lazarus, R. S. (1980). An analysis of coping in a middle-aged community sample. Journal of Health and Social Behavior, 21, 219-239.PubMedGoogle Scholar
  41. Fowler, J. W., & Peterson, P. L. (1981). Increasing reading persistence and altering attributional style of learned helpless children. Journal of Educational Psychology, 73, 251-260.PubMedGoogle Scholar
  42. Frank, J. (1968). The role of hope in psychotherapy. International Journal of Psychiatry, 5, 383-395.PubMedGoogle Scholar
  43. Frtiz, G. K. & McQuaid, E. L. (2000). Chronic medical conditions: Impact on development. In A. J. Sameroff, M. Lewis, & S. M. Miller (Eds.), Handbook of developmental psychopathology (2 nd ed.). Dordrecht, Netherlands: Kluwer Academic Publishers.Google Scholar
  44. Garrison, W. T., & McQuiston, S. (1989). Chronic illness during childhood and adolescence: Psychological aspects. Newbury Park, CA: Sage.Google Scholar
  45. Geist, R. A. (1979). Onset of chronic illness in children and adolescents: Psychotherapeutic and consultative intervention. American Journal of Orthopsychiatry, 49, 4-23.PubMedGoogle Scholar
  46. Gill, A. (2005). Repressing distress in childhood: A defense against health-related stress. Child Psychiatry and Human Development, 36, 27-52.Google Scholar
  47. Gochman, D. S. (1985). Family determinants of children's concepts of health and illness. In D. Turk & R. Kerns (Eds.), Health, illness, and families. New York: Wiley.Google Scholar
  48. Goldstein, K. (1939). The organism. New York: American Book Co.Google Scholar
  49. Goldstein, K. (1940). Human nature in the light of psychopathology. Cambridge, MA: Harvard University Press.Google Scholar
  50. Goldstein, K. (1952). The effect of brain damage on personality. Psychiatry, 15, 245-260.PubMedGoogle Scholar
  51. Gottschalk, L. A., Fronczek, J., & Buchsbaum, M. S. (1993). The cerebral neurobiology of hope and hopelessness. Psychiatry: Interpersonal and Biological Processes, 56, 270-282.Google Scholar
  52. Green, M. R. (1977). Anticipation, hope, and despair. Journal of the American Academy of Psychoanalysis, 5, 215-232.PubMedGoogle Scholar
  53. Guite, J., Lobato, D., Kao, B., & Plante, W. (2004). Discordance between sibling and parent reports of the impact of chronic illness and disability on siblings. Children’s Health Care, 33, 77-92.Google Scholar
  54. Hampel, P., Rudolph, H., Stachow, R., Lab-Lentzsch, A., & Petermann, R. (2005). Coping among children and adolescents with chronic illness. Anxiety, Stress, and Coping, 18, 145-155.Google Scholar
  55. Harper, D. C. (1991). Paradigms for investigating rehabilitation and adaptation to childhood disability and chronic illness. Journal of Pediatric Psychology, 16, 533-542.PubMedGoogle Scholar
  56. Harter, S. (1978). Effectance motivation reconsidered: Toward a developmental model. Human Development, 1, 34-64.Google Scholar
  57. Harter, S. (1979). Perceived competence scale for children. manual. Boulder, CO: University of Denver.Google Scholar
  58. Harter, S. (1982). The Perceived Competence Scale for Children. Child Development, 53, 87-97.Google Scholar
  59. Harter, S. (1985). Processes underlying the construction, maintenance, and enhancement of the self-concept in children. In J. Suls & A. Greenwald (Eds.), Psychological perspectives on the self (Vol. 3). Hillsdale, NJ: Erlbaum.Google Scholar
  60. Heinemann, A., Geist, C., & Magiera, R. (1983). The role of hope in spinal cord injury rehabilitation. Paper presented at the 91st annual conference, American Psychological Association, Anaheim, CA.Google Scholar
  61. Hertzig, M. E. (1983). Temperament and neurological status. In M. Rutter (Ed.), Developmental neuropsychiatry (pp. 164-180). New York: Guilford Press.Google Scholar
