Advertisement

The Lady with the Roses and Other Invisible Users: Revisiting Unused Data on Nursing Home Residents in Living Labs

  • Anne Marie KanstrupEmail author
  • Ann Bygholm
Chapter

Abstract

Finding ways to bridge the gap between technological knowledge and local knowledge is a fundamental socio-technical challenge. This chapter re-examines data with residents in nursing homes with the purpose of investigating opportunities for bringing the older adults’ local knowledge into the innovation of technology for ageing populations. The older adults in the study were all physically and/or mentally frail and all possessed knowledge about being an older adult and a resident in a nursing home. The analysis showed that the older adults’ participation in technology innovation was mainly indirect; in cases of direct participation the communication about technology was difficult and characterised by pleasantries. However, the older adults provided rich insights about their everyday routines and memories via observations, thus, giving designers access to local knowledge about being an older adult living in a nursing home. Finding ways to embrace and include this local knowledge requires a conceptual understanding of participation. The chapter contributes a conceptualisation of ‘invisible users’, i.e. people who are frail and considered difficult to engage in technology innovation. The findings contribute a perspective on ‘dimensions of participation’ as pivotal for designers who aim to bring this target group’s knowledge into technology innovation for ageing populations.

Keywords

Design for ageing Living laboratory Nursing home Invisible users Participatory design 

