Overview
The application of powerful information technology tools to the practice of public health poses ethical, in addition to practical, challenges. Under a modern, electronic standard of care, it can be as blameworthy to apply such tools inappropriately as it is not to apply them at all. Certain ethical guidelines can help public health scientists make sound decisions about what users and uses of information technology (IT) are appropriate in public health. Even with these guidelines, however, there remain some gray areas, particularly with respect to maintaining the privacy and confidentiality of public health information. The power of modern IT tools renders obsolete some previously sacrosanct guidelines about maintaining privacy and confidentiality. It is therefore necessary for public health practitioners to exercise “progressive caution” in applying information technology to the practice of public health. Developments such as bioinformatics pose acute challenges to maintaining privacy and confidentiality, as does the use of powerful computer technology as support for decisions about interventions. Finally, the interests of ethics and sound public health practice collide in the application of such modern tools as meta-analysis and data mining to public health problems. Even the time-honored practice of using and publishing case studies in public health research presents challenges to maintaining confidentiality of information, as the World Wide Web and other communication and education tools make it increasingly possible for readers to identify the individual(s) discussed in a case.
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References
Coughlin S, Beauchamp T, eds. Ethics and Epidemiology. New York: Oxford University Press; 1996.
Coughlin S, Soskolne C, Goodman K. Case Studies in Public Health Ethics. Washington, DC: American Public Health Association; 1997.
Geissman K, Goodman KW, et al. Scientific Ethics: An Interactive, Multimedia, Computer-Based Training. Atlanta: Centers for Disease Control and Prevention and Agency for Toxic Substances and Disease Registry; 1998.
Goodman KW, ed. Ethics, Computing and Medicine: Informatics and the Transformation of Health Care. New York: Cambridge University Press; 1998.
Miller RA, Schaffner KF, Meisel A. Ethical and legal issues related to the use of computer programs in clinical medicine. Ann Intern Med 1985;102:529–536.
Goodman KW. Bioethics and health informatics: an introduction. In: Goodman KW, ed. Ethics, Computing and Medicine: Informatics and the Transformation of Health Care. New York: Cambridge University Press; 1998:1–31.
Anderson JG, Aydin CE. Evaluating medical information systems: social contexts and ethical challenges. In: Goodman KW, ed. Ethics, Computing and Medicine: Informatics and the Transformation of Health Care. New York: Cambridge University Press; 1998:57–74.
National Research Council. For the Record: Protecting Electronic Health Information. Washington, DC: National Academy Press; 1997.
Alpert SA. Health care information: access, confidentiality, and good practice. In: Goodman KW, ed. Ethics, Computing and Medicine: Informatics and the Transformation of Health Care. New York: Cambridge University Press; 1998:75–101.
US General Accounting Office. Record Linkage and Privacy: Issues in Creating New Federal Research and Statistical Information. Washington, DC: U.S. General Accounting Office (GAO-01–126SP); 2001.
Sweeney LA. Guaranteeing anonymity when sharing medical data: the Datafly System. In: Masys DR, ed. Proceedings of AMIA Annual Fall Symposium. Philadelphia: Hanley & Belfus; 1997:51–55.
Alpert SA. Privacy and the analysis of stored tissues. In: Research Involving Human Biological Materials: Ethical Issues and Policy Guidance. Vol. II: Commissioned Papers. Rockville, MD: National Bioethics Advisory Commission; 2000.
Goodman KW. Ethics, genomics, and information retrieval. Comput Biol Med 1996;26:223–229.
Goodman KW. Bioinformatics: challenges revisited. MD Comput 1999;16:17–20.
Miller RA. Why the standard view is standard: people, not machines, understand patients’ problems. J Med Philos 1990;15:581–591.
Goodman KW. Meta-analysis: Conceptual, ethical and policy issues. In: Goodman KW, ed. Ethics, Computing and Medicine: Informatics and the Transformation of Health Care. New York: Cambridge University Press; 1998:139–167.
Environmental Protection Agency. Respiratory Health Effects of Passive Smoking: Lung Cancer and Other Disorders. Washington, DC: Government Printing Office (EPA/600/6–90/006F; GPO: 0555–000-00407–2); 1993.
Feinstein AR. Critique of review article, Environmental tobacco smoke: Current assessment and future directions. Toxicol Pathol 1992;20:303–305.
Snider DE. Patient consent for publication and the health of the public. JAMA 1997;278:624–626.
Markovitz BP, Goodman KW. Case reports on the Web: Is confidentiality being maintained? In Lorenzi NM, ed. Proceedings of the Annual Symposium of the American Medical Informatics Association. Philadelphia: Hanley & Belfus; 1999:1114.
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Goodman, K.W. (2003). Ethics, Information Technology, and Public Health: Duties and Challenges in Computational Epidemiology. In: O’Carroll, P.W., Ripp, L.H., Yasnoff, W.A., Ward, M.E., Martin, E.L. (eds) Public Health Informatics and Information Systems. Health Informatics. Springer, New York, NY. https://doi.org/10.1007/0-387-22745-8_13
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DOI: https://doi.org/10.1007/0-387-22745-8_13
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