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Introduction

  • Kristien Hens
  • Raymond Langenberg
Chapter

Abstract

The authors are Kristien Hens (University Professor in Ethics) and Raymond Langenberg (Management Consultant). The latter is writing from his own experience of receiving and coming to terms with a diagnosis of Asperger’s syndrome. In this introduction, they start by exploring different meanings of autism, after which they provide an outline of the methodology they used for this project.

Keywords

Autism Dimensions Definition Phenomenology Experience 

Bibliography

  1. Baron-Cohen, S., A.M. Leslie, and U. Frith. 1985. Does the Autistic Child Have a ‘Theory of Mind. Cognition 21 (1): 37–46. Elsevier, October.CrossRefGoogle Scholar
  2. Beardon, Luke. 2017. Autism and Asperger Syndrome in Adults. London: Sheldon Press.Google Scholar
  3. Bettelheim, Bruno. 1972. The Empty Fortress: Infantile Autism and the Birth of the Self. New edition edition. S.l. New York: Free Press.Google Scholar
  4. Beyers, Leo. 2014. Het wordende denken. Antwerp: Maklu.Google Scholar
  5. Eyal, Gil, ed. 2010. The Autism Matrix: The Social Origins of the Autism Epidemic. Cambridge/Malden, MA: Polity.Google Scholar
  6. Fletcher-Watson, Sue, Fabio Apicella, Bonnie Auyeung, Stepanka Beranova, Frederique Bonnet-Brilhault, Ricardo Canal-Bedia, Tony Charman, et al. 2017. Attitudes of the Autism Community to Early Autism Research. Autism 21 (1): 61–74. Sage journals.CrossRefGoogle Scholar
  7. Frith, Uta. 2003. Autism: Explaining the Enigma. 2nd ed. Malden: Blackwell Pub.Google Scholar
  8. Frith, U., and F. Happé. 1999. Theory of Mind and Self-Consciousness: What Is It Like to Be Autistic? Mind and Language 14 (1): 1–22. Wiley.Google Scholar
  9. Goffman, Erving. 1963. Stigma. Notes on the Management of Spoiled Identity. Englewood Cliffs: Prentice Hall.Google Scholar
  10. Hacking, Ian. 1996. The Looping Effects of Human Kinds. In Causal Cognition, ed. Dan Sperber, David Premack, and Ann James Premack, 351–383. New York: Oxford University Press.CrossRefGoogle Scholar
  11. Hens, Kristien, Hilde Peeters, and Kris Dierickx. 2016. The Ethics of Complexity. Genetics and Autism, a Literature Review. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics 171(B) (3): 305–316. Wiley-Blackwell.CrossRefGoogle Scholar
  12. Huws, J.C., and R.S.P. Jones. 2008. Diagnosis, Disclosure, and Having Autism: An Interpretative Phenomenological Analysis of the Perceptions of Young People with Autism. Journal of Intellectual & Developmental Disability 33 (2): 99–107. Informa.CrossRefGoogle Scholar
  13. Jaarsma, Pier, and Stellan Welin. 2012. Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement. Health Care Analysis 20 (1): 20–30. Springer.CrossRefGoogle Scholar
  14. Kanner, Leo. 1968. Autistic Disturbances of Affective Contact. Acta Paedopsychiatrica 35 (4): 100–136. Schwabe.PubMedGoogle Scholar
  15. Kim, Hyun Uk. 2012. Autism Across Cultures: Rethinking Autism. Disability & Society 27 (4): 535–545. Taylor & Francis, June 1.CrossRefGoogle Scholar
  16. Kusters, Wouter. 2014. Filosofie van de Waanzin. Rotterdam: Lemniscaat.Google Scholar
  17. Markram, H., Tania Rinaldi, and Kamila Markram. 2007. The Intense World Syndrome – An Alternative Hypothesis for Autism. Frontiers in Neuroscience 1 (1): 77–96. Frontiers media, October 15.CrossRefGoogle Scholar
  18. Milton, Damian. 2017. A Mismatch of Salience. Hove: Pavilion Publishing.Google Scholar
  19. Murray, Stuart. 2008. Representing Autism: Culture, Narrative, Fascination. Liverpool: Liverpool University Press.Google Scholar
