Advertisement

Oncology Social Work for Survivorship

  • Patricia Fobair

Abstract

The cancer survivorship movement became part of the American scene in the 1980s with cancer patients and a physician survivor leading the way.1, 2, 3, 4, 5 Cancer survivorship became a force as a result of medicine’s focus on finding solutions to the problems of cancer following World War II. These solutions included the success of chemotherapy treatment in the 1960s, research into late effects and psychosocial research following cancer treatment (1970s), and the patient activist movement beginning in the 1980s. Oncology social workers have played a major role, being on the scene since the early days, delivering supportive services to cancer survivors, participating as team members in psychosocial research, and serving as members and leaders in survivorship organizations.6 This chapter examines survivorship from the perspective of a cancer survivor and oncology social worker, one who enjoys both clinical work and research.

Keywords

Breast Cancer Cancer Survivor Body Image Clin Oncol Bone Marrow Transplant 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. 1.
    Morra ME. Patients as citizen advocates. Cancer Pract. 1997;5(1):55–57.PubMedGoogle Scholar
  2. 2.
    O’Shea JS. The power of social change: the Women’s Movement and breast cancer. Breast J. 2003;9(5):347–349.PubMedCrossRefGoogle Scholar
  3. 3.
    Sharf BF. Out of the closet and into the legislature: breast cancer stories. Health Aff (Millwood). 2001;20(1):213–218.CrossRefGoogle Scholar
  4. 4.
    Trillin AS. Of dragons and garden peas: a cancer patient talks to doctors. N Engl J Med. 1981;304(12):699–701.PubMedGoogle Scholar
  5. 5.
    Mullan F. Seasons of survival: reflections of a physician with cancer. N Engl J Med. 1985;313(4):270–273.PubMedCrossRefGoogle Scholar
  6. 6.
    Holland JC. History of psycho-oncology: overcoming attitudinal and conceptual barriers. Psychosom Med. 2002;64(2):206–221.PubMedGoogle Scholar
  7. 7.
    Abrams RD. Not Alone with Cancer: A Guide for Those Who Care, What to Expect, What to Do. Springfield, Ill: Charles C. Thomas, 1974.Google Scholar
  8. 8.
    Association of Oncology Social Workers. Standards of Practice in Oncology Social Work. web site: Auailable at www.aosw.org/mission/standards.html. Accessed July 15, 2005.Google Scholar
  9. 9.
    Hermann JF, Carter J. The dimensions of oncology social work: intrapsychic, interpersonal, and environmental interventions. Semin Oncol. 1994;21(6):712–717.PubMedGoogle Scholar
  10. 10.
    Cannon IM. Social Work in Hospitals: Contribution to Progressive Medicine. 2nd ed. New York: Russell Sage Foundation; 1923.Google Scholar
  11. 11.
    Mullan F. National Coalition of Cancer Survivorship. Albuequerque, New Mexico, 1986 (http://www.canceradvocacy.org).Google Scholar
  12. 12.
    Fobair P. “Surviving!” Magazine. 1-20; 1983–2003:1–16.Google Scholar
  13. 13.
    Coping Magazine. 1-20; 1985–2005.Google Scholar
  14. 14.
    Office of Cancer Survivorship CCPS, Cancer Control & Population Sciences. National Cancer Institute; 2005.Google Scholar
  15. 15.
    Armstrong L. Lance Armstrong Foundation. Austin, Texas; 2005.Google Scholar
  16. 16.
    Aziz NM, Rowland JH. Trends and advances in cancer survivorship research: challenge and opportunity. Semin Radiat Oncol. 2003;13(3):248–266.PubMedCrossRefGoogle Scholar
  17. 17.
    Bettelheim B. San Francisco Chronicle; 1981.Google Scholar
  18. 18.
    Fobair, P. Turning the switch. Surviving Magazine. 1988;(Winter):3.Google Scholar
  19. 19.
    Mages NL, Mendelsohn GA. Effects of cancer on patients’ lives: a personological approach. GC Stone, F Cohen, NE Adler et al. Health Psychology—A Handbook. San Francisco: Jossey-Bass, Inc.; 1979:255–284.Google Scholar
  20. 20.
    Flatten G, Junger S, Gunkel S, Singh J, Petzold E. Traumatic and psychosocial distress in patients with acute tumors. Psychother Psychosom Med Psychol. 2003;53(3–4):191–201.PubMedCrossRefGoogle Scholar
  21. 21.
    Zabora J, Brintzenhofe Szoc K, Curbow B, Hooker C, Piantadosi S. The prevalence of psychological distress by cancer site. Psychooncology. 2001;10(1):19–28.PubMedCrossRefGoogle Scholar
  22. 22.
    Faller H, Olshausen B, Flentje M. Emotional distress and needs for psychosocial support among breast cancer patients at start of radiotherapy. Psychother Psychosom Med Psychol. 2003;53(5):229–235.PubMedCrossRefGoogle Scholar
  23. 23.
    Carter J, Rowland K, Chi D, et al. Gynecologic cancer treatment and the impact of cancer related infertility. Gynecol Oncol. 2005;97(1):90–95.PubMedCrossRefGoogle Scholar
  24. 24.
    Courneya KS, Friedenreich CM, Quinney HA, et al. A longitudinal study of exercise barriers in colorectal cancer survivors participating in a randomized controlled trial. Ann Behav Med. 2005;29(2):147–153.PubMedCrossRefGoogle Scholar
  25. 25.
