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Patients’ Voices

  • Cetin Ezber
  • Eileen Radziunas
  • Richard West
  • Yusuf YaziciEmail author
Chapter

Abstract

The “patients’ perspective” plays a very important role in the diagnosis and especially the management of not just Behçet syndrome but any condition. A good working relationship with a patient not only helps to personalize the treatment for each unique patient’s needs, it also helps patients understand their disease and the reasons for various treatment decisions, and importantly, once these are achieved, it improves compliance with the management plan, a potentially major issue in any chronic condition.

Keywords

Patient’s perspective Delay in diagnosis Treatment Compliance Patient organizations 

References

  1. 1.
    Ohno S. A report on the first international convention for patients with silk road disease (Behçet’s disease). BD News. 2001;2(1):8. http://www.behcetdiseasesociety.org/behcetwsData/Document/1662014135548-v21.pdf. Accessed 5 Mar 2019.Google Scholar
  2. 2.
    Dates and locations of International Patient Conferences up to the present are as follows: 2000: Seoul, Korea; 2002: Berlin, Germany; 2004: Antalya, Turkey; 2006: Lisbon, Portugal; 2008: Poertschach, Austria; 2010: London, UK; 2012: Yokohama, Japan; 2014: Paris, France; 2016: Matera, Italy; 2018: Rotterdam, Holland.Google Scholar
  3. 3.
    Zeis J. Behçet’s disease. Dulles, VA: Mercury Learning and Information; 2014.Google Scholar
  4. 4.
    Zeis J. Essential guide to Behçet’s disease. Uxbridge, MA: Central Vision Press; 2006.Google Scholar
  5. 5.
    Zeis J. You are not alone: 15 people with Behçet’s. Mass: Joanne Zies; 1997.Google Scholar

Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  • Cetin Ezber
    • 1
  • Eileen Radziunas
    • 2
  • Richard West
    • 3
  • Yusuf Yazici
    • 4
    Email author
  1. 1.Cerrahpasa HospıtalFatihTurkey
  2. 2.Old SaybrookUSA
  3. 3.SouthamptonUK
  4. 4.School of MedicineNew York UniversityNew YorkUSA

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