What Is Participatory Health Research?

  • Michael T. WrightEmail author
  • Jane Springett
  • Krystyna Kongats


Participatory health research is practiced in many countries around the world, drawing from different traditions which are based in various cultures and time periods. In spite of the wide variation in theory and practice, the different traditions show remarkable similarities. This chapter identifies 11 common principles based on the first position paper of the International Collaboration for Participatory Health Research (ICPHR). References to publications from various countries serve to illustrate each of the 11 criteria.


Participatory health research Paradigm Research methodology 


  1. ATHENA Network, & Global Coalition on Women and AIDS (GCWA). (2013) Building women’s global meaningful participation in the high level meeting on AIDS.
  2. Bassey, M. (2001). A solution to the problem of generalisation in educational research: Fuzzy prediction. Oxford Review of Education, 27(1), 5–22.CrossRefGoogle Scholar
  3. Blackstock, K. L., Kelly, G. J., & Horsey, B. L. (2007). Developing and applying a framework to evaluate participatory research for sustainability. Ecological Economics, 60(4), 726–742.CrossRefGoogle Scholar
  4. Brandão, C. R. (Org.) (1987). Repensando a pesquisa participante. 3 ed. São Paulo: Brasiliense.Google Scholar
  5. Brito, I. (2008). Intervenção de conscientização para prevenção da brucelose em área endémica. Tese de Doutoramento em Ciências de Enfermagem, Instituto de Ciências Biomédicas Abel Salazar ICBAS.Google Scholar
  6. Cargo, M., & Mercer, S. L. (2008). The value and challenges of participatory research: Strengthening its practice. Annual Review of Public Health, 29, 325–350.CrossRefPubMedCentralGoogle Scholar
  7. Conchelos, G., & Kassam, Y. (1981). A brief review of critical opinions and responses on issues facing participatory research. Convergence, 14(3), 52.Google Scholar
  8. Cook, T. (2009). The purpose of mess in action research: Building rigour through a messy turn. Educational Action Research, 17(2), 277–291.CrossRefGoogle Scholar
  9. Cornwall, A. (2008). Unpacking “Participation” models, meanings and practices. Community Development Journal, 43(3), 269–283.CrossRefGoogle Scholar
  10. Cropper, S., Porter, A., Williams, G., Carlisle, S., Moore, R., O’Neill, M., Roberts, C., & Snooks, H. (2010). Community health and wellbeing. Action research on inequalities. Bristol: Policy Press.Google Scholar
  11. Dadds, M. (2008). Empathetic validity in practitioner research. Educational Action Research, 16(2), 279–290.CrossRefGoogle Scholar
  12. Denzin, N. K., & Lincoln, Y. S. (Eds.). (2011). The Sage handbook of qualitative research. London: Sage.Google Scholar
  13. Department of Health (DoH). (1999). Patient and public involvement in the NHS. London: Department of Health.Google Scholar
  14. Department of Health (DoH). (2006). Best research for best health: A new national health research strategy. London: DH Publications.Google Scholar
  15. Edwards, K., Lund, C., & Gibson, N. (2008). Validity: Expecting the unexpected in community-based research. Pimatisiwin A Journal of Aboriginal and Indigenous Community Health, 6(3), 17–29.Google Scholar
  16. Fals-Borda, O., & Rahman, M. (Eds.). (1991). Action and knowledge. Breaking the monopoly with participatory action research. New York: Apex.Google Scholar
  17. Freire, P. (1970). Pedagogy of the oppressed. New York: Herder & Herder.Google Scholar
  18. Goldberger, N. R., Tanile, J. M., Clinchy, B. M., & Belenky, M. F. (Eds.). (1996). Knowledge, difference and power: Essays inspired by women’s ways of knowing. New York: Basic Books.Google Scholar
  19. Greenwood, D. J., & Levin, M. (2005). Reform of the social sciences and of universities through action research. In N. K. Denzin & Y. S. Lincoln (Eds.), The Sage handbook of qualitative research (3rd ed., pp. 43–64). Thousand Oaks: Sage.Google Scholar
  20. Guba, E. G., & Lincoln, Y. S. (2005). Paradigmatic controversies, contradictions, and emerging confluences. In N. K. Denzin & Y. S. Lincoln (Eds.), Sage handbook of qualitative research (pp. 191–215). London: Sage Publications.Google Scholar
  21. Hart, E., & Bond, M. (1995). Action research for health & social care. London: Open University.Google Scholar
  22. Institute of Medicine (IOM). (2009). Initial national priorities for comparative effectiveness research. Washington, DC: The National Academy Press.Google Scholar
  23. International Collaboration for Participatory Health Research (ICPHR). (2013). Position paper 1: What is participatory health research? Version: May 2013. Berlin: International Collaboration for Participatory Health Research.Google Scholar
