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‘The Stories Are All One’: Care, Compassion and Transformation

  • Tony Sumner
  • Pip Hardy
Chapter

Abstract

In this concluding chapter, Sumner and Hardy draw out some of the lessons from preceding chapters and synthesise the learning, particularly in relation to the key themes of involvement, impact and improvement; transformational learning; the healing power of the process; gathering the evidence of experience and co-production. They link this learning with the aspiration of Patient Voices to bring greater humanity and compassion to healthcare and set it within the context of the Patient Voices journey from stories to improvement, highlighting the centrality of stories in the healthcare endeavour. Sumner and Hardy conclude with a discussion and some examples of the ways in which digital storytelling and digital stories can—and do—contribute to greater compassion in healthcare and reiterate the potential of digital storytelling to bring about transformation.

References

  1. Albom, M. (2003). The five people you meet in heaven (1st ed.). New York: Hyperion.Google Scholar
  2. Alexandra, D. (2008). Digital storytelling as transformative practice: Critical analysis and creative expression in the representation of migration in Ireland. Journal of Media Practice, 9(2). doi:10.1386/jmpr.9.2.101/1.
  3. Alexandra, D. (2013). Visualizing voice, embodied objects, and implicating practice: Applied visual anthropology in Ireland. Dublin: Dublin Institute of Technology (DIT).Google Scholar
  4. Bailey-Dering, J. (2007). Getting to the bottom of things. Pilgrim Projects. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0110pv384.htm
  5. Ballatt, J., & Campling, P. (2011). Intelligent kindness: Reforming the culture of healthcare. London: RCPsych Publications.Google Scholar
  6. Couldry, N. (2010). Why voice matters: Culture and politics after neoliberalism. Los Angeles, CA: Sage Publications.Google Scholar
  7. Cummings, J. (2012). Compassion in practice. Nursing, midwifery and care staff, our vision and strategy. London: Department of Health.Google Scholar
  8. DH. (2001). Shifting the balance of power within the NHS: Securing delivery. Great Britain, London: Department of Health.Google Scholar
  9. DH. (2012). Transforming care: A national response to Winterbourne View Hospital. London: HMSO.Google Scholar
  10. Dunford, M., & Jenkins, T. (2017). Digital storytelling: Form and content. London: Palgrave Macmillan. doi:10.1057/978-1-137-59152-4.CrossRefGoogle Scholar
  11. Eliot, T. S. (1959). Four quartets. London: Faber & Faber.Google Scholar
  12. Francis, R. (2013). The final report of the Mid Staffordshire NHS Foundation Trust Public Inquiry.Google Scholar
  13. Gubrium, A., & Harper, K. (2013). Participatory visual and digital methods (Developing Qualitative Inquiry Series, vol. 10). Walnut Creek, CA: Left Coast Press.Google Scholar
  14. Hardy, P. (2004). Patient Voices: The rationale. Pilgrim Projects. http://www.patientvoices.org.uk/about.htm
  15. Hardy, P. (2006). Patient Voices: Hearing the stories at the heart of healthcare. Paper presented at the Nurse Education Tomorrow, University of Durham, UK.Google Scholar
  16. Hardy, P. (2007). An investigation into the application of the Patient Voices digital stories in healthcare education: Quality of learning, policy impact and practice-based value. MSc dissertation, University of Ulster, Belfast.Google Scholar
  17. Hardy, P. (2013). Fieldnotes: Storytellers’ reflections on a digital storytelling workshop in Manchester, November 2013.Google Scholar
  18. Hartley, J., & McWilliam, K. (2009). Story circle: Digital storytelling around the world. New York: John Wiley & Sons.CrossRefGoogle Scholar
  19. Hennessey, S. (2013). Only connect. Pilgrim Projects. Retrieved June 2014, from http://www.patientvoices.org.uk/flv/0690pv384.htm
