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Social Capital and the Quality of Life of Parents of Children with Autism Spectrum Disorders: A Comparison Between Bedouin Fathers and Mothers

  • Iris Manor-Binyamini
  • Fares Ka’Abeya
Chapter
Part of the Advances in Mental Health and Addiction book series (AMHA)

Abstract

Purpose: The present study examined the differences and relationships between Social Capital and the Quality of Life of Bedouin fathers and mothers of children with Autism Spectrum Disorder (ASD). These relationships have not yet been studied in Bedouin community, nor have the differences between the two groups been studied.

Methods: A total of 200 parents of children with ASD participated in this study. The parents were asked to complete three questionnaires on demography, Social Capital questionnaire, and Quality of Life questionnaire.

Results: The findings show that fathers of children with ASD report a higher Quality of Life (physical, mental, and environmental) than mothers. It was also found that despite the positive relationships between the components of Social Capital (Bonding, Bridging, and Linking) and the components of Quality of Life (physical, mental, and environmental) for the general sample, these relationships were stronger among Bedouin fathers of children with ASD than among mothers.

Conclusions: The findings of the current study highlight the need to invest resources in increasing Social Capital, as it is a factor that contributes to a higher Quality of Life, especially among Bedouin mothers of children with ASD. This population is at risk due to aspects of Social Capital, particularly bridging and linking Social Capital, compared to Bedouin fathers of children with ASD.

Keywords

Social capital Quality of life Parents Autism spectrum disorders Bedouin 

References

  1. Al-Haj, M. (1987). Social change and family processes. Boulder, CO: Westview Press.Google Scholar
  2. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Washington, DC: American Psychiatric Publishing.CrossRefGoogle Scholar
  3. Boateng, A. (2010). The Arab world: Society, culture, and state. Berkeley, CA: University of California Press.Google Scholar
  4. Brisson, D. S., & Usher, C. L. (2005). Bonding social capital in low-income neighborhoods. Family Relations, 54(5), 644–653.CrossRefGoogle Scholar
  5. Bullen, P., & Onyx, J. (2000). Measuring social capital in five communities. The Journal of Applied Behavioral Science, 36(1), 23–42.CrossRefGoogle Scholar
  6. Dardas, L. A., & Ahmad, M. M. (2014). Quality of life among parents of children with autistic disorder: A sample from the Arab world. Research in Developmental Disabilities, 35(2), 278–287.CrossRefGoogle Scholar
  7. De Silva, M. J., McKenzie, K., Harpham, T., & Huttly, S. R. (2005). Social capital and mental illness: A systematic review. Journal of Epidemiology and Community Health, 59(8), 619–627.CrossRefGoogle Scholar
  8. Dwairy, M. (2002). Foundations of psychosocial dynamic personality theory of collective people. Clinical Psychology Review, 22(3), 343–360.CrossRefGoogle Scholar
  9. Dwairy, M. (2004). Individuation among Bedouin versus urban Arab adolescents: Ethnic and gender differences. Cultyral Diversity Ethnic Minority Psychology, 10, 340–350.Google Scholar
  10. Fwin, A., & Lev Ari, L. (2003). Social capital as a lever for extrication from the crisis in the periphery. Haifa, Israel: Haifa University: The Institute for Research on the Kibbutz and the Cooperative Idea. (In Hebrew).Google Scholar
  11. Hag-Yaha, M. (1994). The Arab family in Israel, its cultural values and their affinity to social work. Society and Welfare, 14, 249–264. (In Hebrew).Google Scholar
  12. Healy, K., & Hampshire, A. (2002). Social capital: A useful concept for social work? Australian Social Work, 55(3), 227–238.CrossRefGoogle Scholar
  13. McMichael, C., & Manderson, L. (2004). Somali women and well-being: Social networks and social capital among immigrant women in Australia. Human Organization, 63(1), 88–99.CrossRefGoogle Scholar
  14. McStay, R., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44, 3101–3118.CrossRefGoogle Scholar
  15. Manor-Binyamini, I. (2019). Listening to Bedouin fathers of children with autism spectrum disorder. Transcultural Psychiatry, 56(2), 345–358.CrossRefGoogle Scholar
  16. Manor-Binyamini, I., & Shoshana, A. (2018). Listening to Bedouin mothers of children with autism spectrum disorder. Culture, Medicine, and Psychiatry, 42(2), 401–418.CrossRefGoogle Scholar
  17. Mehmet, K. A., & Mehmet, O. (2005). Family in war and conflict: Using social capital for survival in war torn Cyprus. Journal of Comparative Family Studies, 15, 295–309.Google Scholar
  18. Peters, J. S. (2009). Review of marginalization of people with disabilities in Leabanon, Syria and Jordan. Background paper prepared for the education for all global monitoring report 2010. UNESCO. Retrieved from www.unesco.org/new/fileadmin/MULTIMEDIA/FIELD/Beirut/pdf
  19. Pozo, P., Sarria, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58, 442–458.CrossRefGoogle Scholar
  20. Putnam, R. D. (2000). Bowling alone: The collapse and revival of American community. New York, NY: Simon & Schuster.Google Scholar
  21. Requena, F. (2003). Social capital, satisfaction and quality of life in the workplace. Social Indicators Research, 61(3), 331–360.CrossRefGoogle Scholar
  22. Strier, R. (2009). Class-sensitive social work: A preliminary definition. International Journal of Social Welfare, 18(3), 237–242.CrossRefGoogle Scholar
  23. Taylor, R. J., Chatters, L. M., Hardison, C. B., & Riley, A. (2001). Informal social support networks and subjective well-being among African Americans. Journal of Black Psychology, 27(4), 439–463.CrossRefGoogle Scholar
  24. The Knesset Research and Information Center. (2015). Employment among Arab women. A report submitted to the Knesset on July 14, 2015.Google Scholar
  25. Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.CrossRefGoogle Scholar
  26. Warren, M. R., Thompson, P., & Saegert, S. (2001). The role of social capital in combating poverty. In S. Saegert, J. P. Thompson, & M. R. Warren (Eds.), Social capital and poor communities (pp. 1–28). New York, NY: Russell Sage Foundation.Google Scholar
  27. World Health Organization. (1996). The World Health Organization quality of life assessment – Brief questionnaire, field trial version (WHOQOL-BREF). Geneva, Switzerland: Author.Google Scholar
  28. Wouter, P. (2012). Community resilience and health: The role of bonding, bridging, and linking aspects of social capital. Health & Place, 18(2), 286–295.CrossRefGoogle Scholar
  29. Yamada, A., Kato, M., Suzuki, M., Suzuki, M., Watanabe, N., Akechi, T., & Furukawa, T. A. (2012). Quality of life of parents raising children with pervasive developmental disorders. BMC Psychiatry, 12, 119.CrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  • Iris Manor-Binyamini
    • 1
  • Fares Ka’Abeya
    • 1
  1. 1.Department of Special EducationUniversity of HaifaHaifaIsrael

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