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Angus DC, Barnato AE, Linde-Zwirble WT, et al (2004) Use of intensive care at the end of life in the United States: An epidemiologic study. Crit Care Med 32:638–643
Danis M, Patrick DL, Southerland LI, Green ML (1988) Patients’ and families’ preferences for medical intensive care. JAMA 260:797–802
The SUPPORT Principal Investigators (1996) A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 274:1591–1598
Hofmann JC, Wenger NS, Davis RB, et al (1997) Patients’ preferences for communication with physicians about end-of-life decisions. Ann Intern Med 127:1–12
Nelson JE, Meier D, Oei EJ, et al (2001) Self-reported symptom experience of critically ill cancer patients receiving intensive care. Crit Care Med 29:277–282
Azoulay E, Chevret S, Leleu G, et al (2000) Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 28:3044–3049
Kirchhoff KT, Walker L, Hutton A, Spuhler V, Cole BV, Clemmer T (2002) The vortex: families’ experiences with death in the intensive care unit. Am J Crit Care 11:200–209
Azoulay E, Pochard F, Chevret S, et al (2001) Meeting the needs of intensive care unit patient families: a multicenter study. Am J Respir Crit Care Med 163:135–139
Singer PA, Siegler M (1992). Advancing the cause of advance directives. Arch Intern Med 152:22–24
Emanuel LL, Barry MJ, Stoeckle JD, Ettelson LM, Emanuel EJ (1991) Advance directives for medical care-a case for greater use. N Engl J Med 324:889–895
Schneiderman LJ, Kronick R, Kaplan RM, Anderson JP, Langer RD (1992) Effects of offering advance directives on medical treatment and costs. Ann Intern Med 117:599–606
Danis M, Southerland LI, Garrett JM, et al (1991) A prospective study of advance directives for life-sustaining care. N Engl J Med 324:882–888
Teno JM, Lynn J, Connors AFJ, et al (1997) The illusion of end-of-life savings with advance directives. J Am Geriatr Soc 45:513–518
Teno JM, Lynn J, Wegner N, et al (1997) Advance directives for seriously ill hospitalized patients: Effectiveness with the Patient Self-Determination Act and the SUPPORT Intervention. J Am Geriatr Soc 45:500–507
Teno JM (2001) Advance care planning in the outpatient and ICU setting. In: Curtis JR, Rubenfeld GD (eds) Managing Death in the Intensive Care Unit: The Transition from Cure to Comfort. Oxford University Press, New York
Grenvik A (1983) “Terminal weaning”; discontinuance of life-support therapy in the terminally ill patient. Crit Care Med 11:394–395
Cassem NH (1974) Confronting the decision to let death come. Crit Care Med 2:113–117
Lo B (1995) Resolving Ethical Dilemmas: A Guide For Clinicians. Williams & Wilkins, Baltimore
Curtis JR, Park DR, Krone MR, Pearlman RA (1995) Use of the medical futility rationale in do-not-attempt-resuscitation orders. JAMA 273:124–128
Schneiderman LJ, Jecker NS (1993) Futility in practice. Arch Intern Med 153:437–441
Helft PR, Siegler M, Lantos J (2000) The rise and fall of the futility movement. N Engl J Med 343:293–296
Truog RD, Brett AS, Frader J (1992) The problem with futility. N Engl J Med 326:1560–1564
Sulmasy DP, Pellegrino ED (1999) The rule of double effect: Clearing up the double talk. Arch Intern Med 159:545–550
Luce JM, Lemaire F (2001) Two transatlantic viewpoints on an ethical quandary. Am J Respir Crit Care Med 163:818–821
Beauchamp TL (1989) Principles Of Biomedical Ethics. Oxford University Press, NewYork, pp 147–150
The Hastings Center (1987) Guidelines on the termination of life-sustaining treatment and the care of the dying. The Hastings Center, Briarcliff Manor
American Thoracic Society (1991) Withholding and withdrawing life-sustaining therapy. Ann Intern Med 115:478–485
American College of Chest Physicians/ Society of Critical Care Medicine Consensus Panel (1990) Ethical and moral guidelines for the initiation, continuation, and withdrawal of intensive care. Chest 97:949–958
Sulmasy DP, Sugarman J (1994) Are withholding and withdrawing therapy always morally equivalent? J Med Ethics 20:218–222
