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Problems in the Care of the Terminally Ill

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Summary

In summary, there are certain critical considerations this chapter has tried to sketch. Among these are cultural and historical differences in thinking about death and the stages of dying; the difference between life as a biological and life as a cognitive, selfrealizing, and self-actualizing state and the ethical implications such considerations may have; various forms of acognitive states; problems of limiting therapy and of artificial feeding; suicide and euthanasia; and problems of futility. Central to all of these issues is the issue of orchestrating death and in so doing communicating with patients and with their families. Healthcare professionals—no matter what their role or area of practice—should seek to have an ongoing dialogue with their patients and with their patients’ families. If they do this, if they share their fallibility, their humanity, and their agony with the patient and with their patient’s families (instead of acting like remote gods), many of these issues will be much easier to deal with than they often are today.

Herr, lehre Du mich, daβ ein Ende mit mir haben muβ, und daβ mein Sein ein Sinn hat eh ich davon muβ, eh ich davon muβ Brahms — A German Requiem

Oh Lord, teach me that my life must come to an end And that, ere I depart, my existence must have had aim and purpose Translated EHL

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References

  1. Rachels J. The End of Life. New York, NY: Oxford University Press, 1986.

    Google Scholar 

  2. Kushner T. Having a life versus being alive. J Med Ethics. 1984;1:5–8.

    Google Scholar 

  3. Ariès P. ĽHomme Devant la Mort. Paris; Édition du Seuil, 1977.

    Google Scholar 

  4. Lattimore R (trans). The Odyssey of Homer. New York, NY: Harper & Row, 1967.

    Google Scholar 

  5. Carrick P. Medical Ethics in Antiquity. Dordrecht, the Netherlands: D. Reidel, 1985.

    Google Scholar 

  6. Plato; Rouse WH, trans. In: Warmington EH, Rouse PS, eds. Great Dialogues of Plato. New York, NY: American Library, 1956;460–521.

    Google Scholar 

  7. Cullman O. Immortality of the soul or resurrection of the dead. In: Stendhal K, ed. Immortality and Resurrection. New York, NY: Macmillan, 1965;132–164.

    Google Scholar 

  8. Kübler-Ross E. On Death and Dying. New York, NY: Macmillan, 1969.

    Google Scholar 

  9. Pearlman R, Speer J Jr. Quality of life considerations in geriatric care. J Am Geriatr Soc. 1983;31(2):113–130.

    CAS  PubMed  Google Scholar 

  10. Pellegrino ED, Thomasma DC. For the Patient’s Good: The Restoration of Beneficence in Health Care. New York, NY: Oxford University Press, 1988.

    Google Scholar 

  11. Blackhall LJ. Must we always use CPR? N Eng J Med. 1987;20:1281–1284.

    Google Scholar 

  12. Amundsen DW. The physician’s obligation to prolong life: a medical duty without classical roots. Hastings Center Report. 1978;8(4):23–31.

    CAS  PubMed  Google Scholar 

  13. Pariser JJ. Comfort measures only for DNR orders. Conn Med. 1982;46(4):195–199.

    Google Scholar 

  14. Loewy EH. Patient, family, physician: agreement, disagreement, and resolution. Family Med. 1986;18(6):375–378.

    CAS  Google Scholar 

  15. Meisel A. Legal myths about terminating life support. Arch Intern Med. 1991;151: 1497–1501.

    Article  CAS  PubMed  Google Scholar 

  16. Bedell SE, Delbanco TL, Cook EF, et al. Survival after cardiopulmonary resuscitation in the hospital. N Engl J Med. 1983;309:569–576.

    CAS  PubMed  Google Scholar 

  17. Husebö S, Klascjik E. Palliativmedizin: praktische Einführung in Symptomkontrolle, Ethik und Kommunikation. Berlin, Germany: Springer Verlag, 2001.

    Google Scholar 

  18. Stollerman GH. Decisions to leave home. J Am Geriatr Soc. 1988;36:375–376.

    CAS  PubMed  Google Scholar 

  19. Loewy EH. Decisions not to leave home: and what will the neighbors say? J Am Geriatr Soc. 1988;36:1143–1146.

    CAS  PubMed  Google Scholar 

  20. Rossman I. The geriatrician and the homebound patient. J Am Geriatr Soc. 1988;36:348–354.

    CAS  PubMed  Google Scholar 

  21. Stollerman GH. Lovable decisions: re-humanizing dying. J Am Geriatr Soc. 1986;34:172.

    CAS  PubMed  Google Scholar 

  22. Kübler-Ross, E. On Death and Dying. NY: Macmillan Publishing, 1969.

    Google Scholar 

  23. National Hospice and Palliative Care Organization (formerly the National Hospice Organization) web site, facts and figures section.