    Goodwin PJ, Leszcz M, Ennis M, et al. The effect of group psychosocial support on survival in metastatic breast cancer. N Engl J Med. 2001;345(24):1719–1726.PubMedCrossRefGoogle Scholar
  26. 26.
    Hewitt M, Rowland JH, Yancik R. Cancer survivors in the United States: age, health, and disability. J Gerontol A Biol Sci Med Sci. 2003;58(1):82–91.PubMedGoogle Scholar
  27. 27.
    Fobair P, Hoppe RT, Bloom J, Cox R, Varghese A, Spiegel D. Psychosocial problems among survivors of Hodgkin’s disease. J Clin Oncol. 1986;4(5):805–814.PubMedGoogle Scholar
  28. 28.
    Lutgendorf SK, Anderson B, Rothrock N, Buller RE, Sood AK, Sorosky JI. Quality of life and mood in women receiving extensive chemotherapy for gynecologic cancer. Cancer. 2000;89(6):1402–1411.PubMedCrossRefGoogle Scholar
  29. 29.
    Sherman AC, Coleman EA, Griffith K, et al. Use of a supportive care team for screening and preemptive intervention among multiple myeloma patients receiving stem cell transplantation. Support Care Cancer. 2003;11(9):568–574.PubMedCrossRefGoogle Scholar
  30. 30.
    Sherman AC, Simonton S, Latif U, Spohn R, Tricot G. Psychosocial adjustment and quality of life among multiple myeloma patients undergoing evaluation for autologous stem cell transplantation. Bone Marrow Transplant. 2004;33(9):955–962.PubMedCrossRefGoogle Scholar
  31. 31.
    Greene D, Nail LM, Fieler VK, Dudgeon D, Jones LS. A comparison of patient-reported side effects among three chemotherapy regimens for breast cancer. Cancer Pract. 1994;2(1):57–62.PubMedGoogle Scholar
  32. 32.
    Servaes P, Verhagen S, Bleijenberg G. Determinants of chronic fatigue in disease-free breast cancer patients: a cross-sectional study. Ann Oncol. 2002;13(4):589–598.PubMedCrossRefGoogle Scholar
  33. 33.
    Curt GA, Breitbart W, Cella D, et al. Impact of cancer-related fatigue on the lives of patients: new findings from the Fatigue Coalition. Oncologist. 2000;5(5):353–360.PubMedCrossRefGoogle Scholar
  34. 34.
    Curt G, Johnston PG. Cancer fatigue: the way forward. Oncologist. 2003;8(suppl 1):27–30.PubMedCrossRefGoogle Scholar
  35. 35.
    Broeckel JA, Jacobsen PB, Horton J, Balducci L, Lyman GH. Characteristics and correlates of fatigue after adjuvant chemotherapy for breast cancer. J Clin Oncol. 1998;16(5):1689–1696.PubMedGoogle Scholar
  36. 36.
    Ganz PA, Moinpour CM, Pauler DK, et al. Health status and quality of life in patients with early-stage Hodgkin’s disease treated in Southwest Oncology Group Study 9133. J Clin Oncol. 2003;21(18):3512–3519.PubMedCrossRefGoogle Scholar
  37. 37.
    Ganz PA, Desmond KA, Leedham B, Rowland JH, Meyerowitz BE, Belin TR. Quality of life in long-term, disease-free survivors of breast cancer: a follow-up study. J Natl Cancer Inst. 2002;94(1):39–49.PubMedGoogle Scholar
  38. 38.
    Bloom JR, Fobair P, Gritz E, et al. Psychosocial outcomes of cancer: a comparative analysis of Hodgkin’s disease and testicular cancer. J Clin Oncol. 1993;11(5):979–988.PubMedGoogle Scholar
  39. 39.
    Fossa SD, Dahl AA, Loge JH. Fatigue, anxiety, and depression in long-term survivors of testicular cancer. J Clin Oncol. 2003;21(7):1249–1254.PubMedCrossRefGoogle Scholar
  40. 40.
    Ruffer JU, Flechtner H, Tralls P, et al. Fatigue in long-term survivors of Hodgkin’s lymphoma; a report from the German Hodgkin Lymphoma Study Group (GHSG) Eur J Cancer. 2003;39(15):2179–2186.PubMedCrossRefGoogle Scholar
  41. 41.
    van Tulder MW, Aaronson NK, Bruning PF. The quality of life of long-term survivors of Hodgkin’s disease. Ann Oncol. 1994;5(2):153–158.PubMedGoogle Scholar
  42. 42.
    Winer EP, Lindley C, Hardee M, et al. Quality of life in patients surviving at least 12 months following high dose chemotherapy with autologous bone marrow support. Psychooncology. 1999;8(2):167–176.PubMedCrossRefGoogle Scholar
  43. 43.
    McQuellon RP, Russell GB, Rambo TD, Cravem BL, Radford, J, Perry JJ, et al. Quality of life and psychological distress of bone marrow transplant recipients: the “time trajectory” to recovery over the first year. Bone Marrow Transplant. 1998;21(5):477–486.PubMedCrossRefGoogle Scholar
  44. 44.
    Broers S, Kaptein AA, Le Cessie S, Fibbe W, Hengeveld MW. Psychological functioning and quality of life following bone marrow transplantation: a 3-year follow-up study. J Psychosom Res. 2000;48(1):11–21.PubMedCrossRefGoogle Scholar
  45. 45.
