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Multicentre Clinical Registries

Establishment of multicentre clinical registries as a basis for comparative evaluation of rare diseases

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Adamantiades-Behçet’s Disease

Part of the book series: Advances in Experimental Medicine and Biology ((AEMB,volume 528))

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Conclusions

In this paper we discussed the usefulness and problems concerning the implementation of a multicentre clinical registry for Adamantiades-Behçet’s disease. Of course, this paper was written from the perspective of a statistician. Thus, the concepts described in the paper have to be filled with life by clinical experts of Adamantiades-Behçet’s disease. However, the necessity of such a registry and the benefit obtained from the cooperation of different centres is obvious and may improve patient care and research in this medical field.

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References

  1. International Study Group for Behçet’s disease, 1990, Criteria for Diagnosis of Behçet’s disease. Lancet 335: 1078–1080.

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  2. Zouboulis Ch.C., 1995, Habilitation thesis Adamantiades-Behçet’s disease: Clinical and experimental findings in 53 patients from the Berlin area. Berlin.

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© 2004 Kluwer Academic Publishers

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Martus, P. (2004). Multicentre Clinical Registries. In: Zouboulis, C.C. (eds) Adamantiades-Behçet’s Disease. Advances in Experimental Medicine and Biology, vol 528. Springer, Boston, MA. https://doi.org/10.1007/0-306-48382-3_3

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  • DOI: https://doi.org/10.1007/0-306-48382-3_3

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-0-306-47757-7

  • Online ISBN: 978-0-306-48382-0

  • eBook Packages: Springer Book Archive

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