  62. Hiroto, D. S., & Seligman, M. E. P. (1975). Generality of learned helplessness in man. Journal of Personality and Social Psychology, 31, 311-327.Google Scholar
  63. Hobbs, N., Perrin, J. M., & Ireys, H. T. (1985). Chronically ill children and their families. San Francisco: Jossey-Bass.Google Scholar
  64. Isaacs, J., & McElroy, M. R. (1980). Psychosocial aspects of chronic illness in children. Journal of School Health, 50, 318-321.PubMedGoogle Scholar
  65. Janoff-Bulman, R., & Frieze, I. H. (1983). A theoretical perspective for understanding reactions to victimization. Journal of Social Issues, 39, 1-17.Google Scholar
  66. Janoff-Bulman, R., & Wortman, C. B. (1977). Attributions of blame and coping in the “real world”: Severe accident victims react to their lot. Journal of Personality and Social Psychology, 35, 351-363.Google Scholar
  67. Karagan, N. J. (1979). Intellectual functioning in Duchenne muscular dystrophy. Psychological Bulletin, 86, 250-259.PubMedGoogle Scholar
  68. Kaslow, N. J., Rehm, L. P., & Siegel, A. W. (1984). Social- cognitive correlates of depression in children. Journal of Abnormal Child psychology, 12, 605-620.PubMedGoogle Scholar
  69. Kazak, A. E. (1989). Families of chronically ill children: A systems and socio-ecological model of adaptation and challenge. Journal of Consulting and Clinical Psychology, 57, 25-30.PubMedGoogle Scholar
  70. Kellerman, J., Zeltzer, L., Ellenberg, L., Dash, J., & Rigler, D. (1980). Psychological effects of illness in adolescence. Journal of Pediatrics, 97, 126-131.PubMedGoogle Scholar
  71. Kerns, R., & Curley, A. (1985). A biopsychosocial approach to illness and the family: Neurological diseases across the life span. In D. Turk & R. Kerns (Eds.), Health, illness, and families. New York: Wiley.Google Scholar
  72. Kerns, R., & Turk, D. (1985). Behavioral medicine and the family: Historical perspectives and future directions. In D. Turk & R. Kerns (Eds.), Health, illness, and families. New York: Wiley.Google Scholar
  73. Kliewer, W. (1997). Children’s coping with chronic illness. In S. A. Wolchik, & I. N. Sandler (Eds.), Handbook of children’s coping: Linking theory and intervention. NY: Plenum.Google Scholar
  74. Knights, R. M., Hinton, G., & Drader, D. (1973). Changes in intellectual ability with Duchenne muscular dystrophy. Research Bulletin 8, Department of Psychology, Carleton University, Ottawa, Canada.Google Scholar
  75. Kopelman, L. (1985). Paternalism and autonomy in the care of chronically ill children. In N. Hobbs & J. M. Perrin (Eds.), Issues in the care of children with chronic illness (pp. 61-86). San Francisco: Jossey-Bass.Google Scholar
  76. Kroeber, T. C. (1964). The coping functions of ego mechanisms. In R. W. White (Ed.), The study of lives. New York: Atherton.Google Scholar
  77. Lavigne, J., & Ryan, M. (1979). Psychological adjustment of siblings of children with chronic illness. Pediatrics, 63, 616-627.PubMedGoogle Scholar
  78. Lazarus, R. S. (1983). The costs and benefits of denial. In S. Breznetz (Ed.), Denial of stress. New York: International Universities Press.Google Scholar
  79. Leventhal, H., Leventhal, E., & Van Nguyen, T. (1985). Reactions of families to illness: Therapeutic models and perspectives. In D. Turk & R. Kerns (Eds.), Health, illness, and families. New York: Wiley.Google Scholar
  80. Levine, M. D. (1990). Keeping a head in school. Cambridge, MA: Educators Publishing Service.Google Scholar
  81. Levine, M. D. (1993). All kinds of minds. Cambridge, MA: Educators Publishing Service.Google Scholar
  82. Lillis, P. P., & Prophit, P. (1991). Keeping hope alive. Nursing, 21, 65-67.PubMedGoogle Scholar
  83. Lindemann, J. E., & Boyd, R. D. (1981). Myelomenigocele. In J. E. Lindemann (Ed.), Psychological and behavioral aspects of physical disability. New York: Plenum Press.Google Scholar