    Byar KL, Eilers JE, Nuss SL. Quality of life 5 or more years postautologous hematopoietic stem cell transplant. Cancer Nurs. 2005;28(2):148–157.PubMedCrossRefGoogle Scholar
  46. 46.
    Bush NE, Haberman M, Donaldson G, Sullivan KM. Quality of life of 125 adults surviving 6–18 years after bone marrow transplantation. Soc Sci Med. 1995;40(4):479–490.PubMedCrossRefGoogle Scholar
  47. 47.
    Mock V, Atkinson A, Barsevick A, et al. NCCN Practice Guidelines for Cancer-Related Fatigue. Oncology (Williston Park). 2000;14(11A):151–161.Google Scholar
  48. 48.
    Bower JE, Ganz PA, Aziz N, Fahey JL, Cole SW. T-cell homeostasis in breast cancer survivors with persistent fatigue. J Natl Cancer Inst. 2003;95(15):1165–1168.PubMedCrossRefGoogle Scholar
  49. 49.
    Bower JE, Ganz PA, Aziz N, Fahey JL. Fatigue and proinflammatory cytokine activity in breast cancer survivors. Psychosom Med. 2002;64(4):604–611.PubMedGoogle Scholar
  50. 50.
    Segal R, Evans W, Johnson D, et al. Structured exercise improves physical functioning in women with stages I and II breast cancer: results of a randomized controlled trial. J Clin Oncol. 2001;19(3):657–665.PubMedGoogle Scholar
  51. 51.
    Dimeo F, Schwartz S, Fietz T, Wanjura T, Boning D, Thiel E. Effects of endurance training on the physical performance of patients with hematological malignancies during chemotherapy. Support Care Cancer. 2003;11(10):623–628.PubMedCrossRefGoogle Scholar
  52. 52.
    Schwartz AL. Fatigue mediates the effects of exercise on quality of life. Qual Life Res. 1999;8(6):529–538.PubMedCrossRefGoogle Scholar
  53. 53.
    Pinto BM, Trunzo JJ. Body esteem and mood among sedentary and active breast cancer survivors. Mayo Clin Proc. 2004;79(2):181–186.PubMedCrossRefGoogle Scholar
  54. 54.
    Kendall AR, Mahue-Giangreco M, Carpenter CL, Ganz PA, Bernstein L. Influence of exercise activity on quality of life in long-term breast cancer survivors. Qual Life Res. 2005;14(2):361–371.PubMedCrossRefGoogle Scholar
  55. 55.
    Holmes MD, Chen WY, Feskanich D, Kroenke CH, Colditz GA. Physical activity and survival after breast cancer diagnosis. JAMA. 2005;293(20):2479–2486.PubMedCrossRefGoogle Scholar
  56. 56.
    Mages NL, Castro JR, Fobair P, et al. Patterns of psychosocial response to cancer: can effective adaptation be predicted? Int J Radiat Oncol Biol Phys. 1981;7(3):385–392.PubMedGoogle Scholar
  57. 57.
    Schover LR. The impact of breast cancer on sexuality, body image, and intimate relationships. CA Cancer J Clin. 1991;41(2):112–120.PubMedGoogle Scholar
  58. 58.
    Ganz PA, Lee JJ, Sim MS, Polinsky ML, Schag CA. Exploring the influence of multiple variables on the relationship of age to quality of life in women with breast cancer. J Clin Epidemiol. 1992;45(5):473–485.PubMedCrossRefGoogle Scholar
  59. 59.
    Ganz PA, Coscarelli A, Fred C, Kahn B, Polinsky ML, Petersen L. Breast cancer survivors: psychosocial concerns and quality of life. Breast Cancer Res Treat. 1996;38(2):183–199.PubMedCrossRefGoogle Scholar
  60. 60.
    Ganz PA, Desmond KA, Belin TR, Meyerowitz BE, Rowland JH. Predictors of sexual health in women after a breast cancer diagnosis. J Clin Oncol. 1999;17(8):2371–2380.PubMedGoogle Scholar
  61. 61.
    Ganz PA, Greendale GA, Petersen L, Kahn B, Bower JE. Breast cancer in younger women: reproductive and late health effects of treatment. J Clin Oncol. 2003;21(22):4184–4193.PubMedCrossRefGoogle Scholar
  62. 62.
    Ganz PA, Kwan L, Stanton AL, et al. Quality of life at the end of primary treatment of breast cancer: first results from the moving beyond cancer randomized trial. J Natl Cancer Inst. 2004;96(5):376–387.PubMedCrossRefGoogle Scholar
  63. 63.
    Pozo C, Carver CS, Noriega V, et al. Effects of mastectomy versus lumpectomy on emotional adjustment to breast cancer: a prospective study of the first year postsurgery. J Clin Oncol. 1992;10(8):1292–1298.PubMedGoogle Scholar
  64. 64.
    Yurek D, Farrar W, Andersen BL. Breast cancer surgery: comparing surgical groups and determining individual differences in postoperative sexuality and body change stress. J Consult Clin Psychol. 2000;68(4):697–709.PubMedCrossRefGoogle Scholar
  65. 65.
    Arora NK, Gustafson DH, Hawkins RP, et al. Impact of surgery and chemotherapy on the quality of life of younger women with breast carcinoma: a prospective study. Cancer. Sep 1 2001;92(5):1288–1298.PubMedCrossRefGoogle Scholar
  66. 66.
