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e-Learning Tools for Informal Caregivers of Patients with Dementia—A Review Study

  • Blanka KlimovaEmail author
  • Marcel Pikhart
Conference paper
  • 44 Downloads
Part of the Smart Innovation, Systems and Technologies book series (SIST, volume 188)

Abstract

Currently, due to the changing demographic trends, there is a growing number of older people suffering from aging diseases such as dementia. Dementia is a neurological disorder, which develops gradually, but progressively. Especially in the last stage of dementia, patients are fully dependent on caregiver’s help since they are not able to take care of themselves. The purpose of this article is to explore the use of e-learning as an informal caregiver’s tool for persons with dementia and discuss its benefits and limitations in order to improve the quality of life of caretakers of people with dementia. The methodology is based on a literature review of the research topic, i.e., the use of e-learning tools for informal caretakers of patients with dementia in the period of January 1, 2015 to June 30, 2019. The findings show that the informal caregivers in all identified articles were satisfied with the e-learning platform, program, or the course whose content tried to help them acquire more information and knowledge about the disease, as well as educate them how to cope with the perceived distress and enhance empathy for their patients. One of the main limitations of this review is a lack of studies found on the research topic. However, this fact has been confirmed by other research studies, which reveal that technologies evaluated for informal caregivers are rare. Therefore, more research should be done in this area.

Keywords

Informal caretakers Dementia e-Learning Benefits Limitations 

Notes

Acknowledgements

This study is supported by the SPEV project 2020, run at the Faculty of Informatics and Management, University of Hradec Kralove, Czech Republic. The authors thank Josef Toman for his help with the data collection.