  84. Lindemann, J. E., & Stranger, M. E. (1981). Progressive muscle disorders. In J. E. Lindemann (Ed.), Psychological and behavioral aspects of physical disability. New York: Plenum Press.Google Scholar
  85. Linder, T. W., & Chitwood, D. G. (1984). The needs of fathers of young handicapped children. Journal of the Division of Early Childhood, 9, 133-139.Google Scholar
  86. Lineberger, H. P., Hernandez, J. T., & Brantley, H. T. (1984). Self-concept and locus of control in hemophiliacs. International Journal of Psychiatry in Medicine, 14, 243-251.Google Scholar
  87. Luthar, S. S., & Zigler, E. (1991). Vulnerability and competence: A review of research on resilience in childhood. American Journal of Orthopsychiatry, 61, 6-22.PubMedGoogle Scholar
  88. McCollum, A. T. (1981). The chronically ill child: A guide for parents and professionals. New Haven: Yale University Press.Google Scholar
  89. McCubbin, H. I., McCubbin, M. A., Patterson, J. M., Cauble, A. E., Wilson, L. R., & Warwick, W. (1983). CHIP-coping health inventory for parents: An assessment of parental coping patterns in the care of the chronically ill child. Journal of Marriage and the Family, 45, 359-370.Google Scholar
  90. McCubbin, H. I., Nevin, R. S., Cauble, A. E., Larsen, A., Comeau, J., & Patterson, J. M. (1983). Family coping with chronic illness: The case of cerebral palsy. In H. I. McCubbin, A. E. Cauble, & J. M. Patterson (Eds.), Family stress, coping, and social support. Springfield, IL: Thomas.Google Scholar
  91. Maddux, J. E., Roberts, M. C., Sledden, E. A., & Wright, L. (1986). Developmental issues in child health psychology. American Psychologist, 41, 25-34.PubMedGoogle Scholar
  92. Maheady, L., & Maitland, G. E. (1982). Assessing social perception abilities in learning disabled students. Learning Disabilities Quarterly, 5, 363-370.Google Scholar
  93. Massie, R. K. (1985). The constant shadow. Reflections on the life of a chronically ill child. In N. Hobbs & J. Perrin (Eds.), Issues in the care of children with chronic illness (pp. 13-23). San Francisco: Jossey-Bass.Google Scholar
  94. Mattsson, A. (1972). Long-term physical illness in childhood: A challenge to psychosocial adaptation. Pediatrics, 50, 801-811.PubMedGoogle Scholar
  95. Mearig, J. S. (1979). The assessment of intelligence in boys with Duchenne muscular dystrophy. Rehabilitation Literature, 40, 262-274.PubMedGoogle Scholar
  96. Mearig, J. S. (1985). Cognitive development of chronically ill children. In. N. Hobbs & J. M. Perrin (Eds.), Issues in the care of children with chronic illness (pp. 672-697). San Francisco: Jossey-Bass.Google Scholar
  97. Mechanic, D. (1964). The influence of mothers on their children's health attitudes and behaviors. Pediatrics, 33, 444-453.PubMedGoogle Scholar
  98. Meier, M. J. (1981). Education for competency assurance in human neuropsychology: Antecedents, models, and directions. In S. Filskov & T. Boll (Eds.), Handbook of clinical neuropsychology (pp. 754-781). New York: Wiley.Google Scholar
  99. Meijer, S. A., Sinnema, G., Bijstra, J. O., Mellenbergh, G. J., & Wolters, W. H. G. (2000). Social functioning in children with a chronic illness.Journal of Child Psychology and Psychiatry, 41, 309-317.PubMedGoogle Scholar
  100. Menninger, K. (1963). The vital balance. New York: Viking Press.Google Scholar
  101. Miceli, P. J., Rowland, J. E., & Whitman, T. L. (1999). Chronic illness in childhood. In T. L. Whitman, T. V. Merluzzi, & R. D. White (Eds.), Life-span perspectives on health and illness. Mahwah, NJ: Lawrence Erlbaum.Google Scholar
  102. Miller, E. (1984). Recovery and management of neuropsychological impairments. New York: Wiley.Google Scholar
