Care-Related Quality of Life: An Overview

  • Marja Vaarama
  • Richard Pieper
  • Gunnar Ljunggren
  • Seija Muurinen
  • Kai Saks
  • Andrew Sixsmith
The discussion presented in this volume has been multifaceted, looking at quality of life (QoL) in care-dependent old people in many ways both theoretically and empirically. The main purpose has been to examine the relationship between long-term care and QoL in frail older persons from theoretical, empirical, methodological and practical perspectives. Our key questions were
  1. 1.

    What are the determinants of QoL in older people receiving regular formal homecare or living in institutional settings?

  2. 2.

    How does formal long-term care contribute to their QoL, and what are the features of a good quality and effective care from the perspectives of the clients and professional care?

  3. 3.

    How does care management contribute to good client and professional outcomes, and how could quality management (QoM) be improved by evidence-based performance evaluation?


For a number of reasons the project was quite complex and ambitious. From the outset of the project it was clear that there was a lack of knowledge and scarcity of research on QoL of care-dependent, frail older people. In addition, there was criticism presented in previous studies on the general concept of QoL as not being able to take the situations of frail older people properly into account. Specific models should be developed, so the suggestion in the literature, maybe even models specific for types of care and for the diverse client groups. Thus, there arose a need for the development of theoretical concepts and models, and our basic approach was to favor a unified and generic concept of QoL to be further specified by empirically tested indicators.


Informal Carer Target Efficiency Client Group Care Documentation Philadelphia Geriatric Center Morale Scale 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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  1. Baldock, J. C., & Hadlow, J. (2002). Self-talk versus needs-talk: An exploration of the priorities of housebound older people. Quality in Ageing, 3(1), 42–48.Google Scholar
  2. Bebbington, A., & Davies, B. (1983). Equity and efficiency in the allocation of the personal social services. Journal of Social Policy, 12, 309–330.CrossRefPubMedGoogle Scholar
  3. Birren, J. E., Lubben, J. E., Rowe, J. C., & Deutschmann, D. E. (Eds.). (1991). The concept and measurement of QoL in frail elderly. New York: Academic Press.Google Scholar
  4. Bowers, B. J., Fibich, B., & Jacobson, N. (2001). Care-as-service, care-as-relating, care-as-comfort: Understanding nursing home resident’s definition of quality. The Gerontologist, 41(4), 539–545.PubMedGoogle Scholar
  5. Brown, I., & Brown, R. I. (2003). Quality of life and disability. An approach for community practitioners. New York: Kingsley.Google Scholar
  6. Caris-Verhallen, W., Kerkstra, A., & Bensing, J. (1997). The role of communication in nursing care for elderly people: a review of the literature. Journal of Advanced Nursing, 25, 915–933.CrossRefPubMedGoogle Scholar
  7. Coulon, L., Mok, M., Krause, K.-L., & Anderson, M. (1996). ‘The pursuit of excellence in nursing care: what does it mean?’ Journal of Advanced Nursing, 24, 817–826.CrossRefPubMedGoogle Scholar
  8. Cummins, R. A. (1997). Assessing QoL. In R. I. Brown (Eds.), QoL for people with disabilities. Models, research and practice. Cheltenham: Stanley Thornes.Google Scholar
  9. Davies, B., & Knapp, M. (1981). Old people’s homes and the production of welfare. London: Routledge & Kegan Paul.Google Scholar
  10. DePorter, C. H. (2005). Regulating food service in North Carolina’s long-term care facilities. North Carolina Medical Journal, 66(4), 300–303.PubMedGoogle Scholar
  11. Hellström, Y., & Hallberg, I. R. (2001). Perspectives of elderly people receiving home help on health, care and QoL. Health and Social Care in the Community, 9(2), 61–71.CrossRefPubMedGoogle Scholar
  12. Hughes, B. (1990). QoL. In S. M. Peace (Ed.), Researching social gerontology: Concepts, methods and issues (pp. 46–58). London: SAGE.Google Scholar
  13. Kavanagh, S., & Stewart, A. (1995). Economic evaluations of mental health care. In M. Knapp (Eds.), The economic evaluation of mental health care (pp. 27–60). PSSRU. CEMH. Aldershot: Arena.Google Scholar
  14. Knapp, M. (1984). The economics of social care. Studies in Social Policy. Hongkong: MacMillan Education.Google Scholar
  15. Knapp, M. (1995). The economic evaluation of mental health care. PSSRU.CEMH, Aldershot: Arena.Google Scholar
  16. Lawton, M. P. (1975). The Philadelphia Geriatric Center Morale Scale: A revision. Journal of Gerontology, 30, 85–89.PubMedGoogle Scholar
  17. Lawton, M. P. (1983). Environment and other determinants of well-being in older people. The Gerontologist, 4, 349–357.Google Scholar
  18. Lawton, M. P. (1991). A multidimensional view of quality of life in frail elders. In J. E. Birren, J. E. Lubben, J. C. Rowe, & D. E. Deutchman (Eds.), The concept and measurement of quality of life in frail elders (pp. 3–27). San Diego, CA: Academic Press.Google Scholar
  19. Øvretveit, J. (1998). Evaluating health interventions. An introduction to evaluation of health treatments, services, policies and organizational interventions, Buckingham, Philadelphia, PA: Open University Press.Google Scholar
  20. Power, M., Quinn, K., Schmidt, S., & WHOQOL-OLD Group. (2005). Development of the WHOQOL-old module. Quality of Life Research, 14, 2197–2214.Google Scholar
  21. Skevington, S. M., Lofty, M., O’Connell, K., & The WHOQOL Group. (2004). The World Health Organisation’s WHOQOL-Bref quality of life assessment: Psychometric properties and the results of the international field trial. A Report from the WHOQOL Group, Quality of Life Research, 13, 299–310.CrossRefPubMedGoogle Scholar
  22. Vaarama, M., Mattila, V., Laaksonen, S., & Valtonen, H. (1997). Target efficiency—report on development and piloting of the target efficiency indicators and model. Helsinki: Stakes.Google Scholar
  23. Vaarama, M., Pieper, R., & Sixsmith, A. (2007).Care related QoL in old age. Conceptual and Emprical Exploration. In: H. Mollenkopf, & A. Walker (Eds.) (2007). Quality of Life in Old Age. International and Multi-Disciplinary Perspectives. Dordrecht, The Netherlands: Springer. pp. 215–232.Google Scholar
  24. Veenhoven, R. (1996). “Happy life-expectancy. A comprehensive measure of quality-of-life in nations”, Social Indicators Research, 39, 1–58.CrossRefGoogle Scholar
  25. Veenhoven, R. (2000). The four qualities of Life. Ordering concept and measures of the good life. Journal of Happiness Studies, 1, 1–39.CrossRefGoogle Scholar

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© Springer Science+Business Media, LLC 2008

Authors and Affiliations

  • Marja Vaarama
    • 1
  • Richard Pieper
    • 2
  • Gunnar Ljunggren
  • Seija Muurinen
  • Kai Saks
  • Andrew Sixsmith
    • 3
  1. 1.Department of Social WorkUniversity of LaplandFinland
  2. 2.Fak. Sozial-u. Wirtschaftswiss. Urbanistik und SozialplanungUniversity of BambergGermany
  3. 3.Department of GerontologySimon Fraser University at Harbour CentreVancouverCanada

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