    Google Scholar 

  24. Hilfiker D. Allowing the debilitated to die: facing our ethical choices. N Engl J Med. 1983;308:716–719.

    CAS  PubMed  Google Scholar 

  25. Loewy EH. Treatment decisions in the mentally impaired: limiting but not abandoning treatment. N Engl J Med. 1987;317:1465–1469.

    CAS  PubMed  Google Scholar 

  26. Daugherty JH, Rawlinson DG, Levy DE, et al. Hypoxic-ischemic brain injury and the vegetative state: clinical and neuropathological correlation. Neurology 1981;31:991–997.

    Google Scholar 

  27. Plum F, Posner J. The Diagnosis of Stupor and Coma, 3rd ed. Philadelphia, Pa: F.A. Davis, 1983.

    Google Scholar 

  28. Plum F, Posner JB. Disturbances of consciousness and arousal. In: Wyngaarden JB, Smith JB, eds. Cecil’s Textbook of Medicine, 20th ed. Philadelphia, Pa: W.B. Saunders, 1993;2061–2076.

    Google Scholar 

  29. President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Defining Death: A Report on the Medical, Legal, and Social Issues in the Determination of Death. Washington, DC: U.S. Government Printing Office, 1982.

    Google Scholar 

  30. Jonas H. Das Prinzip Verantwortung; and Jonas H. Technik, Medizin und Ethik. Frankfurt: Suhrkamp, 1987.

    Google Scholar 

  31. Jonas H. Against the stream. In: Jonas H, ed. Philosophical Essays: From Ancient Creed to Technological Man. Englewood Cliffs, NJ: Prentice Hall, 1974.

    Google Scholar 

  32. Jonas H. The right to die. Hastings Center Report. 1978;8(4):31–36.

    CAS  PubMed  Google Scholar 

  33. Ramsey P. The Patient as Person. New Haven, Conn: Yale University Press, 1970.

    Google Scholar 

  34. Capron AM. Ironics and tensions in feeding the dying. Hastings Center Report. 1984;14(5):32–35. Also see footnote 38.

    CAS  PubMed  Google Scholar 

  35. Meilander G. Removing food and water: against the stream. Hastings Center Report. 1984;14(6):11–13.

    Google Scholar 

  36. Callahan D. On feeding the dying. Hastings Center Report. 1984;14(6):22.

    Google Scholar 

  37. Derr PG. Why food and fluids can never be denied. Hastings Center. 1984;16(1): 28–30. Also see footnote 36.

    Google Scholar 

  38. Lynn J, Childress JF. Must patients always be given food and water? Hastings Center Report. 1983;13(5):17–21.

    CAS  PubMed  Google Scholar 

  39. Sanders DS, et al. Survival analysis in PEG: a worse outcome in patients with dementia. Am J Gastroenterology 2000; 95(6):1472–1475.

    Article  CAS  Google Scholar 

  40. Callahan CM, et al. Outcomes of PEG among adults in a community setting. J Am Geriat Soc.

    Google Scholar 

  41. Sanders, DS et al. PEG: a prospective audit of the impact of guidelines in two district hospital. Am J Gastroenterology 2002, 97(9):2239–2250.

    Article  CAS  Google Scholar 

  42. Winter SM. Terminal Nutrition. Am J Med. 2000, 109(9):740–741.

    Article  Google Scholar 

  43. Wanzer SH, Adelstein SJ, Cranford RE. The physician’s responsibility toward hopelessly ill patients. N Engl J Med. 1984;310(15):955–959.

    CAS  PubMed  Google Scholar 

  44. Towers B. Irreversible coma and withdrawal of life support: is it murder if the IV line is disconnected? J Med Ethics. 1982;8(4):203–205.

    CAS  PubMed  Google Scholar 

  45. Steinbock B. The removal of Mr. Herbert’s feeding tube. Hastings Center Report. 1983;13(5):13–16.

    CAS  PubMed  Google Scholar 

  46. Green W. Setting boundaries for artificial feeding. Hastings Center Report. 1984;14(6):8–10.

    CAS  PubMed  Google Scholar 

  47. Annas GJ. Do feeding tubes have more rights than patients? Hastings Center Report. 1986;16(1):26–28.

    Google Scholar 

  48. Paris JJ. When burdens of feeding outweigh benefits. Hastings Center Report. 1986;16(1):30–32.

    CAS  PubMed  Google Scholar 

  49. Amundsen DW. History of medical ethics: ancient Near-East. In: Reich WT, ed. Encyclopedia of Bioethics. New York, NY: Macmillan, 1978.

