For young patients to receive medical care in accordance with age-related changes in physical condition and complications and physical and personality maturity, the health-care transition from childhood to adult appropriate medical care is an important subject. However, allied disorders of Hirschsprung’s disease are rare and severe condition, so it is not easy to progress the transition to an adult health-care system. In this condition medical care should be seamlessly continued from childhood to adulthood, and it is necessary to prepare programs including seamless diagnostic criteria, severity classification, guidelines, education, and guidance of medical support.
This is a preview of subscription content, log in to check access.
Goodman DM, Hall M, Levin A, et al. Adult with chronic health condition organization in childhood: inpatient experience in Children’s Hospital. Pediatrics. 2011;128:5–13.CrossRefPubMedPubMedCentralGoogle Scholar
American Academy of Pediatrics, American Academy of Family Physicians, et al. A Consequence statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110:1304–6.Google Scholar
Gortmaker SL, Perrin JM, Weintzman M, et al. An unexpected success story: transition to adulthood in youth with chronic physical health conditions. J Res Adolesc. 1993;3:317–36.CrossRefGoogle Scholar
Taguchi T, Ieiri S, Miyoshi K, et al. The incidence and outcome of allied disorders of Hirschsprung’s disease in Japan: results from a nationwide survey. Asian J Surg. 2017;40:29–34.CrossRefPubMedGoogle Scholar
Watanabe Y, Kanammori Y, Uchida K, et al. Isolated hypoganglionosis: results of a nationwide survey in Japan. Pediatr Surg Int. 2013;29:1127–30.CrossRefPubMedGoogle Scholar
Muto M, Matsufuji H, Tomomasa T, et al. Pediatric chronic intestinal pseudo-obstruction is a rare, serious, and intractable disease: a report of a nationwide survey in Japan. J Pediatr Surg. 2014;49:1799–803.CrossRefPubMedGoogle Scholar
Soh H, Fukuzawa M, Kubota A, et al. Megacystis microcolon intestinal hypoperistalsis syndrome: a report of a nationwide survey in Japan. J Pediatr Surg. 2015;50:2048–50.CrossRefPubMedGoogle Scholar