Observational Studies

  • Sana Loue
  • Earl C. Pike


Ethical Issue Severe Mental Illness Public Health Practice Public Health Surveillance Natural History Study 
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  1. Avins, A.L. & Lo, B. (1989). To tell or not to tell: The ethical dilemmas of HIV test notifi-cation in epidemiologic research. American Journal of Public Health, 79((11), 1544–1548.PubMedCrossRefGoogle Scholar
  2. Bernard, H.R. (1994). Research Methods on Anthropology: Qualitative and Quantitative Approaches, 2nd ed. Walnut Creek, California: AltaMira Press.Google Scholar
  3. Blanck, P.D., Bellack, A.S., Rosnow, R.L., Rotheram-Borus, M.J., & Schooler, N.R. (1992). Scientific rewards and conflicts of ethical choices in human subjects research. American Psychologist, 47((7), 959–965.PubMedCrossRefGoogle Scholar
  4. Centers for Disease Control and Prevention. (1996). Minutes of Meeting on Protection of Human Research Subjects in Public Health, Atlanta, Georgia. Cited in A.L. Fairchild & R. Bayer. (2004). Ethics and the conduct of public health surveillance. Science, 303, 631–632.Google Scholar
  5. Council for International Organizations of Medical Sciences. (2005). International Guidelines for Ethical Review of Epidemiological Studies. Geneva, Switzerland: Author.Google Scholar
  6. Davis v. Lhim. (1983). 124 Mich. App. 291, aff’d on rem147 Mich. App. 8 (1985), rev’don grounds of government immunity in Canon v. Thumudo, 430 Mich. 326 (1988).Google Scholar
  7. DeCamp, M. & Sugarman, J. (2004). Ethics in population-based genetic research. Accountability in Research, 11, 1–26.PubMedCrossRefGoogle Scholar
  8. Earle v. Kuklo. (1953). 26 N.J. Super. 471 (App. Div.).Google Scholar
  9. Fairchild, A.L. & Bayer, R. (2004). Ethics and the conduct of public health surveillance. Science, 303, 631–632.PubMedCrossRefGoogle Scholar
  10. Hancock v. Commonwealth. (1998). 998 S.W.2d 496 (Ky. Ct. App.).Google Scholar
  11. Hurley, P. & Pinder, G. (1992). Ethics, social forces, and politics in AIDS-related research: Experience in planning and implementing a household HIV seroprevalence survey. Milbank Quarterly, 70((4), 605–628.PubMedCrossRefGoogle Scholar
  12. Jablonski v. United States. (1983). 712 F.2d 391 (9th Cir.).Google Scholar
  13. Johnson, B. & Turner, L.A. (2003). Data collection strategies in mixed methods research. In A. Tashakkori & C. Teddle (Eds.). Handbook of Mixed Methods in Social & Behavioral Research (pp. 297–319). Thousand Oaks, California: Sage Publication.Google Scholar
  14. Kaslow, R., Ostrow, D., Detels, R., Phair, J., Pols, B., & Rinaldo, C. (1987). The multi-center AIDS cohort study: Rationale, organization, and selected characteristics of the participants. American Journal of Epidemiology, 126, 310–318.PubMedGoogle Scholar
  15. Kentucky Revised Statutes Annotated Ş 508.060 (2006).Google Scholar
  16. Lamb, D.H., Clark, C., Drumheller, P., Frizzell, K., & Surrey, L. (1989). Applying Tarasoffto AIDS-related psychotherapy issues. Professional Psychology: Research and Practice, 20, 37–43.CrossRefGoogle Scholar
  17. Last, J. (1996). Professional standards of conduct for epidemiologists. In S.L. Coughlin & T.L. Beauchamp (Eds.), Ethics and Epidemiology (pp.53–75). New York: Oxford University Press.Google Scholar
  18. McIntosh v. Milano. (1979). 168 N.J. Super. 466.Google Scholar
  19. Muthuswamy, V. (2005). Ethical issues in HIV/AIDS research. Indian Journal of Medical Research, 121, 601–610.PubMedGoogle Scholar
  20. National Human Research Protections Advisory Committee. (2002). Clarification of the Status of Third Parties When Referenced by Human Subjects in Research.Available at Last accessed October, 2003.Google Scholar
  21. Ohio Revised Code Annotated Ş 2903.11 (2006).Google Scholar
  22. People v. Newman. (1973). 298 N.E.2d 651 (App. Div.).Google Scholar
  23. Public Health Service, United States Department of Health and Human Services. (1987). A Public Health Challenge: State Issues, Policies and Programs, vol. 1, pp. 4–1 to 4–31.Google Scholar
  24. Public Health Service Act Ş 301(d), 42 United States Code Ş 421(d).Google Scholar
  25. Schensul, S.L., Schensul, J.J., & LeCompte, M.D. (1999). Essential Ethnographic Methods: Observations, Interviews, and Questionnaires. Walnut Creek, California: AltaMira Press.Google Scholar
  26. Schiller, N.G., Crystal, S., Lewellen, D. (1994). Risky business: The cultural construction of AIDS risk groups. Social Science & Medicine 38: 1337–1346.CrossRefGoogle Scholar
  27. Siegal, H.A., Carlson, R.G., Falck, R., Reece, R.D., & Perlin, T. (1993). Conducting HIV outreach and research among incarcerated drug abusers: A case study of ethical concerns and dilemmas. Journal of Substance Abuse Treatment, 10, 71–75.PubMedCrossRefGoogle Scholar
  28. State v. Gonzalez. (2003). 154 Ohio App. 3d 9.Google Scholar
  29. Tarasoff v. Regents of the University of California. (1976). 17 Cal. 3d 425.Google Scholar
  30. Thompson v. County of Alameda. (1980). 27 Cal. 3d 741.Google Scholar
  31. Totten, G., Lamb, G.H., & Reeder, G.D. (1990). Tarasoff and confidentiality in AIDS-related psychotherapy. Professional Psychology: Research and Practice, 21, 155–160.CrossRefGoogle Scholar
  32. Traver, L.B. & Cooksey, D.R. (1988). Defense argument. In J.A. Girardi, R.M. Keese, L.B. Traver, & D.R. Coksey. (1988). Psychotherapist responsibility in notifying individuals at risk for exposure to HIV. Journal of Sex Research, 25, 1–27.Google Scholar
  33. Wengraf, T. (2001). Qualitative Research Interviewing. Thousand Oaks, California: Sage Publications Inc.Google Scholar
  34. Woodhouse, D.E., Potterat, J.I., Rothenberg, R.B., Darrow, W.M., Klovdahl, A.S., & Muth, S.Q. (1995). Ethical and legal issues in social network analysis: The real and the ideal. NIDA Research Monograph, 151, 131–143.PubMedGoogle Scholar
  35. World Bank Group. (2002). Public health surveillance toolkit. Available at Last accessed October 2003.Google Scholar

Copyright information

© Springer Science+Business Media, LLC 2007

Authors and Affiliations

  • Sana Loue
    • 1
  • Earl C. Pike
    • 2
  1. 1.Case Western Reserve UniversityCleveland
  2. 2.AIDS Taskforce of Greater ClevelandCleveland

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