    Avis NE, Crawford S, Manuel J. Quality of life among younger women with breast cancer. J Clin Oncol. 2005;23(15):3322–3330.PubMedCrossRefGoogle Scholar
  67. 67.
    Figueiredo MI, Cullen J, Hwang YT, Rowland JH, Mandelblatt JS. Breast cancer treatment in older women: does getting what you want improve your long-term body image and mental health? J Clin Oncol. 2004;22(19):4002–4009.PubMedCrossRefGoogle Scholar
  68. 68.
    Bukovic D, Fajdic J, Strinic T, Habek M, Hojsak I, Radakovic N. Differences in sexual functioning between patients with benign and malignant breast tumors. Coll Antropol. 2004;28(suppl 2):191–201.PubMedGoogle Scholar
  69. 69.
    Bukovic D, Fajdic J, Hrgovic Z, Kaufmann M, Hojsak I, Stanceric T. Sexual dysfunction in breast cancer survivors. Onkologie. 2005;28(1):29–34.PubMedCrossRefGoogle Scholar
  70. 70.
    Fobair P, Stewart SL, Chang S, et al. Body Image and sexual problems in young women with breast cancer. Psychooncology. 2006;15:1513–1524.Google Scholar
  71. 71.
    Avis NE, Crawford S, Manuel J. Psychosocial problems among younger women with breast cancer. Psychooncology. 2004;13(5):295–308.PubMedCrossRefGoogle Scholar
  72. 72.
    Ganz PA. Quality of life across the continuum of breast cancer care. Breast J. 2000;6(5):324–330.PubMedCrossRefGoogle Scholar
  73. 73.
    Korfage IJ, Essink-Bot ML, Borsboom GJ, et al. Five-year follow-up of health-related quality of life after primary treatment of localized prostate cancer. Int J Cancer. 2005;116(2):291–296.PubMedCrossRefGoogle Scholar
  74. 74.
    Dahn JR, Penedo FJ, Molton I, Lopez L, Schneiderman N, Antoni MH. Physical activity and sexual functioning after radiotherapy for prostate cancer: beneficial effects for patients undergoing external beam radiotherapy. Urology. 2005;65(5):953–958.PubMedCrossRefGoogle Scholar
  75. 75.
    McQuellon RP, Craven B, Russell GB, et al. Quality of life in breast cancer patients before and after autologous bone marrow transplantation. Bone Marrow Transplant. 1996;18(3):579–584.PubMedGoogle Scholar
  76. 76.
    Hayden PJ, Keogh F, Ni Conghaile M, et al. A single-centre assessment of long-term quality-of-life status after sibling allogeneic stem cell transplantation for chronic myeloid leukaemia in first chronic phase. Bone Marrow Transplant. 2004;34(6):545–556.PubMedCrossRefGoogle Scholar
  77. 77.
    Wingard JR, Curbow B, Baker F, Zabora J, Piantadosi S. Sexual satisfaction in survivors of bone marrow transplantation. Bone Marrow Transplant. 1992;9(3):185–190.PubMedGoogle Scholar
  78. 78.
    Chao NJ, Tierney DK, Bloom JR, et al. Dynamic assessment of quality of life after autologous bone marrow transplantation. Blood. 1992;80(3):825–830.PubMedGoogle Scholar
  79. 79.
    Meyers CA. Neurocognitive dysfunction in cancer patients. Oncology (Williston Park). 2000;14(1):75–79; 81–85.Google Scholar
  80. 80.
    Welzel G, Steinvorth S WF. Cognitive Effects of Chemotherapy and/or Cranial Irradiation. Strahlenther Onkol. 2005;181(3):141–156.PubMedCrossRefGoogle Scholar
  81. 81.
    Tchen N, Juffs HG, Downie FP, et al. Cognitive function, fatigue, and menopausal symptoms in women receiving adjuvant chemotherapy for breast cancer. J Clin Oncol. 2003;21(22):4175–4183.PubMedCrossRefGoogle Scholar
  82. 82.
    Castellon SA, Ganz PA, Bower JE. et al. Neurocognitive performance in breast cancer survivors exposed to adjuvant chemotherapy and tamoxifen. J Clin Exp Neuropsychol. 2004;26(7):955–969.PubMedCrossRefGoogle Scholar
  83. 83.
    Rausch RC, Park D, Pegram C, Northfelt MD, and Pietras R. A prospective study of memory changes associated with adjuvant chemotherapy in patients with breast cancer. Breast Cancer Res Treat. 2004;88(suppl 1):138.Google Scholar
  84. 84.
    Bodurka-Bevers D, Basen-Engquist K, Carmack CL, et al. Depression, anxiety, and quality of life in patients with epithelial ovarian cancer. Gynecol Oncol. 2000;78(3):302–308.PubMedCrossRefGoogle Scholar
  85. 85.
    Trask PC, Paterson A, Riba M, et al. Assessment of psychological distress in prospective bone marrow transplant patients. Bone Marrow Transplant. 2002;29(1):917–925.PubMedCrossRefGoogle Scholar
  86. 86.
    Carlson LE, Angen M, Cullum J, et al. High levels of untreated distress and fatigue in cancer patients. Br J Cancer. 2004;90(12):2297–2304.PubMedGoogle Scholar
  87. 87.
