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Transition and Lifespan Care for Patients with Cerebral Palsy

  • Rita AyyangarEmail author
  • David Roye
  • Sara Silbert
  • Christian Treat
Chapter
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Abstract

A unifying goal in care of cerebral palsy (CP) for the patient across the lifespan is the enhancement of quality of life. We begin by defining quality of life and illustrate how society’s notion of care of individuals with CP and other disabilities has changed and shaped modern practice today. Then, we address some of the key considerations important to enhancing the quality of life for individuals with CP throughout their lifespan. We discuss the importance of focusing on key transitional periods as opportunities for improving quality of life. We will discuss the impacts of school and mental health among other factors on the quality of life of those with CP. Finally, we highlight the role that palliative care can play throughout the lifespan to ensure that the focus remains on sustaining a good quality of life.

Keywords

Quality of life Transitional care Goals Lifespan care Palliative care Mental health 

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Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  • Rita Ayyangar
    • 1
    Email author
  • David Roye
    • 2
    • 3
  • Sara Silbert
    • 4
  • Christian Treat
    • 5
  1. 1.Department of Physical Medicine and RehabilitationPediatric Rehabilitation Medicine, Faculty, Pediatric Palliative Care Stepping Stones Program, Michigan MedicineAnn ArborUSA
  2. 2.St. Giles Professor of Pediatric Orthopedic Surgery, New York Presbyterian Morgan Stanley Children’s HospitalNew YorkUSA
  3. 3.Weinberg Family Cerebral Palsy CenterNew YorkUSA
  4. 4.Fellow, Pediatric Palliative Care Stepping Stones Program, Michigan MedicineAnn ArborUSA
  5. 5.Vagelos College of Physicians and Surgeons, Columbia University Irving Medical CenterNew YorkUSA

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