References

  1. Bannon, L., & Ehn, P. (2013). Design: Design matters in participatory design. In J. Simonsen & T. Robertson (Eds.), Routledge international handbook of participatory design (pp. 37–63). New York: Routledge.Google Scholar
  2. Benton, L., & Johnson, H. (2015). Widening participation in technology design: A review of the involvement of children with special needs and disabilities. International Journal of Child-Computer Interaction, 3–4, 23–40.CrossRefGoogle Scholar
  3. Bødker, S., Dindler, C., & Iversen, O. (2017). Tying knots: Participatory infrastructuring at work. CSCW, 26, 245–273.Google Scholar
  4. Bråten, S. (1973). Model monopoly and communications: Systems theoretical notes on democratization. Acta Sociologica, Journal of the Scandinavian Sociological Association, 16(2), 98–107.CrossRefGoogle Scholar
  5. Bratteteig, T., & Wagner, I. (2016). Unpacking the notion of participation in participatory design. CSCW, 25, 425–475.Google Scholar
  6. Bratteteig, T., Bødker, K., Dittrich, Y., Mogensen, P. H., & Simonsen, J. (2013). Methods: Organising principles and general guidelines for participatory design projects. In J. Simonsen & R. Robertson (Eds.), Routledge international handbook of participatory design (pp. 117–144). New York: Routledge.Google Scholar
  7. Braun, V., & Clarke, V. (2008). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.CrossRefGoogle Scholar
  8. Brereton, M., Sitbon, L., Abdullah, M. H. L., Vanderberg, M., & Koplick, S. (2015). Design after design to bridge between people living with cognitive or sensory impairments, their friends and proxies. CoDesign, 11(1), 4–20.CrossRefGoogle Scholar
  9. Bygholm, A., & Kanstrup, A. M. (2017). This is not participatory design—A critical analysis of eight living laboratories. Studies in Health Technology and Informatics, 233, 72–92.Google Scholar
  10. Gell, N. M., Rosenberg, D. E., Demiris, G., LaCroix, A. Z., & Patel, K. V. (2015). Patterns of technology use among older adults with and without disabilities. Gerontologist, 55(3), 412–421.CrossRefGoogle Scholar
  11. Halskov, K., & Hansen, N. B. (2015). The diversity of participatory design research and practice at PDC 2002–2012. International Journal of Human-Computer Studies, 74(2), 81–92.CrossRefGoogle Scholar
  12. Kanstrup, A. M. (2016). Living in the lab: An analysis of the work in eight living laboratories set up in care homes for technology innovation. CoDesign—International Journal of CoCreation in Design and the Arts, 13(1), 49–64.Google Scholar
  13. Kanstrup, A. M., & Bygholm, A. (2015). Monitoring technology meets care work: Challenges of monitoring wet-beds in a nursing home. Studies in Health Technology and Informatics, 215, 157–167.Google Scholar
  14. Kanstrup, A. M., Bertelsen, P., & Nøhr, C. (2015). Patient innovation: An analysis of patients’ designs of digital technology support for everyday living with diabetes. Health Information Management Journal, 44(1), 12–20.CrossRefGoogle Scholar
  15. Kanstrup, A. M., Rotger-Griful, S., Laplante-Lévesque, A., & Cleveland Nielsen, A. (2017). Designing connections for hearing rehabilitation: Exploring future client journeys with elderly hearing aid users, relatives and healthcare providers. In Proceedings from DIS ‘17: Designing Interactive Systems (pp. 1153–1163). New York: ACM.Google Scholar
  16. Kensing, F., & Greenbaum, J. (2013). Heritage: Having a say. In J. Simonsen & T. Robertson (Eds.), Routledge international handbook of participatory design (pp. 21–36). New York: Routledge.Google Scholar
  17. Konnerup, U. (2017). Engaging People with aphasia in design of rehabilitation through participatory design: A way to learn what they really want. Studies in Health Technology and Informatics, 233, 148–157.Google Scholar
  18. Lazar, A., Thompson, H. J., Piper, A. M., & Demiris, G. (2016). Rethinking the design of robotic pets for older adults. In Proceedings from DIS ‘16: Designing Interactive Systems (pp. 1034–1046). New York: ACM.Google Scholar
  19. Malmborg, L., Grönvall, E., Messeter, J., Raben, T., & Werner, K. (2016). Mobilizing senior citizens in CoDesign of mobile technology. International Journal of Mobile Human-Computer Interaction, 8(4), 42–67.CrossRefGoogle Scholar
  20. Petersen, L. S., & Bertelsen, P. (2017). Equality challenges in the use of eHealth: Selected results from a Danish citizens survey. In Proceedings from Medinfo 2017: Orecision Healthcare through Informatics. Studies in Health Technology and Informatics (Vol. 245, pp. 793–797). IOS Press.Google Scholar
  21. Rogers, Y., Paay, J., Brereton, M., Vaisutis, K. L., Marsden, G., & Vetere, F. (2014). Never too old: Engaging retired people inventing the future with MaKey. In Proceedings from CHI ‘14: Conference on Human Factors in Computing Systems (pp. 3913–3922). New York: ACM.Google Scholar
  22. Schön, D. A. (1988). Designing: Rules, types and worlds. Design Studies, 9(3), 181–190.CrossRefGoogle Scholar
  23. Showel, C., & Turner, P. (2013). The PLU-problem: Are we designing personal eHealth for people like us? Studies in Health Technology and Informatics, 183, 276–280.Google Scholar
  24. Simonsen, J., & Robertson, T. (2013). Routledge international handbook of participatory design. New York: Routledge.Google Scholar
  25. Smith, R., Bossen, C., & Kanstrup, A. M. (2017). Participatory design in an era of participation. CoDesign, 13(2), 65–69.CrossRefGoogle Scholar
  26. Star, S. L., & Strauss, A. (1999). Layers of silence, Arenas of voice: The ecology of visible and invisible work. Computer-Supported Cooperative Work, 8, 9–30.CrossRefGoogle Scholar
  27. Von Hippel, E. (2005). Democratizing innovation. Cambridge, Massachusetts: MIT Press.CrossRefGoogle Scholar
  28. Winthereik, J., Malmborg, L., & Andersen, T. (2009). Living labs as a methodological approach to universal access in senior design. In C. Stephanidis (Ed.), Universal access in HCI (pp. 174–183). Berlin Heidelberg: Springer.Google Scholar
  29. World Health Organisation (WHO). (2015). World report on aging and health. Geneva: World Health Organization.Google Scholar

Copyright information

© Springer Nature Singapore Pte Ltd. 2019

Authors and Affiliations

  1. 1.Department of PlanningAalborg UniversityAalborgDenmark
  2. 2.Department of CommunicationAalborg UniversityAalborgDenmark

Personalised recommendations