  103. Miller, K. B. & LaGreca, A. M. (2005). Adjustment to chronic illness in girls. In D. J. Bell, S. L. Foster, & E. J. Mash, (Eds.), Handbook of behavioral and emotional problems in girls. NY: Kluwer Academic/Plenum Publishers.Google Scholar
  104. Millon, T., Green, C., & Meagher, R. (1982). Handbook of clinical health psychology. New York: Plenum Press.Google Scholar
  105. Minde, K. K., Hackett, J. D., Killou, D., & Silver, S. (1972). How they grow up: 41 physically handicapped children and their families. American Journal of Psychiatry, 128, 1554-1560.PubMedGoogle Scholar
  106. Myers-Vando, R., Steward, M., Folkins, C. H., & Hines, P. (1979). The effects of congenital heart disease on cognitive development, illness causality concepts, and vulnerability. American Journal of Orthopsychiatry, 49, 617-625.PubMedGoogle Scholar
  107. Neuhauser, C., Amsterdam, B., Hines, P., & Steward, M. (1978). Children's concepts of healing: Cognitive development and locus of control factors. American Journal of Orthopsychiatry, 48, 335-341.Google Scholar
  108. Noll, R. B., Vannatta, K., Koontz, K., & Kalinyak, K. (1996). Peer relationships and emotional well-being of youngsters with sickle cell disease. Child Development, 67, 423-426.PubMedGoogle Scholar
  109. O'Donnell, L. (1982). The social worlds of parents. Marriage and Family Review, 5, 9-36.Google Scholar
  110. O'Dougherty, M. M. (1983). Counseling the chronically ill child: Psychological impact and intervention. Lexington: Lewis Publishing.Google Scholar
  111. O'Malley, J. E., Koocher, G., Foster, D., & Slavin, L. (1979). Psychiatric sequelae of surviving a childhood cancer. American Journal of Orthopsychiatry, 49, 608-616.PubMedGoogle Scholar
  112. Ozuna, J. (1979). Psychosocial aspects of epilepsy. Journal of Neurosurgical Nursing, 11, 242-246.PubMedGoogle Scholar
  113. Palmer, B., & Lewis, C. (1976). Development of health attitudes and behaviors. Journal of School Health, 46, 401-402.PubMedGoogle Scholar
  114. Parsons, T. (1964). Social structure and personality. Glencoe, IL: Free Press.Google Scholar
  115. Parsons, O., & Prigatano, G. (1978). Methodological considerations in clinical neuropsychological research. Journal of Consulting and Clinical Psychology, 46, 608-619.PubMedGoogle Scholar
  116. Perley, J., Winget, C., & Placci, C. (1971). Hope and discomfort as factors influencing treatment continuance. Comprehensive Psychiatry, 12, 557-563.PubMedGoogle Scholar
  117. Perrin, J. M. (1986). Chronically ill children: An overview. Topics in Early Childhood Special Education, 5, 1-11.Google Scholar
  118. Perrin, J. M., & Gerrity, P. S. (1981). There's demon in your belly: Children's understanding of illness. Pediatrics, 67, 841-849.PubMedGoogle Scholar
  119. Petiet, C. A. (1983). Hope: The major predictor of positive resolution after marital loss. Paper presented at the 91st annual conference, American Psychological Association, Anaheim, CA.Google Scholar
  120. Pierpont, M. E., LeRoy, B., & Baldfinger, S. (1984). Genetic disorders. In R. W. Blum (Ed.), Chronic illness and disability in childhood and adolescence. New York: Grune & Stratton.Google Scholar
  121. Pless, I. B. (1984). Clinical assessment: Physical and psychological functioning. Pediatric Clinics of North America, 31, 33-45.PubMedGoogle Scholar
  122. Pless, I. B., & Nolan, T. (1991). Revision, replication, and neglect: Research on maladjustment in chronic illness. Journal of Child Psychology, Psychiatry, and Allied Disciplines, 32, 347-365.Google Scholar
  123. Pless, I. B., & Roghmann, K. J. (1971). Chronic illness and its consequences: Observations based on three epidemiologic surveys. Journal of Pediatrics, 79, 351-359.PubMedGoogle Scholar
