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Spiritual Care

  • S. Judith LongEmail author
Chapter

Abstract

A diagnosis of serious neurologic illness challenges spiritual well-being. Loss of identity, uncertainty of prognosis, or fear of dementia, can result in feelings of meaninglessness, isolation, or helplessness. Difficult emotions are also common, such as grief, guilt, fear, and anger.

By recognizing these challenges, clinicians can better discern how to offer basic spiritual support and when to request help from a chaplain, who is the spiritual care specialist on the team. The chaplain helps patients, families, and clinicians discover and use their spiritual resources in the service of their healing and strengthen their spiritual resilience. The chaplain also helps the team understand the patient’s and family’s spiritual and cultural perspectives which affect their treatment decisions. This chapter discusses common challenges to spiritual well-being for patients and families affected by neurologic illness, and suggests ways to initiate spiritual support and help build resilience. The chapter ends with take away messages, triggers for requesting a palliative care specialist or chaplain, and tips for working with difficult situations.

Keywords

Spiritual well-being Resilience Caregiver Difficult emotions Grief Loss Meaninglessness Isolation Helplessness 

References

  1. 1.
    Puchalski C. The role of spirituality. In: Pulchalski CM, editor. A time for listening and caring: spirituality ad the care of the chronically ill and dying. New York: Oxford University Press; 2006. p. 22.CrossRefGoogle Scholar
  2. 2.
    Handzo G. Chaplain leadership/mentorship and the team approach. Palliative Care Certificate Program, Online Course 2014.Google Scholar
  3. 3.
    Handzo G. The process of spiritual/pastoral care: a general theory for providing spiritual/pastoral care using palliative care as a paradigm. In: Roberts SB, editor. Professional spiritual & pastoral care: a practical clergy and chaplain’s handbook. Woodstock: Skylight Paths; 2016. p. 21.Google Scholar
  4. 4.
    Sulmasy D. The health professional as a person: the spirituality of providing care at the end of life. In: Pulchalski CM, editor. A time for listening and caring: spirituality and the care of the chronically ill and dying. New York: Oxford University; 2006. p. 14.Google Scholar
  5. 5.
    Clark P, Drain M, Malone MP. Addressing patients’ emotional and spiritual needs. Joint Comm J Qual Saf. 2003;29(12):2.Google Scholar
  6. 6.
    Neff K. Self-compassion: stop beating yourself up and leave insecurity behind. New York: Harper Collins; 2011.Google Scholar
  7. 7.
    Germer C. The mindful path to self-compassion: freeing yourself from destructive thoughts and emotions. New York: Guilford Press; 2009.Google Scholar
  8. 8.
    Chochinov H. Dignity therapy: final words for final days. Oxford: Oxford University Press; 2012.CrossRefGoogle Scholar
  9. 9.
    Pantilat S. Life after the diagnosis: expert advice on living well with serious illness for patients and caregivers. Boston: Da Capo Press; 2017.Google Scholar
  10. 10.
    McGonigal K. The upside of stress: why stress is good for you and how to get good at it. New York: Penguin Random House; 2015.Google Scholar
  11. 11.
    Grech A, Marks A. Existential suffering: part 1: definition and diagnosis. J Palliat Med. 2017;20(1):93.CrossRefGoogle Scholar
  12. 12.
    Yalom I. Starting at the sun: overcoming the terror of death. 2008.CrossRefGoogle Scholar
  13. 13.
    Halifax J. A heuristic model of enactive compassion. Curr Opin Support Palliat Care. 2012;6(2):8.CrossRefGoogle Scholar
  14. 14.
    Cullen M, Brito PG. The mindfulness-based emotional balance workbook: an eight week program for improved emotion regulation and resilience. Oakland: New Harbinger; 2015.Google Scholar
  15. 15.
    Tirch D, Schoendorff B, Silberstein L. The ACT practitioner’s guide to the science of compassion: tools for fostering psychological flexiblity. Oakland: New Harbinger Publications; 2014.Google Scholar
  16. 16.
    Stuart S, Robertson M. Interpersonal psychotherapy: a clinician’s guide. Boca Raton: CRC Press; 2012.CrossRefGoogle Scholar
  17. 17.
    Kabat-Zinn J, Hanh T. Full catastrophe living: using the wisdom of your body and mind to face stress, pain, and illness. New York: Delta; 2009.Google Scholar
  18. 18.
    Wetherell J. Complicated grief therapy as a new treatment approach. Diaglogues Clin Neurosci. 2012;14(2):159.Google Scholar
  19. 19.
    Bonnano G. The other side of sadness: what the new science of bereavement tells us about life after loss. New York: Basic Books; 2009.Google Scholar
  20. 20.
    Schutz R, Coats H, Engelberg R, Curtis J, Creutzfeldt C. Is there hope? is she there? how families and clinicians experience severe acute brain injury. J Palliat Med. 2017;20(2):170.CrossRefGoogle Scholar
  21. 21.
    Cooper R, Ferguson A, Bodurtha J, Smith T. AMEN in challenging converations: bridging the gaps between faith, hope, and medicine. J Oncol Pract. 2014;10(4):e191–5.CrossRefGoogle Scholar
  22. 22.
    Guttierez S. Cultural competencies. In: SB R, editor. Professional spiritual and pastoral care: a practical chaplain’s handbook. Woodstock: Skylight Paths; 2016.Google Scholar
  23. 23.
    Brown S, Smith D, Schulz R, Kabeto M, Ubel P, Poulin M, et al. Caregiving behavior is associated with decreased mortality risk. Psychol Sci. 2009;20(4):7.Google Scholar
  24. 24.
    Fredrickson B, Grewen K, Coffey K, Algoe S, Firestine A, Arevalo J, et al. A functional genomic perspective on human well-being. Proceedings of the National Academy of Sciences; 2013.Google Scholar
  25. 25.
    Crum A, Leibowitz K, Verghese A. Making mindset matter. BMJ Br Med J. 2017;356.Google Scholar
  26. 26.
    Jinpa T. A fearless heart: how the courage to be compassionate can transform our lives. New York: Hudson Street; 2015.Google Scholar
  27. 27.
    Brown R, Brown S. Informal caregiving: a reappraisal of effects on caregivers. Soc Issues Policy Rev. 2014;8(1):29.CrossRefGoogle Scholar
  28. 28.
    Taylor S, Masters S. Social responses to stress: the tend-and-befriend model. In: The handbook of stress science: biology, psychology, and health. 2011. p. 9.Google Scholar
  29. 29.
    Emmons R. Thanks!: how the new science of gratitude can make you happier. 2007.Google Scholar

Copyright information

© Springer International Publishing AG, part of Springer Nature 2019

Authors and Affiliations

  1. 1.Spiritual Care Services University of California San FranciscoSan FranciscoUSA
  2. 2.Department of Neurology and the Division of Palliative MedicineUniversity of CaliforniaSan FranciscoUSA

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