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Mental Health Services for Children with Chronic Illness

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Handbook of Mental Health Services for Children, Adolescents, and Families

Part of the book series: Issues in Clinical Child Psychology ((ICCP))

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References

  • Bailey, L. L., Gundry, S. R., Razzouk, A. J., Wang, N., Sciolaro, C. M., & Chiavarelli, M. (1993). Bless the babies: One hundred fifteen late survivors of heart transplantation during the first year of life. Journal of Thoracic and Cardiovascular Surgery, 105, 805–814.

    PubMed  Google Scholar 

  • Bennett, D. S. (1994). Depression among children with chronic medical problems: A metaanalysis. Journal of Pediatric Psychology, 19, 149–169.

    PubMed  Google Scholar 

  • Bossert, E. (1994). Factors influencing the coping of hospitalized school-age children. Journal of Pediatric Nursing, 9, 299–306.

    PubMed  Google Scholar 

  • Carter, B. D., Kronenberger, W. G., Baker, J., Grimes, L. M., Crabtree, V. M., Smith, C. et al. (2003). Inpatient pediatric consultation-liaison: A case-controlled study. Journal of Pediatric Psychology, 28, 423–432.

    PubMed  Google Scholar 

  • Chen, E., Bloomberg, G. R., Fisher, E. B., Strunk, R. C. (2003). Predictors of repeat hospitalizations in children with asthma: The role of psychosocial and socioenvironmental factors. Health Psychology, 22, 12–18.

    PubMed  Google Scholar 

  • Chernoff, R. G., Ireys, H. T., DeVet, K. A., & Kim, Y. J. (2002). A randomized, controlled trial of a community-based support program for families of children with chronic illness: Pediatric outcomes. Archives of Pediatrics and Adolescent Medicine, 156, 533–539.

    PubMed  Google Scholar 

  • Clay, R. A. (1995). Psychologists augment pediatric care. APA Monitor, 26, 23.

    Google Scholar 

  • Clubb, R. L. (1991). Chronic sorrow: Adaptation patterns of parents with chronically ill children. Pediatric Nursing, 17, 461–466.

    PubMed  Google Scholar 

  • Cohen, M. H. (1993). The unknown and the unknowable: Managing sustained uncertainty. Western Journal of Nursing Research, 15, 77–96.

    PubMed  Google Scholar 

  • Davis, C. C., Brown, R. T., Bakeman, R., & Campbell, R. (1998). Psychological adaptation and adjustment of mothers of children with congenital heart disease: Stress, coping, and family functioning. Journal of Pediatric Psychology, 23, 219–228.

    PubMed  Google Scholar 

  • Dubow, E. F., Tisak, J., Causey, D., Hyrshko, A., & Reid. G. (1991). A two-year longitudinal study of stressful life events, social support, and social problem solving skills: Contributions to children’s behavioural and academic adjustment. Child Development, 62, 583–599.

    PubMed  Google Scholar 

  • Elkins, P. E., & Roberts, M. C. (1983). Psychological preparation for pediatric hospitalization. Clinical Psychology Review, 3, 275–295.

    Google Scholar 

  • Ellerton, M. L., Stewart, M. J., Ritchie, J. A., & Hirth, A. M. (1996). Social support in children with a chronic condition. Canadian Journal of Nursing Research, 28, 15–36.

    PubMed  Google Scholar 

  • Fosson, A., Martin, J., & Haley, J. (1990). Anxiety among hospitalized latency-age children. Developmental and Behavioral Pediatrics, 11, 324–327.

    Google Scholar 

  • Frank, R. G., Thayer, J. F., Hagglund, K. J., Vieth, A. Z., Schopp, L. H., Beck, N. C. et al. (1998). Trajectories of adaptation in pediatric chronic illness: The importance of the individual. Journal of Consulting and Clinical Psychology, 66, 521–532.

    PubMed  Google Scholar 

  • Goldman, L. S. (1993). Liver transplantation using living donors: Preliminary donor psychiatric outcomes. Psychosomatics, 34, 235–240.

