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Impact of Rheumatic Musculoskeletal Disease on Psychological Development in Adolescents and Young Adults

  • Ran Alice CaiEmail author
  • Hema Chaplin
Chapter
Part of the In Clinical Practice book series (ICP)

Abstract

Adolescents and young adults (AYAs) undergo significant physiological and psychological transformations. When developmental milestones are combined with additional challenges of growing up with a chronic rheumatic musculoskeletal disease (RMD), it can increase AYA's susceptibility to psychological problems. Emotional issues in adolescence can often persist into adulthood and negatively impact future health, social, and work outcomes. This chapter summarises psychological challenges for AYAs and recommends ways for healthcare professionals (HCPs) to promote mental wellbeing in AYAs with RMD.

Keywords

Coping Cognitive distortions Self-efficacy Self-esteem Mental health 

References

  1. 1.
    Somerville LH, Jones RM, Casey BJ. A time of change: behavioral and neural correlates of adolescent sensitivity to appetitive and aversive environmental cues. Brain Cogn. 2010;72(1):124–33.  https://doi.org/10.1016/j.bandc.2009.07.003.CrossRefPubMedGoogle Scholar
  2. 2.
    Harter S, Bresnick S, Bouchey HA, Whitesell NR. The development of multiple role-related selves during adolescence. Dev Psychopathol. 1997;9(4):835–53.  https://doi.org/10.1017/S0954579497001466.CrossRefPubMedGoogle Scholar
  3. 3.
    Esberger K. Body image. A handbook of science. Pract Prev. 2011;4.  https://doi.org/10.1007/SpringerReference_223404.
  4. 4.
    Dillon FR, Worthington RL, Moradi B. Sexual identity as a universal process. In: Handbook of identity theory and research; 2011. p. 649–70.  https://doi.org/10.1007/978-1-4419-7988-9_27.CrossRefGoogle Scholar
  5. 5.
    Marques SC, Pais-Ribeiro JL, Lopez SJ. The role of positive psychology constructs in predicting mental health and academic achievement in children and adolescents: a two-year longitudinal study. J Happiness Stud. 2011;12(6):1049–62.  https://doi.org/10.1007/s10902-010-9244-4.CrossRefGoogle Scholar
  6. 6.
    Patton GC, Coffey C, Cappa C, et al. Health of the world’s adolescents: a synthesis of internationally comparable data. Lancet (London, England). 2012;379(9826):1665–75.  https://doi.org/10.1016/S0140-6736(12)60203-7.CrossRefGoogle Scholar
  7. 7.
    Farah MJ, Noble KG, Hurt H. The developing adolescent brain in socioeconomic context. In: Adolescent psychopathology and the developing brain: integrating brain and prevention science; 2007.  https://doi.org/10.1093/acprof:oso/9780195306255.003.0016.CrossRefGoogle Scholar
  8. 8.
    Evans GW, Schamberg MA. Childhood poverty, chronic stress, and adult working memory. Proc Natl Acad Sci. 2009;106(16):6545–9.  https://doi.org/10.1073/pnas.0811910106.CrossRefPubMedGoogle Scholar
  9. 9.
    Steinberg L. Cognitive and affective development in adolescence. Trends Cogn Sci. 2005;9(2):69–74.  https://doi.org/10.1016/j.tics.2004.12.005.CrossRefPubMedGoogle Scholar
  10. 10.
    Turkel S, Pao M. Late consequences of chronic pediatric illness. Psychiatr Clin North Am. 2007;30(4):819–35.  https://doi.org/10.1016/j.psc.2007.07.009.CrossRefPubMedPubMedCentralGoogle Scholar
  11. 11.
    Sathananthan R, David J. The adolescent with rheumatic disease. Arch Dis Child. 1997;77(4):355–8.  https://doi.org/10.1136/adc.77.4.355.CrossRefPubMedPubMedCentralGoogle Scholar
  12. 12.