  124. Potter, P. C., & Roberts, M. C. (1984). Children's perceptions of chronic illness: The roles of disease symptoms, cognitive development, and information. Journal of Pediatric Psychology, 9, 13-27.PubMedGoogle Scholar
  125. Rabkin, J. G., Williams, J. B. W., Neugebauer, R., Remien, R. H., & Goetz, R. (1990). Maintenance of hope in HIV-spectrum homosexual men. American Journal of Psychiatry, 147, 1322-1327.PubMedGoogle Scholar
  126. Resnick, M. (1984). The teenager with cerebral palsy. In R. W. Blum (Ed.), Chronic illness and disability in childhood and adolescence. New York: Grune & Stratton.Google Scholar
  127. Riese, W. (1977). Dynamics in brain lesions. In Y. Lebrun & E. Buyssens (Eds.), Selected papers on the history of aphasia. Amsterdam: Swets & Zeitlinger.Google Scholar
  128. Roder, I, Boekaerts, M., & Kroonenberg, P. M. (2002). The stress and coping questionnaire for children (school version and asthma version): Construction, factor structure, and psychometric properties. Psychological Reports, 91, 29-36.PubMedGoogle Scholar
  129. Roessler, R., & Bolton, B. (1978). Psychosocial adjustment to disability. Baltimore: University Park Press.Google Scholar
  130. Rourke, B. P. (1985). Neuropsychology of learning disabilities: Essentials of subtype analysis. New York: Guilford Press.Google Scholar
  131. Rutter, M. (1981). Stress, coping, and development: Some issues and some questions. Journal of Child Psychology and Psychiatry, 22, 323-356.PubMedGoogle Scholar
  132. Rutter, M. (1986). Meyerian psychobiology, personality development, and the role of life experiences. American Journal of Psychiatry, 143, 1077-1087.PubMedGoogle Scholar
  133. Rutter, M., Graham, P., & Yule, W. (1970). A neuropsychiatric study in childhood (Clinics in Developmental Medicine Nos. 35 and 36). London: Spastics International Medical Publications/Heinemann Medical Books.Google Scholar
  134. Rutter, M., Tizard, J., & Whitmore, K. (1970). Education, health and behavior: Psychological and medical study of childhood development. London: Longman.Google Scholar
  135. Ruvelson, L. (1990). The tense tightrope: How patients and their therapists balance hope and hopelessness. Clinical Social Work Journal, 18, 145-155.Google Scholar
  136. Ryan-Wenger, N. M. (1992). A taxonomy of children's coping strategies: A step toward theory development. American Journal of Orthopsychiatry, 62, 256-263.PubMedGoogle Scholar
  137. Schibuk, M., Bond, M., & Bouffard, R. (1989). The development of defenses in childhood. Canadian Journal of Psychiatry, 34, 581-588.Google Scholar
  138. Schilling, R. F., Schinke, S. P., & Kirkham, M. A. (1985). Coping with a handicapped child: Differences between mothers and fathers. Social Science and Medicine, 21, 857-863.PubMedGoogle Scholar
  139. Schmidt, S., Petersen, C., & Bullinger, M. (2003). Coping with chronic disease from the perspective of children and adolescents: A conceptual framework and its implications for participation. Child: Care, Health and Development, 29, 63-75.Google Scholar
  140. Schunk, D. H. (1983). Ability versus effort attributional feedback: Differential effects on self-efficacy and achievement. Journal of Educational Psychology, 76, 1159-1169.Google Scholar
  141. Seligman, M. E. P., Peterson, C., Kaslow, N. J., Tanenbaum, R. L., Alloy, L. B., & Abramson, L. Y. (1984). Attributional style and depressive symptoms among children. Journal of Abnormal Psychology, 93, 235-238.PubMedGoogle Scholar
  142. Shapiro, J. (1983). Family reactions and coping strategies in response to the physically ill or handicapped child: A review. Social Science and Medicine, 17, 913-931.PubMedGoogle Scholar
  143. Shontz, F. C. (1982). Adaptation to chronic illness. In T. Millon, C. Green, & R. Meagher (Eds.), Handbook of clinical health psychology (pp. 153-172). New York: Plenum Press.Google Scholar