Melltorp G, Nilstun T (1997) The difference between withholding and withdrawing life-sustaining treatment. Intensive Care Med 23:1264–1267
Bleich JD (1979) The Quinlan Case: A Jewish Perspective. In: Rosner F, Bleich JD (eds) Jewish Bioethics. Sanhedrin Press, New York pp 266–276
Solomon M, O’Donnell L, Jennings B, et al (1993) Decisions near the end of life: Professionals views on life-sustaining treatments. Am J Public Health 83:14–23
Cook DJ, Guyatt GH, Jaeschke R, et al (1995) Determinants in Canadian health care workers of the decision to withdraw life support from the critically ill. JAMA 273:703–708
Prendergast TJ, Claessens MT, Luce JM (1998) A national survey of end-of-life care for critically ill patients. Am J Respir Crit Care Med 158:1163–1167
Vincent JL (1999) Forgoing life support in western European intensive care units: results of an ethical questionnaire. Crit Care Med 16:1626–1633
Sprung CL, Cohen SL, Sjokvist P, et al (2003) End-of-life practices in European intensive care units: the Ethicus Study. JAMA 290:790–797
Curtis JR, Bennett CL, Horner RD, Rubenfeld GD, DeHovitz JA, Weinstein RA (1998) Variations in ICU utilization for patients with HIV-related Pneumocystis carinii pneumonia: Importance of hospital characteristics and geographic location. Crit Care Med 26:668–675
Engelhardt HT Jr (1998) Critical care: why there is no global bioethics. J Med Philos 23:643–651
Thompson BT, Cox PN, Antonelli M, et al (2004) Challenges in end-of-life care in the ICU: Statement of the 5th International Concensus Conference in Critical Care: Brussels, Belgium, April 2003: executive summary. Crit Care Med 32:1781–1784
Hickey M (1990) What are the needs of families of critically ill patients? A review of the literature since 1976. Heart Lung 19:401–415
Prochard F, Azoulay E, Chevret S, et al (2001) Symptoms of anxiety and depression in family members of intensive care unit patients: Ethical hypothesis regarding decision-making capacity. Crit Care Med 29:1893–1897
Swigart V, Lidz C, Butterworth V, Arnold R (1996) Letting go: family willingness to forgo life support. Heart Lung 25:483–494
Curtis JR, Engelberg RA, Wenrich MD, et al (2002) Studying communication about end-of-life care during the ICU family conference: Development of a framework. J Crit Care 17:147–160
McDonagh JR, Elliott TB, Engelberg RA, et al (2004) Family satisfaction with family conferences about end-of-life care in the ICU: Increased proportion of family speech is associated with increased satisfaction. Crit Care Med 32:1484–1488
Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD (2005) Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med 171:844–849
Abbott KH, Sago JG, Breen CM, Abernethy AP, Tulsky JA (2001) Families looking back: one year after discussion of withdrawal or withholding of life-sustaining support. Crit Care Med 29:197–201
Breen CM, Abernethy AP, Abbott KH, Tulsky JA (2001) Conflict associated with decisions to limit life-sustaining treatment in intensive care units. J Gen Intern Med 16:283–289
Tilden VP, Tolle SW, Garland MJ, Nelson CA (1995) Decisions about life-sustaining treatment: Impact of physicians’ behaviors on the family. Arch Intern Med 155:633–638
Asch DA, Shea JA, Jedrziewski MK, Bosk CL (1997) The limits of suffering: critical care nurses’ views of hospital care at the end of life. Soc Sci Med 45:1661–1668
Meltzer LS, Huckabay LM (2004) Critical care nurses’ perceptions of futile care and its effect on burnout. Am J Crit Care 13:202–208
Prendergast TJ, Luce JM (1997) Increasing incidence of withholding and withdrawal of life support from the critically ill. Am J Respir Crit Care Med 155:15–20
Smedira NG, Evans BH, Grais LS, et al (1990) Withholding and withdrawal of life support from the critically ill. N Engl J Med 322:309–315
Vincent JL, Parquier JN, Preiser JC, Brimioulle S, Kahn RJ (1989) Terminal events in the intensive care unit: Review of 258 fatal cases in one year. Crit Care Med 17:530–533
