Nursing Research

  • Lars-Petter Jelsness-JørgensenEmail author


Nurses play an increasingly active role in clinical research in IBD. By reviewing existing literature on the topic, this chapter provides a brief overview of some main concepts related to research in nursing. In addition, the chapter provides some general advice in relation to implementing evidence-based practice, as well as carrying out independent research.


Nursing research Clinical nursing research Evidence-based practice Evidence-based nursing Research Patient involvement 


  1. Abrandt Dahlgren M, Higgs J, Richardson B (2004) Developing practice knowledge for health professionals. Butterworth-Heinemann, EdinburghGoogle Scholar
  2. Bager P, Befrits R, Wikman O, Lindgren S, Moum B, Hjortswang H et al (2011) The prevalence of anemia and iron deficiency in IBD outpatients in Scandinavia. Scand J Gastroenterol 46(3):304–309CrossRefGoogle Scholar
  3. Bager P, Befrits R, Wikman O, Lindgren S, Moum B, Hjortswang H et al (2012) Fatigue in out-patients with inflammatory bowel disease is common and multifactorial. Aliment Pharmacol Ther 35(1):133–141CrossRefGoogle Scholar
  4. Coenen S, Weyts E, Vermeire S, Ferrante M, Noman M, Ballet V et al (2017) Effects of introduction of an inflammatory bowel disease nurse position on the quality of delivered care. Eur J Gastroenterol Hepatol 29(6):646–650CrossRefGoogle Scholar
  5. Czuber-Dochan W, Ream E, Norton C (2013a) Review article: description and management of fatigue in inflammatory bowel disease. Aliment Pharmacol Ther 37(5):505–516CrossRefGoogle Scholar
  6. Czuber-Dochan W, Dibley LB, Terry H, Ream E, Norton C (2013b) The experience of fatigue in people with inflammatory bowel disease: an exploratory study. J Adv Nurs 69(9):1987–1999CrossRefGoogle Scholar
  7. Czuber-Dochan W, Norton C, Bassett P, Berliner S, Bredin F, Darvell M et al (2014a) Development and psychometric testing of inflammatory bowel disease fatigue (IBD-F) patient self-assessment scale. J Crohns Colitis 8(11):1398–1406CrossRefGoogle Scholar
  8. Czuber-Dochan W, Norton C, Bredin F, Darvell M, Nathan I, Terry H (2014b) Healthcare professionals’ perceptions of fatigue experienced by people with IBD. J Crohns Colitis 8(8):835–844CrossRefGoogle Scholar
  9. Dibley L, Norton C (2013) Experiences of fecal incontinence in people with inflammatory bowel disease: self-reported experiences among a community sample. Inflamm Bowel Dis 19(7):1450–1462CrossRefGoogle Scholar
  10. Dibley L, Bager P, Czuber-Dochan W, Farrell D, Jelsness-Jorgensen LP, Kemp K et al (2017) Identification of research priorities for inflammatory bowel disease nursing in Europe: a Nurses-European Crohn’s and Colitis Organisation Delphi Survey. J Crohns Colitis 11(3):353–359PubMedGoogle Scholar
  11. Dicenso A, Bayley L, Haynes RB (2009) Accessing pre-appraised evidence: fine-tuning the 5S model into a 6S model. Evid Based Nurs 12(4):99–101CrossRefGoogle Scholar
  12. Domecq JP, Prutsky G, Elraiyah T, Wang Z, Nabhan M, Shippee N et al (2014) Patient engagement in research: a systematic review. BMC Health Serv Res 14:89CrossRefGoogle Scholar
  13. Elwyn G, Edwards A, Thompson R (2016) Shared decision making in health care: achieving evidence-based patient choice, 3rd edn. Oxford University Press, OxfordCrossRefGoogle Scholar
  14. Jaghult S, Larson J, Wredling R, Kapraali M (2007) A multiprofessional education programme for patients with inflammatory bowel disease: a randomized controlled trial. Scand J Gastroenterol 42(12):1452–1459CrossRefGoogle Scholar
  15. Jaghult S, Saboonchi F, Johansson UB, Wredling R, Kapraali M (2011) Identifying predictors of low health-related quality of life among patients with inflammatory bowel disease: comparison between Crohn’s disease and ulcerative colitis with disease duration. J Clin Nurs 20(11–12):1578–1587CrossRefGoogle Scholar
  16. Jelsness-Jorgensen LP (2015) Does a 3-week critical research appraisal course affect how students perceive their appraisal skills and the relevance of research for clinical practice? A repeated cross-sectional survey. Nurse Educ Today 35(1):e1–e5CrossRefGoogle Scholar
  17. Jelsness-Jorgensen LP, Moum B, Bernklev T (2011a) Worries and concerns among inflammatory bowel disease patients followed prospectively over one year. Gastroenterol Res Pract 2011:492034CrossRefGoogle Scholar