    Erkolahti RK, Ilonen T, Saarijärvi S. Self-image of adolescents with diabetes mellitus type-I and rheumatoid arthritis. Nord J Psychiatry. 2003;57(4):309–12.  https://doi.org/10.1080/08039480310002101.CrossRefPubMedGoogle Scholar
  13. 13.
    Pinquart M. Body image of children and adolescents with chronic illness: a meta-analytic comparison with healthy peers. Body Image. 2013;10(2):141–8.  https://doi.org/10.1016/j.bodyim.2012.10.008.CrossRefPubMedGoogle Scholar
  14. 14.
    Al Sabbah H, Vereecken CA, Elgar FJ, et al. Body weight dissatisfaction and communication with parents among adolescents in 24 countries: international cross-sectional survey. BMC Public Health. 2009;9:52.  https://doi.org/10.1186/1471-2458-9-52.CrossRefPubMedPubMedCentralGoogle Scholar
  15. 15.
    Taal E, Rasker JJ, Timmers CJ. Measures of physical function and emotional well being for young adults with arthritis. J Rheumatol. 1997;24(5):994–7.PubMedGoogle Scholar
  16. 16.
    Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: social function, relationships and sexual activity. Rheumatology (Oxford). 2002;41(12):1440–3.  https://doi.org/10.1093/rheumatology/41.12.1428. CrossRefGoogle Scholar
  17. 17.
    Kaushansky D, Cox J, Dodson C, McNeeley M, Kumar S, Iverson E. Living a secret: disclosure among adolescents and young adults with chronic illnesses. 2016;  https://doi.org/10.1177/1742395316655855.CrossRefGoogle Scholar
  18. 18.
    Neufeld JA, Klingbeil F, Bryen DN, Silverman B, Thomas A. Adolescent sexuality and disability. Phys Med Rehabil Clin N Am. 2002;13(4):857–73.  https://doi.org/10.1016/S1047-9651(02)00045-1.CrossRefPubMedGoogle Scholar
  19. 19.
    Moore S, Rosenthal D. Sexuality in adolescence: Current trends. Hove: Routledge, 2006.CrossRefGoogle Scholar
  20. 20.
    Berman H, Harris D, Enright R, Gilpin M, Cathers T, Bukovy G. Sexuality and the adolescent with a physical disability: understandings and misunderstandings. Issues Compr Pediatr Nurs. 1999;22(4):183–96.  https://doi.org/10.1080/014608699265275.CrossRefPubMedGoogle Scholar
  21. 21.
    Tay L, Diener E. Needs and subjective well-being around the world. J Pers Soc Psychol. 2011;101(2):354–65.  https://doi.org/10.1037/a0023779.CrossRefPubMedGoogle Scholar
  22. 22.
    Deci EL, Ryan RM. The “What” and “Why” of goal pursuits: human needs and the self-determination of behavior. Psychol Inq. 2000;11(4):227–68.  https://doi.org/10.1207/S15327965PLI1104_01.CrossRefGoogle Scholar
  23. 23.
    Compas BE, Connor-Smith JK, Saltzman H, Thomsen AH, Wadsworth ME. Coping with stress during childhood and adolescence: problems, progress, and potential in theory and research. Psychol Bull. 2001;127(1):87–127.  https://doi.org/10.1037/0033-2909.127.1.87.CrossRefPubMedGoogle Scholar
  24. 24.
    Connor-Smith JK, Compas BE, Wadsworth ME, Thomsen AH, Saltzman H. Responses to stress in adolescence: measurement of coping and involuntary stress responses. J Consult Clin Psychol. 2000;68(6):976–92.  https://doi.org/10.1037//0022-006X.68.6.976.CrossRefPubMedGoogle Scholar
  25. 25.
    Compas BE, Jaser SS, Dunn MJ, Rodriguez EM. Coping with chronic illness in childhood and adolescence. Annu Rev Clin Psychol. 2012;8(1):455–80.  https://doi.org/10.1146/annurev-clinpsy-032511-143108.CrossRefPubMedGoogle Scholar
  26. 26.
    Beck JS. Cognitive behavior therapy: basics and beyond; 2011.  https://doi.org/10.1017/CBO9781107415324.004.CrossRefGoogle Scholar
  27. 27.