    PubMed  Google Scholar 

  • Gonzalez, S., Steinglass, P., & Reiss, D. (1989). Putting the illness in its place: Discussion groups for families with chronic medical illnesses. Family Process, 28, 69–87.

    PubMed  Google Scholar 

  • Hakimi, M. (1998). Psychosocial adaptation following the diagnosis of insulin-dependent diabetes mellitus: An intervention. Dissertation Abstracts International: Section B: The Sciences and Engineering, 59, 1852.

    Google Scholar 

  • Hays, D. M., Landsverk, J., Sallan, S. E., Hewett, K. D., Patenaude, A. F., Schoonover, D. et al. (1992). Educational, occupational, and insurance status of childhood cancer survivors in their fourth and fifth decades of life. Journal of Clinical Oncology, 10, 1397–1406.

    PubMed  Google Scholar 

  • Hughes, M., & McCollum, J. (1994). Neonatal intensive care: Mothers’ and fathers’ perceptions of what is stressful. Journal of Early Intervention, 18, 258–268.

    Google Scholar 

  • Johnson, S. M., & Greenberg, L. S. (1996). The effects of emotionally focused marital therapy: A response to a recent meta-analysis. Unpublished manuscript.

    Google Scholar 

  • Kazak, A. E., Barakat, L. P., Meeske, K., Christakis, D., Meadows, A. T., Casey, R. et al. (1997). Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. Journal of Consulting and Clinical Psychology, 65, 120–129.

    PubMed  Google Scholar 

  • Kazak, A. E., & Meadows, A. T. (1989). Families of young adolescents who have survived cancer: Social-emotional adjustment, adaptability, and social support. Journal of Pediatric Psychology, 14, 175–191.

    PubMed  Google Scholar 

  • Kibby, M., Tyc, V. L., & Mulhern, R. K. (1998). Effectiveness of psychological intervention for children and adolescents with chronic medical illness: A meta-analysis. Clinical Psychology Review, 18, 103–117.

    PubMed  Google Scholar 

  • Kirkby, R. J., & Whelan, R. J. (1996). The effects of hospitalisation and medical procedures on children and their families. Journal of Family Studies, 2, 65–77.

    Google Scholar 

  • Koocher, G. P., Curtiss, E. K., Pollin, I. S., & Patton, K. E. (2001). Medical crisis counseling in a health maintenance organization: Preventive intervention. Professional Psychology: Research and Practice, 32, 52–58.

    Google Scholar 

  • Lavigne, J. V., & Faier-Routman, J. (1993). Correlates of psychological adjustment to pediatric physical disorders: A meta-analytic review and comparison with existing models. Developmental and Behavioral Pediatrics, 14, 117–123.

    Google Scholar 

  • Leventhal-Belfer, L., Bakker, A. M., & Russo, C. L. (1993). Parents of childhood cancer survivors: A descriptive look at their concerns and needs. Journal of Psychosocial Oncology, 11, 19–41.

    Google Scholar 

  • Lobato, D. J., & Kao, B. T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric sychology, 27, 711–716.

    Google Scholar 

  • Lynch, M. (1994). Preparing children for day surgery. Children’s Health Care, 23, 75–85.

    PubMed  Google Scholar 

  • Mabe, A., Treiber, F. A., & Riley, W. T. (1991). Examining emotional distress during pediatric hospitalization for school-aged children. Children’s Health Care, 20, 162–169.

    PubMed  Google Scholar 

  • Meadows, A. T., McKee, L., & Kazak, A. E. (1989). Psychosocial status of young adult survivors of childhood cancer: A survey. Medical and Pediatric Oncology, 17, 466–470.

    PubMed  Google Scholar 

  • Melnyk, B. M. (1995). Coping with unplanned childhood hospitalization: The mediating functions of parental beliefs. Journal of Pediatric Psychology, 20, 299–312.

    PubMed  Google Scholar 

  • Melnyk, B. M., Moldenhouer, Z., Feinstein, N. F., & Small, L. (2001). Coping in parents of children who are chronically ill: Strategies for assessment and intervention. Pediatric Nursing, 27, 548–558.