  20. Nadesan, Majia Holmer. 2005. Constructing Autism: Unravelling the “Truth” and Understanding the Social. London/New York: Routledge.Google Scholar
  21. Nicolaidis, Christina, Dora M. Raymaker, Elesia Ashkenazy, Katherine E. McDonald, Sebastian Dern, Amelia E.V. Baggs, Steven K. Kapp, Michael Weiner, and W. Cody Boisclair. 2015. ‘Respect the Way I Need to Communicate with You’: Healthcare Experiences of Adults on the Autism Spectrum. Autism 19 (7): 824–831. Sage Journals, October 1.CrossRefGoogle Scholar
  22. Pellicano, Elizabeth, and Marc Stears. 2011. Bridging Autism, Science and Society: Moving Toward an Ethically Informed Approach to Autism Research. Autism Research: Official Journal of the International Society for Autism Research 4 (4): 271–282. INSAR, August.CrossRefGoogle Scholar
  23. Pellicano, Elizabeth, Adam Dinsmore, and Tony Charman. 2014. What Should Autism Research Focus Upon? Community Views and Priorities from the United Kingdom. Autism 18 (7): 756–770. Sage Journals, October.CrossRefGoogle Scholar
  24. Pentzell, Nick. 2013. I Think, Therefore I Am. I Am Verbal, Therefore I Live. In The Philosophy of Autism, ed. Jami L. Anderson and Simon Cushing, 103–108. Lanham: Rowman & Littlefield.Google Scholar
  25. Prince-Hughes, Dawn. 2002. Aquamarine Blue 5. Athens: Swallow Press.Google Scholar
  26. Smith, Jonathan. 2009. Interpretative Phenomenological Analysis: Theory, Method and Research. 1st ed. Los Angeles: Sage.Google Scholar
  27. Van de Cruys, Kris Evers Sander, Ruth Van der Hallen, Lien Van Eylen, Bart Boets, Lee de-Wit, and Johan Wagemans. 2014. Precise Minds in Uncertain Worlds: Predictive Coding in Autism. Psychological Review 121 (4): 649–675. American Psychological Association, October.CrossRefGoogle Scholar
  28. Van Manen, Max. 1990. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. 2nd ed. Albany: State University of New York Press.Google Scholar
  29. ———. 2014. Phenomenology of Practice: Meaning-Giving Methods in Phenomenological Research and Writing. Walnut Creek: Routledge.Google Scholar
  30. Verhoeff, Berend. 2013a. Autism in Flux: A History of the Concept from Leo Kanner to DSM-5. History of Psychiatry 24 (4): 442–458. Sage Publications, December 1.CrossRefGoogle Scholar
  31. ———. 2013b. The Autism Puzzle: Challenging a Mechanistic Model on Conceptual and Historical Grounds. Philosophy, Ethics, and Humanities in Medicine 8 (1): 17. Springer.CrossRefGoogle Scholar
  32. ———. 2015. Fundamental Challenges for Autism Research: The Science-Practice Gap, Demarcating Autism and the Unsuccessful Search for the Neurobiological Basis of Autism. Medicine, Health Care, and Philosophy 18 (3): 443–447. Springer, August.CrossRefGoogle Scholar
  33. Vermeulen, Peter. 2009. Autisme Als Contextblindheid. Leuven: Acco.Google Scholar
  34. Waltz, Mitzi. 2013. Autism. A Social and Medical History. Hampshire: Palgrave Macmillan.Google Scholar
  35. Waterhouse, Lynn. 2013. Rethinking Autism: Variation and Complexity. London/Waltham, MA: Academic.Google Scholar
  36. Yusuf, Afiqah, and Mayada Elsabbagh. 2015. At the Cross-Roads of Participatory Research and Biomarker Discovery in Autism: The Need for Empirical Data. BMC Medical Ethics 16: 88.CrossRefGoogle Scholar

Copyright information

© The Author(s) 2018

Authors and Affiliations

  • Kristien Hens
    • 1
  • Raymond Langenberg
    • 2
  1. 1.Department of PhilosophyUniversity of AntwerpAntwerpBelgium
  2. 2.Diversity - Campus GelbergenHoeledenBelgium

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