    Burckhardt R, Manicavasagar V, Batterham PJ, Hadzi-Pavlovic D, Shand F. Acceptance and commitment therapy universal prevention program for adolescents: a feasibility study. Child Adolesc Psychiatry Ment Health. 2017;11(1):27.  https://doi.org/10.1186/s13034-017-0164-5.CrossRefPubMedPubMedCentralGoogle Scholar
  28. 28.
    Reinecke MA, Ryan NE, Dubois DL. Cognitive-behavioral therapy of depression and depressive symptoms during adolescence: a review and meta-analysis. J Am Acad Child Adolesc Psychiatry. 1998;37(1):26–34.  https://doi.org/10.1097/00004583-199801000-00013.CrossRefPubMedGoogle Scholar
  29. 29.
    Dufton LM, Dunn MJ, Slosky LS, Compas BE. Self-reported and laboratory-based responses to stress in children with recurrent pain and anxiety. J Pediatr Psychol. 2011;36(1):95–105.  https://doi.org/10.1093/jpepsy/jsq070.CrossRefPubMedGoogle Scholar
  30. 30.
    McDonagh JE. Young people first, juvenile idiopathic arthritis second: transitional care in rheumatology. Arthritis Rheum. 2008;59(8):1162–70.  https://doi.org/10.1002/art.23928.CrossRefPubMedGoogle Scholar
  31. 31.
    Hair EC, Jager J, Garrett SB. Helping teens develop healty social skills and relationships: What research shows about navigating adolescence. Washington, DC: Child Trends, 2002.Google Scholar
  32. 32.
    Bandura A. Recycling misconceptions of perceived self-efficacy. Cogn Ther Res. 1984;8(3):231–55.  https://doi.org/10.1007/BF01172995.CrossRefGoogle Scholar
  33. 33.
    Ennett ST, DeVellis BM, Earp JA, Kredich D, Warren RW, Wilhelm CL. Disease experience and psychosocial adjustment in children with juvenile rheumatoid arthritis: children’s versus mothers’ reports. J Pediatr Psychol. 1991;16(5):557–68. http://www.ncbi.nlm.nih.gov/pubmed/1744805. Accessed October 31, 2017.CrossRefGoogle Scholar
  34. 34.
    Leversen I, Danielsen AG, Birkeland MS, Samdal O. Basic psychological need satisfaction in leisure activities and adolescents’ life satisfaction. J Youth Adolesc. 2012;41(12):1588–99.  https://doi.org/10.1007/s10964-012-9776-5.CrossRefPubMedPubMedCentralGoogle Scholar
  35. 35.
    Weissman MM, Orvaschel H, Padian N. Children’s symptom and social functioning self-report scales: comparison of mothers’ and children’s reports. J Nerv Ment Dis. 1980;168(12):736–40.  https://doi.org/10.1097/00005053-198012000-00005.CrossRefPubMedGoogle Scholar
  36. 36.
    Faulstich ME, Carey MP, Ruggiero L, Enyart P, Gresham F. Assessment of depression in childhood and adolescence: an evaluation of the Center for Epidemiological Studies Depression Scale for Children (CES-DC). Am J Psychiatry. 1986;143(8):1024–7.  https://doi.org/10.1176/ajp.143.8.1024.CrossRefPubMedGoogle Scholar
  37. 37.
    Phipps S, Srivastava DK. Repressive adaptation in children with cancer. Health Psychol. 1997;16(6):521–8. Cognitive therapy and research.CrossRefGoogle Scholar
  38. 38.
    Freer M. The mental health consultation (with a young person): A toolkit for GPs [Internet]. RCGP and the Charlie Waller Trust; 2012 [cited 2018 Nov 26]. Available from: http://www.rcgp.org.uk/clinical-and-research/clinicalresources/youth-mental-health/youth-mental-health-resources.aspx.

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Arthritis Research UK Centre for Adolescent Rheumatology, University College LondonLondonUK
  2. 2.Health Psychology Section, Institute of Psychiatry, Psychology and Neuroscience, King’s College LondonLondonUK

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