    D’Antonio LL, Long SA, Zimmerman GJ, Peterman AH, Petti GH, Chonkich GD. Relationship between quality of life and depression in patients with head and neck cancer. Laryngoscope. 1998;108(6):806–811.PubMedCrossRefGoogle Scholar
  88. 88.
    Sarna L, Padilla G, Holmes C, Tashkin D, Brecht ML, Evangelista L. Quality of life of long-term survivors of non-small-cell lung cancer. J Clin Oncol. 2002;20(13):2920–2929.PubMedCrossRefGoogle Scholar
  89. 89.
    Pelletier G, Verhoef MJ, Khatri N, Hagen N. Quality of life in brain tumor patients: the relative contributions of depression, fatigue, emotional distress, and existential issues. J Neurooncol. 2002;57(1):41–49.PubMedCrossRefGoogle Scholar
  90. 90.
    Bukberg J, Penman D, Holland JC. Depression in hospitalized cancer patients. Psychosom Med. 1984;46(3):199–212.PubMedGoogle Scholar
  91. 91.
    Lynch ME. The assessment and prevalence of affective disorders in advanced cancer. J Palliat Care. 1995;11(1):10–18.PubMedGoogle Scholar
  92. 92.
    Penman DT, Bloom JR, Fotopoulos S, et al. The impact of mastectomy on self-concept and social function: a combined cross-sectional and longitudinal study with comparison groups. Women Health. 1986;11(3–4):101–130.PubMedGoogle Scholar
  93. 93.
    Psychological response to mastectomy. A prospective comparison study. Psychological aspects of Breast Cancer Study Group. Cancer. 1987;59(1):189–196.Google Scholar
  94. 94.
    Linn MW, Linn BS, Harris R. Effects of counseling for late stage cancer patients. Cancer. 1982;49(5):1048–1055.PubMedCrossRefGoogle Scholar
  95. 95.
    Spiegel D, Bloom JR, Yalom I. Group support for patients with metastatic cancer. A randomized outcome study. Arch Gen Psychiatry. 1981;38(5):527–533.PubMedGoogle Scholar
  96. 96.
    Spiegel D, Bloom JR, Kraemer HC, Gottheil E. Effect of psychosocial treatment on survival of patients with metastatic breast cancer. Lancet. 1989;2(8668):888–891.PubMedCrossRefGoogle Scholar
  97. 97.
    Fawzy FI, Fawzy NW, Hyun CS, et al. Malignant melanoma. Effects of an early structured psychiatric intervention, coping, and affective state on recurrence and survival 6 years later. Arch Gen Psychiatry. 1993;50(9):681–689.PubMedGoogle Scholar
  98. 98.
    Classen C, Butler LD, Koopman C, et al. Supportive-expressive group therapy and distress in patients with metastatic breast cancer: a randomized clinical intervention trial. Arch Gen Psychiatry. 2001;58(5):494–501.PubMedCrossRefGoogle Scholar
  99. 99.
    Fobair P. Cancer support groups and group therapies: part I, historical and theoretical background and research on effectiveness. Journal of Psychosocial Oncology. 1997;15(1):63–81.CrossRefGoogle Scholar
  100. 100.
    Cordova MJ, Giese-Davis J, Golant M, et al. Mood disturbance in community cancer support groups. The role of emotional suppression and fighting spirit. J Psychosom Res. 2003;55(5):461–467.PubMedCrossRefGoogle Scholar
  101. 101.
    Levine EG, Eckhardt J, Targ E. Change in post-traumatic stress symptoms following psychosocial treatment for breast cancer. Psychooncology. 2005;14(8):618–635.PubMedCrossRefGoogle Scholar
  102. 102.
    Bishop SR, Warr D. Coping, catastrophizing and chronic pain in breast cancer. J Behav Med. 2003;26(3):265–281.PubMedCrossRefGoogle Scholar
  103. 103.
    Trask PC, Paterson AG, Griffith KA, Riba MB, Schwartz JL. Cognitive-behavioral intervention for distress in patients with melanoma: comparison with standard medical care and impact on quality of life. Cancer. 2003;98(4):854–864.PubMedCrossRefGoogle Scholar
  104. 104.
    Uitterhoeve RJ, Vernooy M, Litjens M, et al. Psychosocial interventions for patients with advanced cancer—a systematic review of the literature. Br J Cancer. 2004;91(6):1050–1062.PubMedGoogle Scholar
  105. 105.
    Trask PC, Paterson AG, Fardig J, Smith DC. Course of distress and quality of life in testicular cancer patients before, during, and after chemotherapy: results of a pilot study. Psychooncology. 2003;12(8):814–820.PubMedCrossRefGoogle Scholar
  106. 106.
    Richardson MA, Post-White J, Grimm EA, Moye LA, Singletary SE, Justice B. Coping, life attitudes, and immune responses to imagery and group support after breast cancer treatment. Altern Ther Health Med. 1997;3(5):62–70.PubMedGoogle Scholar
  107. 107.
    Cameron LD, Booth RJ, Schlatter M, Ziginskas D, Harman JE, Benson SR. Cognitive and affective determinants of decisions to attend a group psychosocial support program for women with breast cancer. Psychosom Med. 2005;67(4):584–589.PubMedCrossRefGoogle Scholar
  108. 108.
    Yates JS, Mustian KM, Morrow GR, et al. Prevalence of complementary and alternative medicine use in cancer patients during treatment. Support Care Cancer. 2005;13:806–811.PubMedCrossRefGoogle Scholar
  109. 109.