    PubMed  Google Scholar 

  • Mulhern, R. K., Wasserman, A. L., Friedman, A. G., & Fairclough, D. (1989). Social competence and behavioral adjustment of children who are long-term survivors of cancer. Pediatrics, 83, 18–25.

    PubMed  Google Scholar 

  • Nelson, C. C., & Allen, J. (1999). Reduction of healthy children’s fears related to hospitalization and medical procedures: The effectiveness of multimedia computer instruction in pediatric psychology. Children’s Health Care, 28, 1–13.

    Google Scholar 

  • Newacheck, P. W., & Halfon, N. (1998). Prevalence and impact of disabling chronic conditions in childhood. American Journal of Public Health, 88, 610–617.

    PubMed  Google Scholar 

  • Ogilvie, L. (1990). Hospitalization of children for surgery: The parents’ view. Children’s Health Care, 19, 49–56.

    PubMed  Google Scholar 

  • O’Malley, J. E., Foster, D., Koocher, G., & Slavin, L. (1980). Visible physical impairment and psychological adjustment among pediatric cancer survivors. American Journal of Psychiatry, 137, 94–96.

    PubMed  Google Scholar 

  • Park, S. J., Sawyer, S. M., & Glaun, D. E. (1996). Childhood asthma complicated by anxiety: An application of cognitive behavioural therapy. Journal of Paediatric and Child Health, 32, 183–187.

    Google Scholar 

  • Parmalee, A. H. (1986). Children’s illnesses: Their beneficial effects on behavioral development. Child Development, 57, 1–10.

    PubMed  Google Scholar 

  • Perrin, E. C. (1993). Children in hospitals. Journal of Developmental and Behavioral Pediatrics, 14, 50–52.

    PubMed  Google Scholar 

  • Perrin, J. M., & MacLean, W. E. (1988). Children with chronic illness: The prevention of dysfunction. Pediatric Clinics of North America, 35, 1325–1337.

    PubMed  Google Scholar 

  • Peterson, L., Mori, L., & Carter, P. (1985). The role of the family in children’s responses to stressful medical procedures. Journal of Clinical Child Psychology, 14, 98–104.

    Google Scholar 

  • Phipps, S., & Srivastava D. K. (1997). Repressive adaptation in children with cancer. Health Psychology, 16, 521–528.

    PubMed  Google Scholar 

  • Phipps S., & Steele R. G. (2002). Repressive adaptive style in children with chronic illness. Psychosomatic Medicine, 64, 34–42.

    PubMed  Google Scholar 

  • Pollin, I. (1994). Taking charge: Overcoming the challenges of long-term illness. New York: Times Books.

    Google Scholar 

  • Pollin, I. (1995). Medical crisis counseling: Short-term treatment for long term illness. Evanston, IL: Norton.

    Google Scholar 

  • Quittner, A. L., DiGirolamo, A. M., Michel, M., & Eigen, H. (1992). Parental response to cystic fibrosis: A contextual analysis of the diagnosis phase. Journal of Pediatric Psychology, 17, 683–704.

    PubMed  Google Scholar 

  • Quittner, A. L., Espelage, D. L., Opipari, L. C., Carter, B., Eid, N., & Eigen, H. (1998). Role strain in couples with and without a child with chronic illness: Associations with marital satisfaction, intimacy, and daily mood. Health Psychology, 17, 112–124.

    PubMed  Google Scholar 

  • Quittner, A. L., Opipari, L. C., Regoli, M. J., Jacobsen, J., & Eigen, H. (1992). The impact of caregiving and role strain on family life: Comparisons between mothers of children with cystic fibrosis and matched controls. Rehabilitation Psychology, 37, 275–290.

    Google Scholar 

  • Redlich, N., & Prior, M. (1998). Cognitive-behavioural interventions in pediatric chronic illness. Behaviour Change, 15, 151–159.

    Google Scholar 

  • Rossen, B. E., & McKeever, P. D. (1996). The behavior of preschoolers during and after brief surgical hospitalizations. Issues in Comprehensive Pediatric Nursing, 19, 121–133.