Eidelman LA, Jakobson DJ, Pizov R, Geber D, Leibovitz L, Sprung CL(1998) Foregoing life-sustaining treatment in an Israeli ICU. Intensive Care Med 24:162–166
Keenan SP, Busche KD, Chen LM, McCarthy L, Inman KJ, Sibbald WJ (1997) A retrospective review of a large cohort of patients undergoing the process of withholding or withdrawal of life support. Crit Care Med 22:1020–1025
Cook D, Rocker G, Marshall J, et al (2003) Withdrawal of mechanical ventilation in anticipation of death in the intensive care unit. N Engl J Med 349:1123–1132
Christakis NA Asch DA(1995) Physician characteristics associated with decisions to withdraw life support. Am J Public Health 85:367–372
Lo B (1995) Improving care near the end of life: Why is it so hard? JAMA 274:1634–1636
Schneiderman LJ, Gilmer T, Teetzel HD (2000) Impact of ethics consultations in the intensive care setting: a randomized, controlled trial. Crit Care Med 28:3920–3924
Schneiderman LJ, Gilmer T, Teetzel HD, et al (2003) Effect of ethics consultations on nonbeneficial life-sustaining treatments in the intensive care setting: a randomized controlled trial. JAMA 290:1166–1172
Campbell ML, Guzman JA (2003) Impact of a proactive approach to improve end-of-life care in a medical ICU. Chest 123:266–271
Campbell ML, Guzman JA (2004) A proactive approach to improve end-of-life care in a medical intensive care unit for patients with terminal dementia. Crit Care Med 32:1839–1843
Treece PD, Engelberg RA, Crowley L, et al (2004) Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Crit Care Med 32:1141–1148
Levy CR, Ely EW, Bowman C, Engelberg RA, Patrick DL, Curtis JR (2005) Quality of dying and death in the ICU: perceptions of family and clinicians. Chest 127:1775–1783
Hodde NM, Engelberg RA, Treece PD, Steinberg KP, Curtis JR (2004) Factors associated with nurse assessment of the quality of dying and death in the intensive care unit. Crit Care Med 32:1648–1653
Lilly CM, De Meo DL, Sonna LA, et al (2000) An intensive communication intervention for the critically ill. Am J Med 109:469–475
Lilly CM, Sonna LA, Haley KJ, Massaro AF (2003) Intensive communication: four-year follow-up from a clinical practice study. Crit Care Med 31:S394–399
Hall RI, Rocker GM, Murray D (2004) Simple changes can improve conduct of end-of-life care in the intensive care unit. Can J Anaesth 51:631–636
Aulisio MP, Chaitin E, Arnold RM (2004) Ethics and palliative care consultation in the intensive care unit. Crit Care Clin 20:505–523
Curtis JR, Patrick DL, Engelberg RA, Norris KE, Asp CH, Byock IR (2002) A measure of the quality of dying and death: Initial validation using after-death interviews with family members. J Pain Symptom Manage 24:17–31
Patrick DL, Curtis JR, Engelberg RA, Neilsen E, McCown E (2003) Measuring and improving the quality of dying and death. Ann Intern Med 139:410–415
Mularski RA, Curtis JR, Osborne ML, Engelberg RA, Ganzini L (2004) Agreement among family members in their assessment of the quality of dying and death. J Pain Symptom Manage 28:306–315
Heyland DK, Rocker GM, Dodek PM, et al (2002) Family satisfaction with care in the intensive care unit: results of a multiple center study. Crit Care Med 30:1413–1418
Baker R, Wu AW, Teno JM, et al (2000) Family Satisfaction with End-of-Life Care in Seriously Ill Hospitalized Adults. J Am Geriatr Soc 48:S61–S69
Johnson D, Wilson M, Cavanaugh B, Bryden C, Gudmundson D, Moodley O (1998) Measuring the ability to meet family needs in an intensive care unit. Crit Care Med 26:266–27
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Curtis, J.R. (2006). Ethics and End-of-life Care. In: Fink, M.P., Suter, P.M., Sibbald, W.J. (eds) Intensive Care Medicine in 10 Years. Update in Intensive Care and Emergency Medicine, vol 43. Springer, Berlin, Heidelberg. https://doi.org/10.1007/3-540-29730-8_26
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