References

  1. 1.
    World Health Organization: Dementia (2019). https://www.who.int/news-room/fact-sheets/detail/dementia
  2. 2.
    Klimova, B., Maresova, P., Valis, M., Hort, J., Kuca, K.: Alzheimer´s disease and language impairments: social intervention and medical treatment. Clin. Interv. Aging 10, 1401–1408 (2015)Google Scholar
  3. 3.
    Klimova, B.: Learning a foreign language: a review on recent findings about its effect on the enhancement of cognitive functions among healthy older individuals. Front. Hum. Neurosci. 12, 305 (2018)MathSciNetCrossRefGoogle Scholar
  4. 4.
    Klimova, B., Maresova, P., Kuca, K.: Non-pharmacological approaches to the prevention and treatment of Alzheimer´s disease with respect to the rising treatment costs. Curr. Alzheimer Res. 13(11), 1249–1258 (2016)CrossRefGoogle Scholar
  5. 5.
    Zwaanswijk, M., Peeters, J.M., van Beek, A.P.A., Meerveld, J.H.C.M., Francke, A.L.: Informal caregivers of people with dementia: problems, needs and support in the initial stage and in subsequent stages of dementia: a questionnaire survey. Open Nurs. J. 7, 6–13 (2013)CrossRefGoogle Scholar
  6. 6.
    Brodaty, H., Donkin, M.: Family caregivers of people with dementia. Dialogues Clin Neurosci. 11(2), 217–228 (2009)Google Scholar
  7. 7.
    Romero-Martínez, A., Hidalgo-Moreno, G., Moya-Albiol, L.: Neuropsychological consequences of chronic stress: the case of informal caregivers. Aging Ment. Health. 18, 1–13 (2018)Google Scholar
  8. 8.
  9. 9.
    Eisdorfer, C., Czaja, S., Loewenstein, D., et al.: The effect of a family therapy and technology-based intervention on caregiver depression. Gerontologist 43, 521–531 (2003)CrossRefGoogle Scholar
  10. 10.
    Klimova, B., Simonova, I., Poulova, P.: Blended learning in the university English courses: case study. In: Cheung, S., Kwok, L., Ma, W., Lee, L.K., Yang, H. (eds.) Blended Learning. New Challenges and Innovative Practices. ICBL 2017, vol. 10309, pp. 53–64. Lecture Notes in Computer Science (2017)Google Scholar
  11. 11.
    Connan, V., Marcon, M.A., Mahmud, F.H., Assor, E., Martincevic, I., Bandsma, R.H., Vresk, L., Walsh, C.M.: Online education for gluten-free diet teaching: development and usability testing of an e-learning module for children with concurrent celiac disease and type 1 diabetes. Pediatr Diabetes. 20(3), 293–303 (2019)CrossRefGoogle Scholar
  12. 12.
    Chong, M.C., Francis, K., Cooper, S., Abdullah, K.L., Thin, N., Hmwe, T., et al.: Access to, interest in and attitude toward e-learning for continuous education among Malaysian nurses. Nurse Educ. Today 36, 370–374 (2016)CrossRefGoogle Scholar
  13. 13.
    Moniz-Cook, E., Hart, C., Woods, B., Whitaker, C., James, I., Russell, I., et al.: Challenge demcare: management of challenging behaviour in dementia at home and in care homes—development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants Appl. Res. 5(15) (2017).  https://doi.org/10.3310/pgfar05150
  14. 14.
    Kurz, A., Bakker, C., Böhm, M., Diehl-Schmid, J., Dubois, B., Ferreira, C., et al.: RHAPSODY—Internet-based support for caregivers of people with young onset dementia: program design and methods of a pilot study. Int. Psychogeriatr. 28(12), 2091–2099 (2016)CrossRefGoogle Scholar
  15. 15.
    Lazzari, C.: Ecological momentary assessments and interventions in Alzheimer’s caregiving. Curr. Alzheimer Res. 15(11), 1027–1031 (2018)CrossRefGoogle Scholar
  16. 16.
    Fam, J., Mahendran, R., Kua, E.H.: Dementia care in low and middle-income countriesGoogle Scholar
  17. 17.
    Curr Opin Psychiatry (2019).  https://doi.org/10.1097/yco.0000000000000523
  18. 18.
    Billis, A., Mantziari, D., Zilidou, V., Bamidis, P.D.: Co-creation of an innovative vocational training platform to improve autonomy in the context of Alzheimer’s disease. Stud Health Technol Inform. 251, 309–312 (2018)Google Scholar
  19. 19.
    Van Asch, I., Prins, M., Willemse, B.: Development of an e-learning for caregivers to manage challenging behavior of people with dementia. Gerontologist 56(Suppl. 3), 538 (2016)Google Scholar
  20. 20.
    Giguere, A.M.C., Lawani, M.A., Fortier-Brochu, É., Carmichael, P.H., Légaré, F., Kröger, E., et al.: Tailoring and evaluating an intervention to improve shared decision-making among seniors with dementia, their caregivers, and healthcare providers: study protocol for a randomized controlled trial. Trials 19(1), 332 (2018)CrossRefGoogle Scholar
  21. 21.