  144. Shurtleff, D. B. (1980). Myelodysplasia: Management and treatment. Current Problems in Pediatrics, 10, 1-98.PubMedGoogle Scholar
  145. Siegal, M. (1988). Children's knowledge of contagion and contamination as causes of illness. Child Development, 59, 1353-1359.PubMedGoogle Scholar
  146. Simmons, R. J., Corey, M., Cowen, L., Keenan, N., Robertson, J., & Levison, H. (1985). Emotional adjustment of adolescents with cystic fibrosis. Psychosomatic Medicine, 47, 111-122.PubMedGoogle Scholar
  147. Small, L. (1973). Neurodiagnosis in psychotherapy. New York: Brunner/Mazel.Google Scholar
  148. Smith, A. (1979). Practices and principles of clinical neuropsychology: Focusing on the hole rather than the doughnut. International Journal of Neuroscience, 9, 233-238.PubMedGoogle Scholar
  149. Smith, M. B. (1983). Hope and despair: Keys to the sociopsycho-dynamics of youth. American Journal of Orthopsychiatry, 53, 388-399.PubMedGoogle Scholar
  150. Soliday, E., Kool, E., & Lande, M. B. (2000). Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology, 25, 93-103.PubMedGoogle Scholar
  151. Sollee, N. D., Latham, E. E., Kindlon, D. J., & Bresnan, M. J. (1985). Neuropsychological impairment in Duchenne muscular dystrophy. Journal of Clinical and Experimental Neuropsychology, 7, 486-496.PubMedGoogle Scholar
  152. Stabler, B. (1988). Perspectives on chronic childhood illness. In B. G. Malamed, K. A. Mathews, D. K. Rauth, B. Stabler, & N. Schneiderman (Eds.), Child health psychology. Hillsdale, NJ: Erlbaum.Google Scholar
  153. Stein, R. E. K., & Jessop, D. J. (1982). A noncategorical approach to chronic childhood illness. Public Health Reports, 97, 354-362.PubMedGoogle Scholar
  154. Stipek, D., & Weisz, J. R. (1981). Perceived personal control and academic achievement. Review of Educational Research, 51, 101-137.Google Scholar
  155. Tarnowski, K. J. & Brown, R. T. (2000). Psychological aspects of pediatric disorders. In M. Hersern & R. T. Ammerman (Eds.). Advanced abnormal child psychology (2 nd ed.), Mahwah, NJ: Lawrence Erlbaum.Google Scholar
  156. Taube, S. L., & Calman, N. H. (1992). The psychotherapy of patients with complex partial seizures. American Journal of Orthopsychiatry, 62, 35-43.PubMedGoogle Scholar
  157. Tavormina, J. B., Kastner, L. S., Slater, P. M., & Watt, S. L. (1976). Chronically ill children: A psychologically and emotionally deviant population? Journal of Abnormal Child Psychology, 4, 99-110.PubMedGoogle Scholar
  158. Thomas, A. (1979). Learned helplessness and expectancy factors: Simplifications for research in learning disabilities. Review of Educational Research, 49, 208-221.Google Scholar
  159. Thompson, R. J., Jr., Gill, K. M., Burbach, D. J., Keith, B. R., & Kinney, T. R. (1993). Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. Journal of Consulting and Clinical Psychology, 61, 468-474.PubMedGoogle Scholar
  160. Thompson, R. J., Jr., Gill, K. M., Keith, B. R., Gustafson, K. E., George, K. L., & Kinney, T. R. (1994). Psychological adjustment of children with sickle cell disease: Stability and change over a 10-month period. Journal of Consulting and Clinical Psychology, 62, 856-860.PubMedGoogle Scholar
  161. Thompson, R. J., Jr., & Gustafson, K. E. (1996). Adaptation to chronic childhood illness. Washington, DC: American Psychological Association.Google Scholar
  162. Thompson, R. J., Jr., & Gustafson, K. E., Hamlett, K. W., & Spock, A. (1992). Stress, coping, and family functioning in the psychological adjustment of mothers of children with cyctic fibrosis. Journal of Pediatric Psychology, 18, 573-585.Google Scholar
