Research on care-related quality of life (crQoL) focuses mainly on the interaction between the quality of care (QoC) and the quality of life (QoL). However, the conditions for a good QoC are also important, that is the resources, structures and processes which facilitate good care outcomes. For comprehensive evaluation of care-related QoL, all the perspectives that have been included in the multi-dimensional and multi-actoral evaluation model developed in the Care Keys project are important. Hence, the instrumentation of the research carried out within Care Keys was designed to cover all the different elements within the meta-model and quality matrix that guided the project:
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1.
Subjective QoL in old persons receiving home care or care in institutional settings, and determinants of it.
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2.
Objective (assessed) QoL in old persons, and determinants of it.
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3.
QoL in old persons with dementia.
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4.
Subjective QoC in old persons using home care or care in institutional settings, and determinants of it.
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5.
Professional quality of home care and care in institutional settings, and determinants of it.
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6.
Quality management of home care and care in institutional settings, and determinants of it.
It followed from this, firstly, that instruments were needed for carrying out interviews with clients to access their subjective perceptions about their QoL and the QoC they received. Secondly, instruments had to describe the QoL as professionally assessed and documented including professional (e.g. clinical) care outcomes. Thirdly, instruments were required for the evaluation of the QoL of older persons with dementia, who may be unable to provide the information themselves. Fourthly, a standardised instrument was needed for the collection of information on professional QoC, covering key components within the meta-model. Fifthly, an instrument was required to collect all the information needed from the perspective of management. Besides quality management information, the instrument also had to collect information at the organisational level on such issues as material resources, costs and organisational structures for quality management. The information sources for this information were the care managers at different management levels.
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Vaarama, M. et al. (2008). Instrumentation of the Care Keys Research. In: Vaarama, M., Pieper, R., Sixsmith, A. (eds) Care-Related Quality of Life in Old Age. Springer, New York, NY. https://doi.org/10.1007/978-0-387-72169-9_2
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