    Dy GK, Bekele L, Hanson LJ, et al. Complementary and alternative medicine use by patients enrolled onto phase I clinical trials. J Clin Oncol. 2004;22(23):4810–4815.PubMedCrossRefGoogle Scholar
  110. 110.
    Hedderson MM, Patterson RE, Neuhouser ML, et al. Sex differences in motive for use of complementary and alternative medicine among cancer patients. Altern Ther Health Med. 2004;10(5):58–64.PubMedGoogle Scholar
  111. 111.
    Henderson JW, Donatelle RJ. Complementary and alternative medicine use by women after completion of allopathic treatment for breast cancer. Altern Ther Health Med. 2004;10(1):52–57.PubMedGoogle Scholar
  112. 112.
    Navo MA, Phan J, Vaughan C, et al. An assessment of the utilization of complementary and alternative medication in women with gynecologic or breast malignancies. J Clin Oncol. 2004;22(4):671–677.PubMedCrossRefGoogle Scholar
  113. 113.
    Cui Y, Shu XO, Gao Y, et al. Use of complementary and alternative medicine by Chinese women with breast cancer. Breast Cancer Res Treat. 2004;85(3):263–270.PubMedCrossRefGoogle Scholar
  114. 114.
    Harris P, Finlay IG, Cook A, Thomas KJ, Hood K. Complementary and alternative medicine use by patients with cancer in Wales: a cross sectional survey. Complement Ther Med. 2003;11(4):249–253.PubMedCrossRefGoogle Scholar
  115. 115.
    Hyodo I, Amano N, Eguchi K, et al. Nationwide survey on complementary and alternative medicine in cancer patients in Japan. J Clin Oncol. 2005;23(12):2645–2654.PubMedCrossRefGoogle Scholar
  116. 116.
    Rakovitch E, Pignol JP, Chartier C, et al. Complementary and alternative medicine use is associated with an increased perception of breast cancer risk and death. Breast Cancer Res Treat. 2005;90(2):139–148.PubMedCrossRefGoogle Scholar
  117. 117.
    Nagel G, Hoyer H, Katenkamp D. Use of complementary and alternative medicine by patients with breast cancer: observations from a health-care survey. Support Care Cancer. 2004;12(11):789–796.PubMedCrossRefGoogle Scholar
  118. 118.
    Pud D, Kaner E, Morag A, Ben-Ami S, Yaffe A. Use of complementary and alternative medicine among cancer patients in Israel. Eur J Oncol Nurs. 2005;9(2):124–130.PubMedCrossRefGoogle Scholar
  119. 119.
    Molassiotis A, Marguiles A, Fernandez-Ortega P, et al. Complementary and alternative medicine use in patients with haematological malignancies in Europe. Complement Ther Clin Pract. 2005;11(2):105–110.PubMedCrossRefGoogle Scholar
  120. 120.
    Hana G, Bar-Sela G, Zhana D, Mashiach T, Robinson E. The use of complementary and alternative therapies by cancer patients in northern Israel. Isr Med Assoc J. 2005;7(4):243–247.PubMedGoogle Scholar
  121. 121.
    Hann D, Baker F, Denniston M, Entrekin N. Long-term breast cancer survivors’ use of complementary therapies: perceived impact on recovery and prevention of recurrence. Integr Cancer Ther. 2005;4(1):14–20.PubMedCrossRefGoogle Scholar
  122. 122.
    Rosenbaum E, Gautier H, Fobair P, et al. Cancer supportive care, improving the quality of life for cancer patients. A program evaluation report. Support Care Cancer. 2004;12(5):293–301.PubMedCrossRefGoogle Scholar
  123. 123.
    Herman PM, Craig BM, Caspi O. Is complementary and alternative medicine (CAM) cost-effective? A systematic review. BMC Complement Altern Med. 2005;5:11.PubMedCrossRefGoogle Scholar
  124. 124.
    de Boer MF, Pruyn JF, van den Borne B, Knegt PP, Ryckman RM, Verwoerd CD. Rehabilitation outcomes of long-term survivors treated for head and neck cancer. Head Neck. 1995;17(6):503–515.PubMedCrossRefGoogle Scholar
  125. 125.
    Relic A, Mazemda P, Arens C, Koller M, Glanz H. Investigating quality of life and coping resources after laryngectomy. Eur Arch Otorhinolaryngol. 2001;258(10):514–517.PubMedCrossRefGoogle Scholar
  126. 126.
    Wimberly SR, Carver CS, Laurenceau JP, Harris SD, Antoni MH. Perceived partner reactions to diagnosis and treatment of breast cancer: impact on psychosocial and psychosexual adjustment. J Consult Clin Psychol. 2005;73(2):300–311.PubMedCrossRefGoogle Scholar
  127. 127.
    Northouse LL, Swain MA. Adjustment of patients and husbands to the initial impact of breast cancer. Nurs Res. 1987;36(4):221–225.PubMedCrossRefGoogle Scholar
  128. 128.
    Northouse LL, Templin T, Mood D, Oberst M. Couples’ adjustment to breast cancer and benign breast disease: a longitudinal analysis. Psychooncology. 1998;7(1):37–48.PubMedCrossRefGoogle Scholar
  129. 129.
    Northouse LL, Schafer JA, Tipton J, Metivier L. The concerns of patients and spouses after the diagnosis of colon cancer: a qualitative analysis. J Wound Ostomy Continence Nurs. 1999;26(1):8–17.PubMedGoogle Scholar
  130. 130.