    PubMed  Google Scholar 

  • Ryan-Wenger, N. A. (1996). Children, coping, and the stress of illness: A synthesis of the research. Journal of the Society of Pediatric Nurses, 1, 126–138.

    PubMed  Google Scholar 

  • Sahler, O. J., Fairclough, D. L., Katz, E., Varni, J., Phipps, S. et al. (under review). Problem solving skills training for mothers of children with newly diagnosed cancer: Report of a multisite randomized trial.

    Google Scholar 

  • Sargent, J. R., Sahler, O. J. Z., Roghmann, K. J., Mulhern, R. K., Barbarian, O. A., Carpenter, P. J. et al. (1995). Sibling adaptation to childhood cancer collaborative study: Siblings’ perceptions of the cancer experience. Journal of Pediatric Psychology, 20, 151–164.

    PubMed  Google Scholar 

  • Savedra, M., & Tesler, M. (1981). Coping strategies of hospitalized school-age children. Western Journal of Nursing Research, 3, 371–384.

    PubMed  Google Scholar 

  • Saylor, C. F., Pallmeyer, T. P., Finch, A. J., Eason, L., Trieber, F., & Folger, C. (1987). Predictors of psychological distress in hospitalized pediatric patients. Journal of the American Academy of Child and Adolescent Psychiatry, 26, 232–236.

    PubMed  Google Scholar 

  • Schulz, M. S., & Masek, B. J. (1996). Medical crisis intervention with children and adolescents with chronic pain. Professional Psychology: Research and Practice, 27, 121–129.

    Google Scholar 

  • Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27, 699–710.

    PubMed  Google Scholar 

  • Soliday, E., Kool, E., & Lande, M. B. (2000). Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology, 25, 93–103.

    PubMed  Google Scholar 

  • Spirito, A., Stark, L. J., & Tyc, V. L. (1994). Stressors and coping strategies described during hospitalization by chronically ill children. Journal of Clinical Child Psychology, 23, 314–322.

    Google Scholar 

  • Stuber, M. L. (1996). Psychiatric sequelae in seriously ill children and their families. The Psychiatric Clinics of North America, 19, 481–493.

    PubMed  Google Scholar 

  • Stuber, M. L., Gonzalez, S., Meeske, K., Guthrie, D., Houskamp, B., Pynoos, R. et al. (1994). Post traumatic stress after childhood cancer II: A family model. Psychooncology, 3, 313–319.

    Google Scholar 

  • Thompson, R. H., & Vernon, D. T. (1993). Research on children’s behavior after hospitalization: A review and synthesis. Journal of Developmental and Behavioral Pediatrics, 14, 28–35.

    PubMed  Google Scholar 

  • Walker, J. G., Johnson, S., Manion, I., & Cloutier, P. (1996). Emotionally focused marital intervention for couples with chronically ill children. Journal of Consulting and Clinical Psychology, 64, 1029–1036.

    PubMed  Google Scholar 

  • Williams, J., & DeMaso, D. R. (2000). Pediatric team meetings: The mental health consultant’s role. Clinical Child Psychology and Psychiatry, 5, 105–113.

    Google Scholar 

  • Williams, P. D. (1997). Siblings and pediatric chronic illness: A review of the literature. International Journal of Nursing Studies, 34, 312–323.

    PubMed  Google Scholar 

  • Zuckerberg, A. L. (1994). Perioperative approach to children. Pediatric Clinics of North America, 41, 15–29.

    PubMed  Google Scholar 

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  1. University of Kansas Medical Center, Kansas City, Kansas, 66160

    Ann M. McGrath Davis & Ngan Vuong

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© 2005 Kluwer Academic/Plenum Publishers

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McGrath Davis, A.M., Vuong, N. (2005). Mental Health Services for Children with Chronic Illness. In: Handbook of Mental Health Services for Children, Adolescents, and Families. Issues in Clinical Child Psychology. Springer, Boston, MA. https://doi.org/10.1007/0-387-23864-6_17

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