Psychosocial Correlates of Physical and Health Disabilities

  • Sherwood J. Best
Part of the Springer Series on Human Exceptionality book series (SSHE)

Abstract

The existence of physical and health disabilities has been recognized and has evoked reaction throughout time and across cultures (Best, Bigge, & Sirvis, 1990; Turnbull & Turnbull, 1996). Reactions to disability have ranged from extermination and abandonment to education and care (Best, 1978; 1995) and have varied with environmental circumstances, individual and group beliefs, economic conditions, religion, law, and the advancement of medical and technical knowledge.

Keywords

Cerebral Palsy Muscular Dystrophy Physical Disability Spina Bifida Club Foot 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

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References

  1. Americans with Disabilities Act (ADA) of 1990, PL 101–336, 42 U.S.C., ss 12101 et seq.Google Scholar
  2. Behrman, R. E. (1992). Nelson textbook of pediatrics. Philadelphia: Saunders.Google Scholar
  3. Bennett, D. S. (1994). Depression among children with chronic medical problems: A meta-analysis. Journal of Pediatric Psychology, 19(2), 149–169.Google Scholar
  4. Best, G. A. (1978). Individuals with physical disabilities: An introduction for educators. St. Louis, MO: Mosby. Best, S. J. (1995). Toward a model of affective quality of school life for students with physical disabilities. Unpublished doctoral dissertation, University of California, Riverside.Google Scholar
  5. Best, S. J., Bigge, J. L., and Sirvis, B. (1990). Physical and health impairments. In N. G. Haring and L. McCormick (Eds.), Exceptional children and youth: An introduction to special education (pp. 284–324 ). Columbus OH: Merrill.Google Scholar
  6. Best, S. J., Carpignano, J. L., Sirvis, B., and Bigge, J. L. (1991). Psychosocial aspects of physical disability. In J. L. Bigge (Ed.), Teaching individuals with physical and multiple disabilities ( 3rd ed., pp. 102–131 ). Columbus, OH: Merrill.Google Scholar
  7. Best, S. J., Hemsley, R. E., and Best, G. A. (1988). PL 94–142: Characteristics of children with physical disabilities and implications for service delivery. Unpublished manuscript.Google Scholar
  8. Bigge, J. L. (Ed.) (1991). Teaching individuals with physical and multiple disabilities ( 3rd ed. ). Columbus, OH: Merrill.Google Scholar
  9. Brodwin, M., Tellez, F., and Brodwin, S. (1992). Medical psychosocial, and vocational aspects of disability. Athens, GA: Elliot and Fitzpatrick.Google Scholar
  10. Brown, L., and Alexander, J. (1991). Self-Esteem Index. Austin, TX: Pro-Ed.Google Scholar
  11. Brown, M., and Gordon, W. A. (1987). Impact of impairment on physical activity patterns of children. Archives of Physical Medicine and Rehabilitation, 68 (12), 828–832.PubMedGoogle Scholar
  12. Brown, S. E. (1995). I was born in a hospital bed-when I was 31 years old. Disability and Society, 19(1), 103–110. Caldwell, M. B., and Rogers, M. F. (1991). Epidemiology of pediatric HIV infection. Pediatric Clinics of North America, 38, 1–16.Google Scholar
  13. Campbell, M. M., Hayden, R. W., and Davenport, S. L. H. (1977). Psychological adjustment of adolescents with myelodysplasia. Journal of Youth and Adolescence, 6, 397–407.CrossRefGoogle Scholar
  14. Christiansen, R. O., and Hintz, R. L. (1982). Juvenile diabetes mellitus. In E. E. Bleck and D. A. Nagel, (Eds.), Physically handicapped children: A medical atlas for teachers ( 2nd ed. ) (pp. 269–277 ). New York: Grune and Stratton.Google Scholar
