It is difficult to count the number of times house staff have paged me frantically to say that a moribund patient's family continues to desire “everything done” despite pleas for comfort measures. This situation usually occurs at three in the morning and frequently involves an elderly patient who has been transferred from a skilled nursing facility to the hospital for recurring decompensations. There is rarely evidence in the chart of any discussion regarding end-of-life care. A phone call to the relatives of the patient invariably yields the reply, “We want everything done.”
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References
Lynn J, Teno JM, Phillips RS, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med 1997;126:97–106.
Doig C, Murray H, Bellomo R, et al. Ethics roundtable debate: patients and surrogates want ‘everything done’ — what does ‘everything’ mean? Crit Care 2006;10:231.
Shepherd L. Shattering the neutral surrogate myth in end-of-life decision making: Terri Schiavo and her family. Spec Law Dig Health Care Law 2006;327:9–29.
Buckley T, Crippen D, DeWitt AL, et al. Ethics roundtable debate: withdrawal of tube feeding in a patient with persistent vegetative state where the patients wishes are unclear and there is family dissension. Crit Care 2004;8:79–84.
Crippen D, Hawryluck L. Pro/con clinical debate: life support should have a special status among therapies, and patients or their families should have a right to insist on this treatment even if it will not improve outcome. Crit Care 2004;8:231–233; discussion, 231–233.
Cranford RE. Helga Wanglie’s ventilator. Hastings Cent Rep 1991;21:23–24.
Whetstine LM. An examination of the bio-philosophical literature on the definition and criteria of death; when is dead ‘dead’ and why some donation after cardiac death donors are not [dissertation]. Pittsburgh: Duquesne University; 2006.
Levy MM, McBride DL. End-of-life care in the intensive care unit: state of the art in 2006 [review]. Crit Care Med 2006;34(11 Suppl):S306–S308.
Sara M, Sacco S, Cipolla F, et al. An unexpected recovery from permanent vegetative state. Brain Inj 2007;21:101–103.http://www.nationalenquirer.com/.
Crippen D. Medical treatment for the terminally ill: the ‘risk of unacceptable badness’. Crit Care 2005;9:317–318.
References
Fins JJ, Solomon MZ. Communication in intensive care settings: the challenge of futility disputes. Crit Care Med 2001;29:N10–N1530.
Fins, “Communication in intensive care setting, 233.
Brody BA, Halevy A. Is futility a futile concept? J Med Philos 1995;20:123–144.
American Thoracic Society. Withholding and withdrawing life-sustaining therapy. Am Rev Res Dis 1991;144:726–731. Available at: http://www.thoracic.org/adobe/statements/withhold1–6.pdf.
American Thoracic Society, “Withholding and withdrawing life-sustaining therapy,” 154.
Streat SJ. Illness trajectories are also valuable in critical care. BMJ 2005;330:1272.
The Health and Disability Commissioner Act 1994. Available at: http://www.hdc.org.nz/index.php.
Gillett G. The RUB. Risk of unacceptable badness. N Z Med J 2001;114:188–189.
Cassell J. Life and death in intensive care. Philadelphia: Temple University Press; 2005.
Streat S. When do we stop? Crit Care Resuscitation. 2005;7:227–232.
Let the brain damaged die, day doctors. Sydney Morning Herald. June 13, 2005. Available at: http://www.smh.com.au/news/National/Let-the-braindamaged-die-say-doctors/2005/06/12/1118514931362.html.
Fine RL. The Texas Advance Directives Act of 1999: politics and reality. HEC Forum 2001;13:59–81.
Crippen D. Dealing with difficult surrogates: erring on the side of autonomy. In: Crippen D, ed. End-of-life communication in the intensive care unit [this volume]. New York: Springer; 2008.
Streat S. Dealing with difficult surrogates: erring on the side of reason. In: Crippen D, ed. End-of-life communication in the intensive care unit [this volume]. New York: Springer; 2008.
Goold S, Williams B, Arnold RM. Conflicts around decisions to limit treatment: a differential diagnosis. JAMA 2000;283:909–914.
Weeks JC, Cook EF, O’Day SJ, et al. Relationship between cancer patients’ predictions of prognosis and their treatment preferences [see comments] [published erratum appears in JAMA 2000 Jan 12;283:203]. JAMA 1998;279:1709–1714.
Azoulay E, Chevret S, Leleu G, et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 2000;28:3044–3049.
Lilly CM, De Meo DL, Sonna LA, et al. An intensive communication intervention for the critically ill. Am J Med 2000;109:469–475.
Azoulay E, Pochard F. Communication with family members of patients dying in the ICU. Curr Opin Crit Care 2003;9:545–550.
Chaitin E, Arnold RM. Communication in the ICU: Holding a family meeting. I and II. In: Rose B, ed. Boston: Uptodate; 2003:11.2. Revised 2005.
Pochard F, Azoulay E, Chevret S, et al. Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med 2001;29:1893–1897.
Azoulay E, Pochard F, Chevret S, et al. Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients. A multicenter, prospective, randomized, controlled trial. Am J Respir Crit Care Med 2002;165:438–442.
Coulehan J. I treat all my patients aggressively. J Med Humanities1990;11:193–199.
Buchanan AE, Brock DW. Deciding for others. Cambridge: Cambridge University Press; 1989.
Tomlinson T, et al. An empirical study of proxy consent for elderly persons. Gerontologist 1990;30:54–64.
Emanuel Z. Preliminary results on ASCO end-of-life (EOL) survey. Paper presented at: American Society of Clinical Oncology (ASCO) meeting. May 16–19, 1998.
Prendergast TJ, Sullivan A, Arnold RM, et al. Fellowship education in end-of-life care. Am J Respir Crit Care Med 2002;165:B4.
Nelson J, Cook D, Angus D, et al. End-of-life care: a survey of ICU Directors. Abstract accepted to American Thoracic Society 2003 International Conference.
Levy MM. End-of-life care in the intensive care unit: can we do better? Crit Care Med 2001;29:N56–N61.
Puntillo KA, Benner P, Drought T, et al. End-of-life issues in intensive care units: a national random survey of nurses’ knowledge and beliefs. Am J Crit Care 2001;10:216–229.
Fallowfield L, Jenkins V, Farewell V, et al. Efficacy of a cancer research UK communication skills training model for oncologists: a randomized controlled trial. Lancet 2002;359:650–656.
Teno JM, Murphy D, Lynn J, et al. Prognosis-based futility guidelines: does anyone win? SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. J Am Geriatr Soc 1994;42:1202–1207.
Teno et al., “Prognosis-based futility guidelines,” 201.
Wennberg JE, Fisher ES, Stukel TA, et al. Use of hospitals, physician visits, and hospice care during last six months of life among cohorts loyal to highly respected hospitals in the United States. BMJ 2004;328:607.
http://www.dartmouthatlas.org/. Accessed on November 20, 2005.
Sprung CL, Cohen SL, Sjokvist P, et al. End-of-life practices in European intensive care units: the Ethicus Study. JAMA 2003;290:790–797.
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(2008). Dealing with Difficult Surrogates. In: Crippen, D.W. (eds) End-of-Life Communication in the ICU. Springer, New York, NY. https://doi.org/10.1007/978-0-387-72966-4_7
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