  18. Jelsness-Jorgensen LP, Bernklev T, Henriksen M, Torp R, Moum BA (2011b) Chronic fatigue is associated with impaired health-related quality of life in inflammatory bowel disease. Aliment Pharmacol Ther 33(1):106–114CrossRefGoogle Scholar
  19. Jelsness-Jorgensen LP, Bernklev T, Henriksen M, Torp R, Moum BA (2011c) Chronic fatigue is more prevalent in patients with inflammatory bowel disease than in healthy controls. Inflamm Bowel Dis 17(7):1564–1572CrossRefGoogle Scholar
  20. Jelsness-Jorgensen LP, Bernklev T, Henriksen M, Torp R, Moum B (2012a) Chronic fatigue is associated with increased disease-related worries and concerns in inflammatory bowel disease. World J Gastroenterol 18(5):445–452CrossRefGoogle Scholar
  21. Jelsness-Jorgensen LP, Bernklev T, Henriksen M, Torp R, Moum B (2012b) Is patient reported outcome (PRO) affected by different follow-up regimens in inflammatory bowel disease (IBD)? A one year prospective, longitudinal comparison of nurse-led versus conventional follow-up. J Crohns Colitis 6(9):887–894CrossRefGoogle Scholar
  22. Lindberg A, Ebbeskog B, Karlen P, Oxelmark L (2013) Inflammatory bowel disease professionals’ attitudes to and experiences of complementary and alternative medicine. BMC Complement Altern Med 13:349CrossRefGoogle Scholar
  23. Melnyk BM, Fineout-Overholt E, Stillwell SB, Williamson KM (2010) Evidence-based practice: step by step: the seven steps of evidence-based practice. Am J Nurs 110(1):51–53CrossRefGoogle Scholar
  24. Norton C, Dibley L (2013) Help-seeking for fecal incontinence in people with inflammatory bowel disease. J Wound Ostomy Continence Nurs 40(6):631–638; quiz E1-2CrossRefGoogle Scholar
  25. O’Connor M, Bager P, Duncan J, Gaarenstroom J, Younge L, Detre P et al (2013) N-ECCO consensus statements on the European nursing roles in caring for patients with Crohn’s disease or ulcerative colitis. J Crohns Colitis 7(9):744–764CrossRefGoogle Scholar
  26. Opheim R, Fagermoen MS, Bernklev T, Jelsness-Jorgensen LP, Moum B (2014a) Fatigue interference with daily living among patients with inflammatory bowel disease. Qual Life Res 23(2):707–717CrossRefGoogle Scholar
  27. Opheim R, Fagermoen MS, Jelsness-Jorgensen LP, Bernklev T, Moum B (2014b) Sense of coherence in patients with inflammatory bowel disease. Gastroenterol Res Pract 2014:989038CrossRefGoogle Scholar
  28. Oxelmark L, Magnusson A, Lofberg R, Hilleras P (2007) Group-based intervention program in inflammatory bowel disease patients: effects on quality of life. Inflamm Bowel Dis 13(2):182–190CrossRefGoogle Scholar
  29. Oxelmark L, Lindberg A, Lofberg R, Sternby B, Eriksson A, Almer S et al (2016) Use of complementary and alternative medicine in Swedish patients with inflammatory bowel disease: a controlled study. Eur J Gastroenterol Hepatol 28(11):1320–1328CrossRefGoogle Scholar
  30. Polit DF, Beck CT (2017) Nursing research: generating and assessing evidence for nursing practice, 10th edn. Wolters Kluwer, PhiladelphiaGoogle Scholar
  31. Sackett DL, Rosenberg WM (1995) The need for evidence-based medicine. J R Soc Med 88(11):620–624PubMedPubMedCentralGoogle Scholar
  32. Sackett DL, Rosenberg WM, Gray JA, Haynes RB, Richardson WS (1996) Evidence based medicine: what it is and what it isn’t. BMJ (Clinical Research Ed) 312(7023):71–72CrossRefGoogle Scholar
  33. Williams B, Perillo S, Brown T (2015) What are the factors of organisational culture in health care settings that act as barriers to the implementation of evidence-based practice? A scoping review. Nurse Educ Today 35(2):e34–e41CrossRefGoogle Scholar
  34. Woodward S, Dibley L, Coombes S, Bellamy A, Clark C, Czuber-Dochan W et al (2016) Identifying disease-specific distress in patients with inflammatory bowel disease. Br J Nurs (Mark Allen Publishing) 25(12):649–660CrossRefGoogle Scholar
  35. Younge L, Norton C (2007) Contribution of specialist nurses in managing patients with IBD. Br J Nurs (Mark Allen Publishing) 16(4):208–212CrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Østfold University College, Department of Health ScienceHaldenNorway
  2. 2.Østfold Hospital Trust, Department of GastroenterologyGrålumNorway

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