    Northouse LL, Templin T, Mood D. Couples’ adjustment to breast disease during the first year following diagnosis. J Behav Med. 2001;24(2):115–136.PubMedCrossRefGoogle Scholar
  131. 131.
    Cliff AM, MacDonagh RP. Psychosocial morbidity in prostate cancer: II. a comparison of patients and partners. BJU Int. 2000;86(7):834–839.PubMedCrossRefGoogle Scholar
  132. 132.
    Tuinstra J, Hagedoorn M, Van Sonderen E, et al. Psychological distress in couples dealing with colorectal cancer: gender and role differences and intracouple correspondence. Br J Health Psychol. 2004;9:465–478.PubMedCrossRefGoogle Scholar
  133. 133.
    Dorval M, Guay S, Mondor M, et al. Couples who get closer after breast cancer: frequency and predictors in a prospective investigation. J Clin Oncol. 2005;23(15):3588–3596.PubMedCrossRefGoogle Scholar
  134. 134.
    Bultz BD, Speca M, Brasher PM, Geggie PH, Page SA. A randomized controlled trial of a brief psychoeducational support group for partners of early stage breast cancer patients. Psychooncology. 2000;9(4):303–313.PubMedCrossRefGoogle Scholar
  135. 135.
    Neuling SJ, Winefield HR. Social support and recovery after surgery for breast cancer: frequency and correlates of supportive behaviours by family, friends and surgeon. Soc Sci Med. 1988;27(4):385–392.PubMedCrossRefGoogle Scholar
  136. 136.
    Bloom J, Fobair P, Spiegel D, Cox RS, Varghese A, Hoppe R. Social supports and the social well-being of cancer survivors. Advances Med-Soc. 1991;2:95–114.Google Scholar
  137. 137.
    Bloom JR, Stewart SL, Johnston M, Banks P, Fobair P. Sources of support and the physical and mental well-being of young women with breast cancer. Soc Sci Med. 2001;53(11):1513–1524.PubMedCrossRefGoogle Scholar
  138. 138.
    Johnson SM, Talitman E. Predictors of success in emotionally focused marital therapy. J Marital Fam Ther. 1997;23(2):135–152.PubMedCrossRefGoogle Scholar
  139. 139.
    Johnson SM, Williams-Keeler L. Creating healing relationships for couples dealing with trauma: the use of emotionally focused marital therapy. J Marital Fam Ther. 1998;24(1):25–40.PubMedCrossRefGoogle Scholar
  140. 140.
    Johnson SM, Makinen JA, Millikin JW. Attachment injuries in couple relationships: a new perspective on impasses in couples therapy. J Marital Fam Ther. 2001;27(2):145–155.PubMedCrossRefGoogle Scholar
  141. 141.
    Gruber U, Fegg M, Buchmann M, Kolb HJ, Hiddemann W. The long-term psychosocial effects of haematopoetic stem cell transplantation. Eur J Cancer Care (Engl). 2003;12(3):249–256.CrossRefGoogle Scholar
  142. 142.
    Edman L, Larsen J, Hagglund H, Gardulf A. Health-related quality of life, symptom distress and sense of coherence in adult survivors of allogeneic stem-cell transplantation. Eur J Cancer Care (Engl). 2001;10(2):124–130.CrossRefGoogle Scholar
  143. 143.
    Duell T, van Lint MT, Ljungman P, et al. Health and functional status of long-term survivors of bone marrow transplantation. EBMT Working Party on Late Effects and EULEP Study Group on Late Effects. European Group for Blood and Marrow Transplantation. Ann Intern Med. 1997;126(3):184–192.PubMedGoogle Scholar
  144. 144.
    Weis J, Koch U, Geldsetzer M. Changes in occupational status following cancer. An empirical study on occupational rehabilitation. Soz Praventivmed. 1992;37(2):85–95.PubMedCrossRefGoogle Scholar
  145. 145.
    Nordstron G, Myman CR, Theorell T. The impact on work ability of ileal conduit urinary diversion. Scand J Soc Med. 1990;18(2):115–124.Google Scholar
  146. 146.
    Demin E. The Problems of the work rehabilitation of breast cancer patients after radical treatment. Vopr Onkol. 1989;35(11):1365–1370.PubMedGoogle Scholar
  147. 147.
    Fobair P, Bloom J, Hoppe R, Varghese A, Cox R, Speigel D. Work Patterns Among Long-term Survivors of Hodgkin’s Disease. New York: Praeger; 1989.Google Scholar
  148. 148.
    Bloom JGR, Fobair P, Hoppe R, Cox R, Varghese A, Spiegel D. Physical performance at work and at leisure: validation of a measure of biological energy in survivors of Hodgkin’s disease. J Psychosocial Oncol. 1990;8(1):49–63.CrossRefGoogle Scholar
  149. 149.
    Maunsell E, Brisson C, Dubois L, Lauzier S, Fraser A. Work problems after breast cancer: an exploratory qualitative study. Psychooncology. 1999;8(6):467–473.PubMedCrossRefGoogle Scholar
  150. 150.
    Hays DM, Landsverk J, Sallan SE, et al. Educational, occupational, and insurance status of childhood cancer survivors in their fourth and fifth decades of life. J Clin Oncol. 1992;10(9):1397–1406.PubMedGoogle Scholar
  151. 151.