    Wasilewski, M.B., Stinson, J.N., Cameron, J.I.: Web-based health interventions for family caregivers of elderly individuals: a scoping review. Int. J. Med. Inform. 103, 109–138 (2017)CrossRefGoogle Scholar
  22. 22.
    Surr, C.A., Gates, C., Irving, D., Oyebode, J., Smith, S.J., Parveen, S., et al.: Effective dementia education and training for the health and social care workforce: a systematic review of the literature. Rev. Educ. Res. 87(5), 966–1002 (2017)CrossRefGoogle Scholar
  23. 23.
    Dam, A.E., de Vugt, M.E., Klinkenberg, I.P., Verhey, F.R., van Boxtel, M.P.: A systematic review of social support interventions for caregivers of people with dementia: are they doing what they promise? Maturitas 85, 117–130 (2016)CrossRefGoogle Scholar
  24. 24.
    Hattink, B., Meiland, F., van der Roest, H., Kevern, P., Abiuso, F., Bengtsson, J., et al.: Web-based STAR e-learning course increases empathy and understanding in dementia caregivers: results from a randomized controlled trial in the Netherlands and the United Kingdom. J. Med. Internet Res. 17(10), e241 (2015)CrossRefGoogle Scholar
  25. 25.
    Pot, A.M., Blom, M.M., Willemse, B.M.: Acceptability of a guided self-help Internet intervention for family caregivers: mastery over dementia. Int. Psychogeriatr. 27(8), 1343–1354 (2015)CrossRefGoogle Scholar
  26. 26.
    van Rijn, A., Meiland, F., Dröes, R.M.: Linking two new E-health caregiver interventions to meeting centres for people with dementia and their carers; a process evaluation. Aging Ment. Health. 23, 1–10 (2019)CrossRefGoogle Scholar
  27. 27.
    Jackson, D., Roberts, G., Wu, M.L., Ford, R., Doyle, C.: A systematic review of the effect of telephone, Internet or combined support for carers of people living with Alzheimer’s, vascular or mixed dementia in the community. Arch. Gerontol. Geriatr. 66, 218–236 (2016)CrossRefGoogle Scholar
  28. 28.
    Ho, D.W.H., Maka, V., Kwokab, T.C.Y., Au, A., Ho, F.K.Y.: Development of a web-based training program for dementia caregivers in Hong Kong. Clin. Gerontologist. 38, 211–223 (2015)CrossRefGoogle Scholar
  29. 29.
    Nunez-Naveira, L., Alonso-Bua, B., de Labra, C., Gregersen, R., Maibom, K., Mojs, E., et al.: UnderstAID, an ICT platform to help informal caregivers of people with dementia: a pilot randomized controlled study. Biomed. Res. Int. 2016, 5726465 (2016)CrossRefGoogle Scholar
  30. 30.
    Wijma, E.M., Veerbeek, M.A., Prins, M., Pot, A.M., Willemse, B.M.: A virtual reality intervention to improve the understanding and empathy for people with dementia in informal caregivers: results of a pilot study. Aging Mental Health. 22(9), 1115–1123 (2018)CrossRefGoogle Scholar
  31. 31.
    Health Evidence Quality Assessment Tool for review articles (2005). https://www.healthevidence.org/documents/our-appraisal-tools/quality-assessment-tool-dictionary-en.pdf
  32. 32.
  33. 33.
    Free dementia care online course from John Hopkins University and Coursera (2015). https://ec.europa.eu/eip/ageing/news/free-dementia-care-online-course-john-hopkins-university-and-coursera_en
  34. 34.
    MacDonald, C.J., Walton, R.: e-Learning education solutions for caregivers in long-term care (LTC) facilities: new possibilities. Educ. Health (Abingdon). 20(3), 85 (2007)Google Scholar
  35. 35.
    Krick, T., Huter, K., Domhoff, D., Schmidt, A., Rothgang, H., Wolf-Ostermann, K.: Digital technology and nursing care: a scoping review on acceptance, effectiveness and efficiency studies of informal and formal care technologies. BMC Health Serv. Res. 19(1), 400 (2019)CrossRefGoogle Scholar
  36. 36.
    Pikhart, M.: Interculturality in blended learning: challenges of electronic communication. In: Smart Innovation, Systems and Technologies. vol. 144, pp. 97–106. Springer Nature Singapore (2019)Google Scholar
  37. 37.
    Pikhart, M.: Aspects of intercultural communication in IT: convergence of communication and computing in the global world of interconnectedness. In Lecture Notes in Elctrical Engineering, vol. 590 (2019) Google Scholar
  38. 38.
    Pikhart, M.: The use of cloud computing in managing companies and business communication: security issues for management. Lect. Notes Elctrical. Eng. 574, 94–98 (2019)CrossRefGoogle Scholar

Copyright information

© The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Singapore Pte Ltd. 2020

Authors and Affiliations

  1. 1.Department of Applied Linguistics, Faculty of Informatics and ManagementUniversity of Hradec KraloveHradec KraloveCzech Republic

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