  163. Thompson, R. J., Jr., & Gustafson, K. E., George, L. K., & Spock, A. (1994). Change over a 12-month period in the psychological adjustment of children and adolescents with cyctic fibrosis. Journal of Pediatric Psychology, 19, 189-203.PubMedGoogle Scholar
  164. Tobin, D. L., Holroyd, K. A., Reynolds, R. V., & Wigal, J. K. (1989). The hierarchical factor structure of the coping strategies inventory. Cognitive Therapy and Research, 13, 343-361.Google Scholar
  165. Travis, G. (1976). Chronic illness in children: Its impact on child and family. Stanford: Stanford University Press.Google Scholar
  166. Trexler, L. E. (Ed.). (1982). Cognitive rehabilitation: Conceptualization and intervention. New York: Plenum Press.Google Scholar
  167. Tropauer, A., Franz, N. M., & Dilgard, V. W. (1970). Psychological aspects of the care of children with cystic fibrosis. American Journal of Diseases in Childhood, 119, 424.Google Scholar
  168. Van Dongen-Melman, J. E. W. & Sanders- Woudstra, J. A. R. (1986). Psychosocial aspects of childhood cancer: A review of the literature. Journal of Child Psychology and Psychiatry, 27, 145-180.PubMedGoogle Scholar
  169. von Bertalanffy, L. (1968). General systems theory. New York: Braziller.Google Scholar
  170. Waddell, C. (1983). Faith, hope, and luck: A sociological study of children growing up with a life-threatening illness. Washington, DC: University Press of America.Google Scholar
  171. Wallander, J..L, Varni, J. W., Babani, L., Banis, H. T., DeHaan, C. B., & Wilcox, K. T. (1989). Disability parameters: Chronic strain and adaptation of physically handicapped children and their mothers. Journal of Pediatric Psychology, 14, 23-42.PubMedGoogle Scholar
  172. Wallander, J. L., Thompson, R. J., Jr., & Alriksson- Schmidt, A. (2003). Psychosocial adjustment of children with chronic physical conditions. In M. C. Roberts (Ed), Handbook of pediatric psychology. New York: Guilford.Google Scholar
  173. Weisz, J. R., & Stipek, D. J. (1982). Competence, contingency, and the development of personal control. Human Development, 25, 250-281.PubMedGoogle Scholar
  174. Whelan, T. (1986). Neuropsychological performance, reading achievement, and perceptions of competence in boys with Duchenne muscular dystrophy. Paper presented at the 14th annual meeting, International Neuropsychological Society, Denver.Google Scholar
  175. Whelan, T. (1987). Neuropsychological performance of children with Duchenne muscular dystrophy and spinal muscle atrophy. Development Medicine and Child Neurology, 29, 207-211.Google Scholar
  176. Whelan, T. (1999). Integrative developmental neuropsychology. In S. Goldstein & C. R. Reynolds (Eds.), Handbook of neurodevelopmental and genetic disorders in children. New York: Guilford.Google Scholar
  177. Whitt, J. K., Dykstra, W., & Taylor, C. (1979). Children's conceptions of illness and cognitive development. Clinical Pediatrics, 18, 327-339.PubMedGoogle Scholar
  178. Whitten, C., Waugh, D., & Moore, A. (1974). Unmet needs of parents of children with sickle cell anemia. In J. Hercules (Ed.), Proceedings of the first national symposium on sickle cell disease. Bethesda: National Heart, Lung, and Blood Institute.Google Scholar
  179. Wortman, C. B. (1983). Coping with victimization: Conclusions and implications for future research. Journal of Social Issues, 39, 195-221.Google Scholar
  180. Zeltzer, L., LeBaron, S., & Zeltzer, P. (1984). The adolescent with cancer. In R. W. Blum (Ed.), Chronic illness and disability in childhood and adolescence. New York: Grune & Stratton.Google Scholar

Copyright information

© Springer Science+Business Media, LLC 2009

Authors and Affiliations

  • Timothy B. Whelan
    • 1
  • Marie L. Walker
    • 2
  1. 1.Department of PsychiatryBaystate Medical CenterSpringfieldEngland
  2. 2.AustinTexasUSA

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