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Dementia and Relationships

  • Richard ChestonEmail author
  • Gary Christopher
Chapter

Abstract

People who are living with dementia often describe their worlds as characterized by loss and isolation. Understandably, then, dementia research has emphasized the importance of the quality of social relationships for good dementia care. In the UK, Tom Kitwood described how a malignant social psychological world impacted on the personhood of the person living with dementia. Similarly, in the Netherlands, Bère Miesen drew on attachment theory to argue that many of the sometimes apparently bizarre behaviours of people who were living with severe levels of dementia were in fact attempts to create emotional security. What both perspectives show, however, is that the quality of the person’s social relationships plays a crucial part in determining how the existential threat of dementia impacts upon them.

Keywords

Dementia Alzheimer’s disease Social psychology Attachment Personhood Insecurity 

References

  1. 1.
    Watkins, B., Cheston, R., Jones, K., & Gilliard, J. (2006). “Coming out with Alzheimer’s disease”: Changes in insight during a psychotherapy group for people with dementia. Aging and Mental Health, 10(2), 1–11.CrossRefGoogle Scholar
  2. 2.
    Harris, P. B., & Keady, J. (2009). Selfhood in younger onset dementia: Transitions and testimonies. Aging and Mental Health, 13(3), 437–444.CrossRefGoogle Scholar
  3. 3.
    Ryan, E. B., Bannister, K. A., & Anas, A. P. (2009). The dementia narrative: Writing to reclaim social identity. Journal of Aging Studies, 23(3), 145–157.CrossRefGoogle Scholar
  4. 4.
    Mikulincer, M., Florian, V., & Hirschberger, G. (2003). The existential function of close relationships: Introducing death into the science of love. Personality and Social Psychology Review, 7(1), 20–40.CrossRefGoogle Scholar
  5. 5.
    Kitwood, T. (1990). The dialectics of dementia: With particular reference to Alzheimer’s disease. Ageing & Society, 10(2), 177–196.CrossRefGoogle Scholar
  6. 6.
    Kitwood, T. (1997). Dementia reconsidered: The person comes first. Buckingham: Open University Press.Google Scholar
  7. 7.
    Kitwood, T. (1993). Towards a theory of dementia care: The interpersonal process. Ageing & Society, 13(1), 51–67.CrossRefGoogle Scholar
  8. 8.
    Brooker, D. (2005). Dementia care mapping: A review of the research literature. The Gerontologist, 45(suppl. 1), 11–18.CrossRefGoogle Scholar
  9. 9.
    Brooker, D., & Latham, I. (2015). Person-centred dementia care: Making services better with the VIPS framework. London: Jessica Kingsley.Google Scholar
  10. 10.
    Cheston, R., & Bender, M. (1999). Understanding dementia: The man with the worried eyes. London: Jessica Kingsley.Google Scholar
  11. 11.
    Alzheimer, A. (1977). A unique illness involving the cerebral cortex. In D. A. Rottenberg & F. H. Hochberg (Eds.), Neurological classics in modern translation. New York: Hafner Press.Google Scholar
  12. 12.
    Dahm, R. (2006). Alzheimer’s discovery. Current Biology, 16(21), R906–R910.CrossRefGoogle Scholar
  13. 13.
    Burns, A., Howard, R., & Petit, W. (1995). Alzheimer’s disease: A medical companion. Oxford: Blackwell.Google Scholar
  14. 14.
    Graneheim, U. H., & Jansson, L. (2006). The meaning of living with dementia and disturbing behaviour as narrated by three persons admitted to a residential home. Journal of Clinical Nursing, 15, 1397–1403.CrossRefGoogle Scholar
  15. 15.
    Mikulincer, M., & Florian, V. (2000). Exploring individual differences in reactions to mortality salience: Does attachment style regulate terror management mechanisms? Journal of Personality and Social Psychology, 79(2), 260.CrossRefGoogle Scholar
  16. 16.
    Browne, C. J., & Shlosberg, E. (2005). Attachment behaviours and parent fixation in people with dementia: The role of cognitive functioning and pre-morbid attachment style. Aging and Mental Health, 9(2), 153–161.CrossRefGoogle Scholar
  17. 17.
    Browne, C. J., & Shlosberg, E. (2006). Attachment theory, ageing and dementia: A review of the literature. Aging and Mental Health, 10(2), 134–142.CrossRefGoogle Scholar
  18. 18.
    Bowlby, J. (1973). Attachment and loss: Separation (Vol. 2). New York: Basic Books.Google Scholar
  19. 19.
    Feeney, J. A., & Noller, P. (1991). Attachment style and verbal descriptions of romantic partners. Journal of Social and Personal Relationships, 8(2), 187–215.CrossRefGoogle Scholar