  15. Covey, H. C. (1997). Social perception of people with disabilities in history. Springfield, IL: Charles C. Thomas. deApodaca, R. F., Mueller, J., Watson, J. D., and Isaacson-Kailes, J. (1985). A sociometric comparison of mainstreamed, orthopedically handicapped high school students and nonhandicapped classmates. Psychology In the Schools, 22, 95–101.Google Scholar
  16. DeLoach, C., and Greer, B. G. (1981). Adjustment to severe physical disability. New York: McGraw-Hill. Department of Education (Sept. 29, 1992). Federal register. 34 CFR Parts 300–301. Assistance to states for the education of children with disabilities [program and preschool grants for children with disabilities, Final Rule, 57 (189), (pp. 44801–44802 ). Washington, D.C.Google Scholar
  17. Drotar, D. (1981). Psychological perspectives in chronic childhood illness. Journal of Pediatric Psychology, 6 (3), 211–228.PubMedCrossRefGoogle Scholar
  18. Dubrow, E. E Schmidt, D., McBride, J., Edwards, S., and Merk, F. L. (1993). Teaching children to cope with stressful experiences: Initial implementation and evaluation of a primary prevention program. Journal of Child Clinical Psychology, 22, 428–440.Google Scholar
  19. Eiser, C. (1990). Psychological effects of chronic disease. Journal of Child Psychology and Psychiatry, 31, 85–98.PubMedCrossRefGoogle Scholar
  20. Elias, M. J., Gara, M., Ubriaco, M., Rothbaum, P. A., Clabby, J. F., and Schuyler, T. (1986). Impact of a preventative social problem solving intervention on children’s coping with middle-school stressors. American Journal of Community Psychology, 14, 259–275.PubMedCrossRefGoogle Scholar
  21. Epstein, J. (1981). The quality of school life. Lexington, MA: Heath.Google Scholar
  22. Faulkner, J. S. (1982). The attitudes of non-physically handicapped children toward children with and without visible physical handicaps. Dissertation Abstracts International, 42 (8-A), 3551.Google Scholar
  23. Field, S, and Hoffman, A. (1996). Increasing the ability of educators to support youth self-determination. In L. E. Powers, G. H. S. Singer, and J. Sowers, (Eds.), On the road to autonomy: Promoting self-competence in children and youth with disabilities (pp. 171–187 ). Baltimore, MD: Brookes.Google Scholar
  24. Furnham, A., and Gibbs, M. (1984). School children’s attitudes toward the handicapped. Journal of Adolescence, 7 (2), 99–117.PubMedCrossRefGoogle Scholar
  25. Garrison, W. T., and McQuiston, S. (1989). Chronic illness during childhood and adolescence: Psychological aspects. Newbury Park, CA: Sage.Google Scholar
  26. Gibb, C. McD. D., and Flavahan, R. P. (1987). What distinguishes integrated and segregated physically disabled pupils? Educational Research, 29(1), 3–11.Google Scholar
  27. Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, N.J.: Prentice Hall. Goldfarb, L. A., Brotherson, M. J., Summers, J. A., and Turnbull, A. P. (1986). Meeting the challenge of disability or chronic illness: A family guide. Baltimore, MD: Brookes.Google Scholar
  28. Gortmacher, S. L., and Sappenfield, W. (1984). Chronic childhood disorders: Prevalence and impact. Pediatric Clinics of North America, 31, 3–18.Google Scholar
  29. Gottlieb, J., and Gottlieb, B. W. (1977). Stereotypic attitudes and behavioral intentions toward handicapped children. American Journal of Mental Deficiency, 82(1), 65–71.Google Scholar
  30. Gresham, E. M., and Elliott, S. N. (1990). Social Skills Rating System. Circle Pines, MN: American Guidance Service.Google Scholar
  31. Hahn, H. (1989). The politics of physical differences: Disability and discrimination. Journal of Social Issues, 44 (1), 39–47.CrossRefGoogle Scholar
