Multicentre Clinical Registries

Establishment of multicentre clinical registries as a basis for comparative evaluation of rare diseases
  • Peter Martus
Part of the Advances in Experimental Medicine and Biology book series (AEMB, volume 528)


In this paper we discussed the usefulness and problems concerning the implementation of a multicentre clinical registry for Adamantiades-Behçet’s disease. Of course, this paper was written from the perspective of a statistician. Thus, the concepts described in the paper have to be filled with life by clinical experts of Adamantiades-Behçet’s disease. However, the necessity of such a registry and the benefit obtained from the cooperation of different centres is obvious and may improve patient care and research in this medical field.


Diagnostic Scheme Improve Patient Care Diagnostic Examination German Registry Observer Variability 
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  1. 1.
    International Study Group for Behçet’s disease, 1990, Criteria for Diagnosis of Behçet’s disease. Lancet 335: 1078–1080.Google Scholar
  2. 2.
    Zouboulis Ch.C., 1995, Habilitation thesis Adamantiades-Behçet’s disease: Clinical and experimental findings in 53 patients from the Berlin area. Berlin.Google Scholar

Copyright information

© Kluwer Academic Publishers 2004

Authors and Affiliations

  • Peter Martus
    • 1
  1. 1.Institute for Medical Informatics, Biometry and EpidemiologyThe Free University of BerlinBerlinGermany

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