  20. Heymann, E. (2008). Standing on my own two feet. Pilgrim Projects. Retrieved March 2014, form http://www.patientvoices.org.uk/flv/0249pv384.htm
  21. Heymann, E. (2009a). A chocolate watch. Pilgrim Projects. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0412pv384.htm
  22. Heymann, E. (2009b). From darkness into light: New worlds. Pilgrim Projects. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0345pv384.htm
  23. Heymann, E. (2010). The sun also rises. Pilgrim Projects. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0517pv384.htm
  24. Imai, M. (1997). Genba kaizen: A commonsense low-cost approach to management. New York: McGraw-Hill Professional.Google Scholar
  25. Jamissen, G., Hardy, P., Nordkvelle, Y., & Pleasants, H. (2017). Digital storytelling in higher education. London: Palgrave Macmillan. doi:10.1007/978-3-319-51058-3.CrossRefGoogle Scholar
  26. Kennedy, I. (2001). The report of the public inquiry into children’s heart surgery at the Bristol Royal Infirmary 1984–1995. Learning from Bristol (pp. 325–332). London: Stationery Office.Google Scholar
  27. Kotter, J. P., & Cohen, D. S. (2002). The heart of change: Real-life stories of how people change their organizations. Boston, MA: Harvard Business School Press.Google Scholar
  28. Lambert, J. (2002). Digital storytelling: Capturing lives, creating community (1st ed.). Berkeley, CA: Digital Diner Press.Google Scholar
  29. Livingstone, P. (2008). Once upon a time. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0208pv384.htm
  30. Livingstone, P. (2009). Tell me your story. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0402pv384.htm
  31. Matthews, N., & Sunderland, N. (2017). Digital storytelling in health and social policy: Listening to marginalised voices. Routledge advances in the medical humanities. Oxford and New York: Routledge.CrossRefGoogle Scholar
  32. Moran, M. (2014). CEO blog – Listen, believe, act. Chief Executive’s Blog, vol. 2014. Manchester Mental Health and Social Care Trust, Manchester.Google Scholar
  33. Ohler, J. B. (2013). Digital storytelling in the classroom: New media pathways to literacy, learning, and creativity. Thousand Oaks, CA: Corwin Press.CrossRefGoogle Scholar
  34. Pleasants, H. M., & Salter, D. E. (2014). Community-based multiliteracies and digital media projects: Questioning assumptions and exploring realities. New York: Peter Lang.CrossRefGoogle Scholar
  35. Porritt, I. (2008). A long and troubled road. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0209pv384.htm
  36. Porritt, I. (2009). A clearer road ahead. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0388pv384.htm
  37. Schön, D. (1988). Coaching reflective teaching. In G. L. Erickson & P. P. Grimmett (Eds.), Reflection in teacher education (pp. 19–29). New York: Teachers College Press.Google Scholar
  38. Stacey, G., & Hardy, P. (2011). Challenging the shock of reality through digital storytelling. Nurse Education in Practice, 11(2), 159–164. doi:10.1016/j.nepr.2010.08.003.CrossRefGoogle Scholar
  39. Sumner, T. (2013). How we can recruit for compassion. Health Service Journal.Google Scholar
  40. Thumim, N. (2012). Introduction: Self-representation and digital culture. In N. Thumim (Ed.), Self-representation and digital culture (pp. 1–18). London: Palgrave Macmillan.CrossRefGoogle Scholar
  41. Vaitkunas, D. (2013). Night shift. Pilgrim Projects. Retrieved June 2014, from http://www.patientvoices.org.uk/flv/0685pv384.htm
  42. Vanier, J. (2004). Drawn into the Mystery of Jesus through the Gospel of John. New York: Paulist Press.Google Scholar
  43. Winterson, J. (2004). Lighthousekeeping. London: Harper Perennial. (2005 printing).Google Scholar

Copyright information

© The Author(s) 2018

Authors and Affiliations

  • Tony Sumner
    • 1
  • Pip Hardy
    • 1
  1. 1.Patient Voices ProgrammePilgrim Projects LtdLandbeachUK

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