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Holistic Needs Assessment and Care Planning

  • Karin PiilEmail author
  • Lena Rosenlund
Chapter

Abstract

The complexity of symptoms, needs and concerns experienced by brain tumour patients and their informal caregivers requires a timely and coordinated response from healthcare services and providers. The holistic needs assessment is a systematic way of conducting an overall assessment together with the patient and caregiver, which involves an approach that covers all domains of care.

It is imperative that clinical specialists are familiar with the needs, preferences and interests of patients and their caregivers in order to provide the best possible care. Advance care planning involves (together with the patient and their caregivers) thinking about, talking about and planning for the future, including end-of-life decisions. Determining the appropriate timing for these discussions is, however, problematic and is discussed in this chapter.

This chapter presents key areas of interest when conducting a holistic needs assessment and emphasises the need to determine the future direction of advance care planning research within neuro-oncology in order to establish evidence-based, best clinical practice.

Keywords

Holistic needs assessment Relatives Symptom management Concerns Advance care planning Tools Measurements 

Abbreviations

ACP

Advance care planning

DT

Distress thermometer

EOL

End of life

EORTC

European Organization for Research and Treatment of Cancer

FACT-Br

Functional assessment of cancer therapy-brain

HADS

Hospital Anxiety and Depression Scale

HNA

Holistic needs assessment

HRQOL

Health-related quality of life

MBT

Malignant brain tumour

MDASI-BT

MD Anderson Symptom Inventory for Brain Tumour

MUIS-BT

Mishel uncertainty in illness scale-brain tumour

NFBrSI-24

National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy-Brain Symptom Index

PCI

Patient concerns inventory

PI

Prognostic information

PREM

Patient-reported experience measures

PRO

Patient-reported outcome

QOL

Quality of life

SNAS

Sherbrooke Neuro-Oncology Assessment Scale

SPARC

Sheffield Profile for Assessment and Referral for Care

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Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Department of Oncology 5074Copenhagen University Hospital, RigshospitaletCopenhagen ØDenmark
  2. 2.Regionalt Cancercentrum Stockholm – GotlandStockholmSweden

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