    Fobair P. Quality of Life in People with Hodgkin’s Disease. Oncology. 1993;7(8):50–52.Google Scholar
  152. 152.
    Fobair P. Cancer Support Groups and Group Therapies. Washington, DC: NASW Press; 1998.Google Scholar
  153. 153.
    Brady MJ, Peterman AH, Fitchett G, Mo M, Cella D. A case for including spirituality in quality of life measurement in oncology. Psychooncology. 1999;8(5):417–428.PubMedCrossRefGoogle Scholar
  154. 154.
    Degner LF, Hack T, O’Neil J, Kristjanson LJ. A new approach to eliciting meaning in the context of breast cancer. Cancer Nurs. 2003;26(3):169–178.PubMedCrossRefGoogle Scholar
  155. 155.
    Johnson Vickberg SM, Duhamel KN, Smith MY, et al. Global meaning and psychological adjustment among survivors of bone marrow transplant. Psychooncology. 2001;10(1):29–39.PubMedCrossRefGoogle Scholar
  156. 156.
    Levine & Targ, 2002.Google Scholar
  157. 157.
    Andrykowski MA, Bishop MM, Hahn EA, et al. Long-term health-related quality of life, growth, and spiritual well-being after hematopoietic stem-cell transplantation. J Clin Oncol. 2005;23(3):599–608.PubMedCrossRefGoogle Scholar
  158. 158.
    Dow KF, Ferrell BR, Haberman MR, Eaton L. The meaning of quality of life in cancer survivorship. Oncology Nursing Forum. 1999;26(3):519–528.PubMedGoogle Scholar
  159. 159.
    Coward DD, Kahn DL. Resolution of spiritual disequilibrium by women newly diagnosed with breast cancer. Oncol Nurs Forum. 2004;31(2):E24–31.PubMedGoogle Scholar
  160. 160.
    Oh S, Heflin L, Meyerowitz BE, Desmond KA, Rowland JH, Ganz PA. Quality of life of breast cancer survivors after a recurrence: a follow-up study. Breast Cancer Res Treat. 2004;87(1):45–57.PubMedCrossRefGoogle Scholar
  161. 161.
    Houck K, Avis NE, Gallant JM, Fuller AF Jr., Goodman A. Quality of life in advanced ovarian cancer: identifying specific concerns. J Palliat Med. 1999;2(4):397–402.PubMedCrossRefGoogle Scholar
  162. 162.
    McClement S. Cancer anorexia-cachexia syndrome: psychological effect on the patient and family. J Wound Ostomy Continence Nurs. 2005;32(4):264–268.PubMedGoogle Scholar
  163. 163.
    Grumann MM, Spiegel D. Living in the face of death: Interviews with 12 terminally ill women on home hospice care. Palliative and Supportive Care. 2003;1(1):23–32.PubMedCrossRefGoogle Scholar
  164. 164.
    AOSW AoOSW. Oncology Social Work Tool Box. Washington DC: AOSW; 2001.Google Scholar
  165. 165.
    Fobair P. Program planning for cancer patients. Paper presented at: The American Cancer Society Third National Conference on Human Values & Cancer; 1981, Washington, DC.Google Scholar
  166. 166.
    Spiegel D, Classen C. Group Therapy for Cancer Patients: A Research-based Handbook of Psychosocial Care. New York: Basic Books; 2000.Google Scholar
  167. 167.
    Fobair P. Cancer support groups and group therapies. Part II: Process, organizational, leadership, and patient Issues. Journal of Psychosocial Oncology. 1997;15(3/4):123–147.CrossRefGoogle Scholar
  168. 168.
    van Wegberg B, Lienhard A, Andrey M. Does a psychosocial group intervention program alter the quality of life of cancer patients? Schweiz Med Wochenschr. 2000;130(6):177–185.PubMedGoogle Scholar
  169. 169.
    Miller DK, Chibnall JT, Videen SD, Duckro PN. Supportive-affective group experience for persons with life-threatening illness: reducing spiritual, psychological, and death-related distress in dying patients. J Palliat Med. 2005;8(2):333–343.PubMedCrossRefGoogle Scholar
  170. 170.
    Begoun A. Ten Questions for Reclaiming Your Life After Breast Cancer. Palo Alto: Community Breast Health Project; 2004.Google Scholar
  171. 171.
    Giese-Davis J, Koopman C, Butler LD, et al. Change in emotion-regulation strategy for women with metastatic breast cancer following supportive-expressive group therapy. J Consult Clin Psychol. 2002;70(4):916–925.PubMedCrossRefGoogle Scholar
  172. 172.
    Fobair P, Koopman C, DiMiceli S, et al. Psychosocial intervention for lesbians with primary breast cancer. Psychooncology. 2002;11(5):427–438.PubMedCrossRefGoogle Scholar
  173. 173.
    Mestenhauser JA. Traveling the Unpaved Road to Democracy from Communism: A cross-cultural perspective on change. Minneapolis/St. Paul: College of Education and Human Development, Department of Educational Policy and Administration, University of Minnesota; 1996.Google Scholar
  174. 174.
    Schnipper HH. Life after breast cancer. J Clin Oncol. 2003; 21(suppl 9):104–107.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2007

Authors and Affiliations

  • Patricia Fobair
    • 1
  1. 1.Supportive Program, Cancer CenterStanford University HospitalStanfordUSA

Personalised recommendations