    Google Scholar 

  50. Battin M. Ethical Issues in Suicide. Philadelphia, PA: Prentice Hall, 1994.

    Google Scholar 

  51. Klemperer V. Lingua Tertii Imperii: Notizbuch eines Philologen. Leipzig, Deutschland, Reclam, 1975.

    Google Scholar 

  52. Loewy EH. Healing and killing, harming and not harming: physician participation in euthanasia and capital punishment. J Clin Ethics. 1992;3(1):29–34.

    CAS  PubMed  Google Scholar 

  53. Pius XII. The prolongation of life. Pope Speaks. 1958;4(4):393–398.

    Google Scholar 

  54. Trammel R. Saving life and taking life. J Phil. 1975;72:131–137.

    Google Scholar 

  55. Rachels J. Active and passive euthanasia. N Engl J Med. 1975;292(2):78–80.

    CAS  PubMed  Google Scholar 

  56. Gaylin W, Kass LR, Pellegrino ED, et al. Doctors must not kill. JAMA. 1988;259: 2139–2140.

    Article  CAS  PubMed  Google Scholar 

  57. Steinbrook R. Physician assisted suicide in Oregon—an uncertain future. NEJM 2002; 346(6):460–464.

    Article  PubMed  Google Scholar 

  58. Hedberg K, et al. Legalized physician assisted suicide in Oregon. 2001, 2002;N Engl J Med. 346:450–452.

    Google Scholar 

  59. Back AL, et al. Physician assisted suicide in Washington State: Patient Requests and Physician Responses. JAMA 1996; 275(12):919–923.

    Article  CAS  PubMed  Google Scholar 

  60. Loewy EH, Loewy RS. he Ethics of Terminal Care: Orchestrating the End of Life. New York, NY: Plenum/Kluwer; 2001.

    Google Scholar 

  61. Freedman B. Offering truth. Arch Intern Med. 1993;153:572–576.

    Article  CAS  PubMed  Google Scholar 

  62. Cassel E. The function of medicine. Hastings Center Report. 1977;7(6):16–19.

    Google Scholar 

  63. Good MD. The practice of biomedicine and the discourse on hope. Anthropol Med. 1991;7:121–135; and Pellegrino ED. Is truth telling to patients a cultural artifact? JAMA 1992;268(13):1734–1735.

    Google Scholar 

  64. Hardin G. The tragedy of the commons. Science 1968;162:1243–1248.

    CAS  Google Scholar 

  65. Hiatt HHL. Protecting the medical commons: Who is responsible? N Engl J Med. 1975;293(5):235–241.

    CAS  PubMed  Google Scholar 

  66. Schneiderman LJ, Jecker NS, Jonsen AR. Medical futility: its meaning and ethical implications. Ann Int Med. 1990;1112:949–954.

    Google Scholar 

  67. Jecker NS. Knowing when to stop: the limits of medicine. Hastings Center Report. 1991;19(2):5–10.

    Google Scholar 

  68. Schneiderman LJ, Jecker N. Futility in practice. Arch Int Med. 1993;153:437–441.

    CAS  Google Scholar 

  69. Loewy EH, Carlson RA. Futility and its wider implications: a concept in need of further examination. Arch Intern Med. 1993;153:429–431.

    Article  CAS  PubMed  Google Scholar 

  70. Loewy EH. Futility and the goals of medicine. Eur Philos Med Health Care. 1993;1(2):15–29.

    Google Scholar 

  71. Nelson LJ, Nelson RM. Ethics and the provision of futile, harmful or burdensome treatment to children. Crit Care Med. 1992;20(3):427–433.

    CAS  PubMed  Google Scholar 

  72. Loewy EH, Carlson RA. Futility and its wider implications: a concept in need of further examination. Arch Intern Med. 1993;153:429–431.

    Article  CAS  PubMed  Google Scholar 

  73. Hastings Center. Guidelines on the Termination of Therapy and the Care of the Dying. Briarcliff Manor, NY: Hastings Center, 1987.

    Google Scholar 

  74. Faber-Langendoen K. Resuscitation of patients with metastatic cancer. Arch Intern Med. 1991;151:235–239.

    Article  CAS  PubMed  Google Scholar 

  75. Gray WA, Capone RJ, Most AS. Unsuccessful emergency medical resuscitation—are continued efforts in the emergency department justified? N Engl J Med. 1991;325:1393–1398

    CAS  PubMed  Google Scholar 

  76. Hackler JC, Hiller FC. Family consent to orders not to resuscitate. JAMA. 1990; 264(1):1281–1283.

    Article  CAS  PubMed  Google Scholar 

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(2005). Problems in the Care of the Terminally Ill. In: Textbook of Healthcare Ethics. Springer, Dordrecht. https://doi.org/10.1007/1-4020-2252-2_11

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  • DOI: https://doi.org/10.1007/1-4020-2252-2_11

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