Carers Perspective: “The Wind, It Howls”
When Chris was diagnosed with a brain tumour in early 2005, it changed our lives, a rug pulled sharply from under our feet. Thirteen years on we have dealt with the reality of the symptoms, the grief of having our future expectations shattered and the anticipatory grief. With the constant awareness also comes appreciation and extraordinary joy in everyday life, which can’t be taken for granted in the context of the uncertainty of the prognosis.
Being a carer wasn’t what I had expected, but it is what has happened. Our experience has evolved over time, with distinct phases, from the adjustment and acceptance of the diagnosis through the crisis periods, treatments and cycles of scans and now a normality that exists whilst also being constantly aware that the brain tumour is impacting in very many ways. Together we are continuing on this journey, a journey I would like to be able to stop at times, but also one that I don’t want to end, as I do not want my partner to die—it is such a complex dilemma.