  20. 20.
    Mikulincer, M., & Florian, V. (2003). Attachment style and affect regulation: Implications for coping with stress and mental health. In G. J. O. Fletcher & M. S. Clark (Eds.), Blackwell handbook of social psychology: Interpersonal processes (pp. 535–557). Oxford: Blackwell.Google Scholar
  21. 21.
    Nelis, S. M., Clare, L., & Whitaker, C. J. (2014). Attachment in people with dementia and their caregivers: A systematic review. Dementia, 13(6), 747–767.CrossRefGoogle Scholar
  22. 22.
    Cassidy, J., & Mohr, J. J. (2001). Unsolvable fear, trauma, and psychopathology: Theory, research, and clinical considerations related to disorganized attachment across the life span. Clinical Psychology: Science and Practice, 8(3), 275–298.Google Scholar
  23. 23.
    Bowlby, J. (1977). The making and breaking of affectional bonds: I. Aetiology and psychopathology in the light of attachment theory. The British Journal of Psychiatry, 130(3), 201–210.CrossRefGoogle Scholar
  24. 24.
    Bowlby, J. (2012). The making and breaking of affectional bonds. London: Routledge.CrossRefGoogle Scholar
  25. 25.
    Miesen, B. (1992). Attachment theory and dementia. In G. M. M. Jones & B. M. L. Miesen (Eds.), Caregiving in Dementia: Research and Applications (pp. 38–56). London: Routledge.Google Scholar
  26. 26.
    Miesen, B. M. (1993). Alzheimer’s disease, the phenomenon of parent fixation and Bowlby’s attachment theory. International Journal of Geriatric Psychiatry, 8(2), 147–153.CrossRefGoogle Scholar
  27. 27.
    Ainsworth, M., Blehar, M., Waters, E., & Wall, S. (2015). Patterns of attachment: A psychological study of the strange situation. New York: Psychology Press.Google Scholar
  28. 28.
    Miesen, B. (2016). Dementia in close-up. London: Routledge.Google Scholar
  29. 29.
    Osborne, H., Stokes, G., & Simpson, J. (2010). A psychosocial model of parent fixation in people with dementia: The role of personality and attachment. Aging and Mental Health, 14(8), 928–937.CrossRefGoogle Scholar
  30. 30.
    Osborne, H., Simpson, J., & Stokes, G. (2010). The relationship between pre-morbid personality and challenging behaviour in people with dementia: A systematic review. Aging and Mental Health, 14(5), 503–515.CrossRefGoogle Scholar
  31. 31.
    Edwards, H. B., Whiting, P., Ijaz, S., Leach, V., Richards, A., Cullum, S., et al. (2018). Quality of family relationships and outcomes of dementia: A systematic review. British Medical Journal Open, 8, e015538.  https://doi.org/10.1136/bmjopen-2016-015538.CrossRefGoogle Scholar
  32. 32.
    Magai, C., & Cohen, C. I. (1998). Attachment style and emotion regulation in dementia patients and their relation to caregiver burden. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 53(3), P147–P154.CrossRefGoogle Scholar
  33. 33.
    Stephens, A., Cheston, R., & Glesson, K. (2013). An exploration into the relationships people with dementia have with physical objects: An ethnographic study. Dementia: The International Journal of Social Research and Policy, 12(6), 697–712.  https://doi.org/10.1177/1471301212442585.CrossRefGoogle Scholar
  34. 34.
    Cheston, R., Thorne, K., Whitby, P., & Peak, J. (2007). Simulated Presence Therapy, attachment and separation amongst people with dementia. Dementia: The International Journal of Social Research and Policy, 6(3), 442–449.CrossRefGoogle Scholar
  35. 35.
    Zetteler, J. (2008). Effectiveness of Simulated Presence Therapy for individuals with dementia: A systematic review and meta-analysis. Aging and Mental Health, 12(6), 779–785.CrossRefGoogle Scholar
  36. 36.
    Abraha, I., Rimland, J. M., Lozano-Montoya, I., Dell’Aquila, G., Vélez-Díaz-Pallarés, M., Trotta, F. M., et al. (2017). Simulated Presence Therapy for dementia. The Cochrane Library, 4, CD011882.Google Scholar
  37. 37.
    Evans, N., Cheston, R., & Harris, N. (2015). Personal message cards: An evaluation of an alternative method of delivering Simulated Presence Therapy. Dementia: The International Journal of Social Research and Policy, 15(6), 1703–1715.  https://doi.org/10.1177/1471301215574363.CrossRefGoogle Scholar

Copyright information

© The Author(s) 2019

Authors and Affiliations

  1. 1.Department of Health and Social SciencesUniversity of the West of EnglandBristolUK

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