  24. International Planned Parenthood Federation (IPPF), The Joint United Nations Programme on HIV/AIDS (UNAIDS), Global Network of People living with HIV/AIDS (GNP+), International Community of Women living with HIV/AIDS (ICW). (2013). The people living with HIV stigma index.
  25. Ismail, S. (2009). Participatory health research. international observatory on health research systems. Cambridge: RAND Europe.Google Scholar
  26. Israel, B. A., Schulz, A. J., Parker, E. A., & Becker, A. B. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19(1), 173–202.CrossRefGoogle Scholar
  27. Israel, B. A., Schulz, A. J., Parker, E. A., Becker, A. B., Allen, A. J., & Guzman, J. R. (2003). Critical issues in developing and following community-based participatory research principles. In M. Minkler & N. Wallerstein (Eds.), Community-based participatory research for health (pp. 56–73). San Francisco: Jossey-Bass.Google Scholar
  28. Jagosh, J., Pluye, P., Macaulay, A. C., Salsberg, J., Henderson, J., Sirett, E., Bush, P. L., Seller, R., Wong, G., Greenhalgh, T., Cargo, M., Herbert, C. P., Seifer, S. D., & Green, L. W. (2011). Assessing the outcomes of participatory research: Protocol for identifying, selecting, appraising and synthesizing the literature for realist review. Implementation Science, 6(1), 24.CrossRefPubMedCentralGoogle Scholar
  29. Jagosh, J., Macaulay, A. C., Pluye, P., Salsberg, J., Bush, P. L., Henderson, J., Sirett, E., Wong, G., Cargo, M., Herbert, C. P., Seifer, S. D., Green, L. W., & Greenhalgh, T. (2012). Uncovering the benefits of participatory research: Implications of a realist review for health research and practice. The Milbank Quarterly, 90(2), 311–346.CrossRefPubMedCentralGoogle Scholar
  30. Johansson, A. W., & Lindhult, E. (2008). Emancipation or workability? Critical versus pragmatic scientific orientation in action research. Action Research, 6(1), 95–115.CrossRefGoogle Scholar
  31. Kuhn, T. S. (2012). The structure of scientific revolutions. Chicago: University of Chicago press.CrossRefGoogle Scholar
  32. Lather, P. (1986). Research as practice. Harvard Educational Review, 55(3), 290–300.Google Scholar
  33. Ledwith, M., & Springett, J. (2010). Participatory practice. Community-based action for transformative change. Bristol: The Policy Press.Google Scholar
  34. Lukesch, H., & Zecha, G. (1978). Neue Handlungsforschung? Programm und Praxis gesellschaftskritischer Sozialforschung. Soziale Welt, 29, 26–43.Google Scholar
  35. Macaulay, A., Commanda, L., Freeman, W. L., Gibson, N., McCabe, M., Robbins, C., & Twohig, P. (1999). Responsible research with communities: Participatory research in primary care. British Medical Journal, 319, 774–778.CrossRefPubMedCentralGoogle Scholar
  36. Macaulay, A. C., Jagosh, J., Seller, R., Henderson, J., Cargo, M., Greenhalgh, T., Wong, G., Salsberg, J., Green, L. W., Herbert, C. P., & Pluye, P. (2011). Assessing the benefits of participatory research: A rationale for a realist review. Global Health Promotion, 18(2), 45–48.CrossRefPubMedCentralGoogle Scholar
  37. Mellor, N. (1999). From exploring practice to exploring inquiry: A practitioner researcher’s experience. PhD thesis. Newcastle: University of Northumbria.Google Scholar
  38. Mercer, G. (2002). Emancipatory disability research. In C. Barnes, M. Oliver, & L. Barton (Eds.), Disability studies today (pp. 228–249). Cambridge: Blackwells.Google Scholar
  39. Mezirow, J., et al. (1990). Fostering critical reflection in adulthood. A guide to transformational and emancipatory learning. San Francisco: Jossey-Bass.Google Scholar
  40. Minkler, M., & Wallerstein, N. (2008). Community-based participatory research for health: From process to outcome. San Francisco: Jossey-Bass.Google Scholar
  41. National Health and Medical Research Council & Consumers’ Health Forum of Australia. (2002). Statement on consumer and community participation in health and medical research. Canberra: Commonwealth of Australia.Google Scholar
  42. Nutbeam, D (2000) Health Literacy as a Public Health Goal: A Challenge for Contemporary Health Education and Communication Strategies into the 21st Century. Health Promotion International; 15(3): 259–267.CrossRefGoogle Scholar
  43. Onwuegbuzie, A. J., Johnson, R. B., & Collins, K. M. (2009). Call for mixed analysis: A philosophical framework for combining qualitative and quantitative approaches. International Journal of Multiple Research Approaches, 3(2), 114–139.CrossRefGoogle Scholar
  44. Reason, P., & Bradbury, H. (2001). Handbook of action research: Participative inquiry and practice. London: Sage.Google Scholar
