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Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia

  • Kate KhairEmail author
  • Luke Pembroke
  • Deborah Christie
Chapter

Abstract

Young adults with long-term health conditions (LTHCs) are increasing due to improvements in care, therapy regimens and medical technology. In the UK, transition to adult services occurs at a stage when they are also learning self-management skills. For some, transfer from paediatric to adult care providers may result in a loss of psychosocial support. Higher mortality rates and lower access to healthcare are common in young adults aged between 18 and 25 years of age compared to adolescents (10–17 years) and those who are in the 26 to 30 year age group. Failure to provide attention to the complex balancing act between medication demands, hospital appointments, work and social activities, nutrition and key tasks of development (Walker-Harding et al. 2017) means young adults face significant challenges in the move to independent living.

Keywords

Haemophilia Long-term conditions Nurse-led care Transition Toolkit Action research 

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Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  1. 1.Haemophilia Centre and Centre for Outcomes and Experience Research in Children’s Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS TrustLondonUK
  2. 2.HaemnetLondonUK
  3. 3.Department of Child and Adolescent Psychological ServicesUniversity College London Hospitals NHS TrustLondonUK

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