  45. Reason, P., & Bradbury, H. (Eds.). (2008). Handbook of action research (2nd ed.). Thousand Oaks: Sage.Google Scholar
  46. Rifkin, S. B. (1996). Paradigms lost: Toward a new understanding of community participation in health programmes. Acta Tropica, 61(2), 79–92.CrossRefPubMedCentralGoogle Scholar
  47. Roman, L. G., & Apple, M. W. (1990). Is naturalism a move away from positivism? Materialist and feminist approaches to subjectivity in ethnographic research. In E. W. Eisner & A. Peshkin (Eds.), Qualitative inquiry in education (pp. 38–73). New York: Teachers’ College Press.Google Scholar
  48. Schön, D. (1983). The reflective practitioner. How professionals think in action. London: Maurice Temple Smith Ltd.Google Scholar
  49. Smithies, J., & Webster, G. (1998). Community involvement in health. From passive recipients to active participants. Aldershot: Ashgate.Google Scholar
  50. Sohng, S. S. L. (1995). Participatory research and community organizing. Working paper presented at the New Social Movement and Community Organizing Conference, University of Washington, Seattle, WA. November 1–3, 1995.Google Scholar
  51. Stoecker, R. (2013). Research methods for community change: A project-based approach. Thousand Oaks: Sage.CrossRefGoogle Scholar
  52. von Unger, H., Block, M., & Wright, M. T. (2007). Aktionsforschung im deutschsprachigen Raum. Zur Geschichte und Aktualität eines kontroversen Ansatzes aus Public Health Sicht, der Reihe ‘Discussion Papers’. Berlin: Wissenschaftszentrum Berlin für Sozialforschung Berlin.Google Scholar
  53. Viswanathan, M., Ammerman, A., Eng, E., Gartlehner, G., Lohr, K. N., Griffith, D., Rhodes, S., Samuel-Hodge, C., Maty, S., Lux, L., Webb, L., Sutton, S. F., Swinson, T., Jackman, A., & Whitener, L. (2004). Community-based participatory research: Assessing the evidence, Summary, Evidence Report/Technology Assessment: Number 99. AHRQ Publication Number 04-E022-1, August 2004. Rockville: Agency for Healthcare Research and Quality.Google Scholar
  54. Von Unger, H. (2012). Participatory health research with immigrant communities in Germany. International Journal of Action Research, 8(3), 266–287.Google Scholar
  55. Waterman, H., Tillen, D., Dickson, R., & de Koning, K. (2001). Action research: A systematic review and guidance for assessment. Health Technology Assessment, 5(23), 1–166.CrossRefGoogle Scholar
  56. Whitelaw, S., Beattie, A., Balogh, R., & Watson, J. (2003). A review of the nature of action research. Cardiff: Welsh Assembly Government.Google Scholar
  57. Winter, R. (2002). Truth or fiction: Problems of validity and authenticity in narratives of action research. Educational Action Research, 10(1), 143–154.CrossRefGoogle Scholar
  58. Wright, M. T. (Ed.). (2010). Partizipative Qualitätsentwicklung in der Gesundheitsförderung und Prävention. Bern: Hans-Huber.Google Scholar
  59. Wright, M. T. (2012). Partizipation in der Praxis: die Herausforderung einer kritisch reflektierten Professionalität. In R. Rosenbrock & S. Hartung (Eds.), Partizipation und Gesundheit (pp. 91–101). Bern: Hans-Huber.Google Scholar
  60. Wright, M. T. (2016). Partizipative Gesundheitsforschung. In Bundeszentrale für gesundheitliche Aufklärung (BZgA), Leitbegriffe der Gesundheitsförderung.
  61. Wright, M. T., Roche, B., von Unger, H., Block, M., & Gardner, B. (2009). A call for an international collaboration on participatory research for health. Health Promotion International, 25(1), 115–122.CrossRefPubMedCentralGoogle Scholar
  62. Wright, M. T., von Unger, H., & Block, M. (2010a). Lokales Wissen, lokale Theorie und lokale Evidenz für die Prävention und Gesundheitsförderung. In M. T. Wright (Ed.)., (2010) Partizipative Qualitätsentwicklung in der Gesundheitsförderung und Prävention (pp. 53–74). Hans-Huber: Bern.Google Scholar
  63. Wright, M. T., Gardner, B., Roche, B., von Unger, H., & Ainlay, C. (2010b). Building an international collaboration on participatory health research. Progress in Community Health Partnerships: Research, Education, and Action, 4(1), 31–36.CrossRefGoogle Scholar
  64. Wright, M. T., Kilian, H., & Brandes, S. (2013). Praxisbasierte Evidenz in der Prävention und Gesundheitsförderung bei sozial Benachteiligten. Das Gesundheitswesen. Scholar

Copyright information

© Springer International Publishing AG, part of Springer Nature 2018

Authors and Affiliations

  • Michael T. Wright
    • 1
    Email author
  • Jane Springett
    • 2
  • Krystyna Kongats
    • 3
  1. 1.Catholic University of Applied Sciences, Institute for Social HealthBerlinGermany
  2. 2.School of Public HealthUniversity of AlbertaEdmontonCanada
  3. 3.School of Public HealthUniversity of AlbertaEdmontonCanada

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