  32. Halpern, A. S. (1993). Quality of life as a conceptual framework for evaluating transition outcomes. Exceptional Children, 59 (6), 486–498.Google Scholar
  33. Hamlett, K. W., Pellegrini, D. S., and Katz, K. S. (1992). Chronic childhood illness as a family stressor. Journal of Pediatric Psychology, 17 (1), 33–47.PubMedCrossRefGoogle Scholar
  34. Harper, D. C. (1991). Paradigms for investigating rehabilitation and adaptation to childhood disability and chronic illness. Journal of Pediatric Psychology, 16(5), 533–542.Google Scholar
  35. Hart, V. (1988). Multiply disabled children. In V. B. Van Hasselt, P. S. Strain, and M. Hersen, (Eds.), Handbook of developmental and physical disabilities (pp. 370–383 ). New York: Pergamon Press.Google Scholar
  36. Heller, B. W., Flohr, L. M., and Zegans, L. S. (Eds.) (1989). Psychosocial interventions with physically disabled persons. New Brunswick: Rutgers University Press.Google Scholar
  37. Heller, K. W., Alberto, P. A., Fomey, P. E., and Schwartzman, M. M. (1996). Understanding physical, sensory, and health impairments: Characteristics and educational implications. Pacific Grove, CA: Brookes Cole. Hitman, G. A., and Metcalfe, K. A. (1993). The genetics of diabetes: An update. The Diabetes Annual, 7, 1–17.Google Scholar
  38. Hobbs, N., Perrin, J. M., and keys, H. T. (1985). Chronically ill children and their families. San Francisco: Jossey-Bass.Google Scholar
  39. Hopkins, K. M. (1989). Emerging patterns of services and case finding for children with HIV infection. Mental Retardation, 27 (4), 219–222.PubMedGoogle Scholar
  40. Hornichter, R. D. (1993). Diabetes mellitus. In M. G. Brodwin, F. Tellez, and S. Brodwin (Eds.), Medical, psychosocial, and vocational aspects of disability (pp. 285–296 ). Athens, GA: Elliott and Fitzpatrick.Google Scholar
  41. Irys, H. T., Werthamer-Larsson, L. A., Kolodner, K. B., and Gross S. S. (1994). Mental health in young adults with chronic illness: The mediating effect of perceived impact. Journal of Pediatric Psychology, 19(2), 205–222.Google Scholar
  42. Isaacson–Kailes, J., deApodaca, R. E, Watson, J. B. D., and Mueller, J. (1981). A multidimensional comparison of the social adjustment of physically handicapped high school students and nonhandicapped classmates. (Grant No. 19–B352–81–3293–7100). Los Angeles, California State Department of Education.Google Scholar
  43. Jessup, D., and Stein, R. (1985). Uncertainty and its relation to the psychological correlates of chronic illness in children. Social Science and Medicine, 20, 993–999.CrossRefGoogle Scholar
  44. Johnson, S. B. (1985). The family and the child with chronic illness. In D. C. Turk and R. D. Kerns (Eds.), Health, illness, and families: A lifespan perspective (pp. 220–254 ). New York: Wiley.Google Scholar
  45. Johnson, W. L., and Johnson, A. M. (1993). Validity of the Quality of School Life Scale: A primary and secondary order factor analysis. Educational and Psychological Measurement, 53, 145–153.CrossRefGoogle Scholar
  46. Kaiser, S. B., Wingate, S. B., Freeman, C. M., and Chandler, J. L. (1987). Acceptance of physical disability and attitudes toward personal adjustment. Rehabilitation Psychology, 32 (1), 51–58.Google Scholar
  47. Kashani, J. H., Koenig, P., Shepperd, J. A., Widfley, D., and Morris, D. A. (1988). Psychopathology and self-concept in asthmatic children. Journal of Pediatric Psychology, 13, 509–520.PubMedCrossRefGoogle Scholar
  48. Kliewer, W. (1996). Coping in children and adolescents: Patterns, influences, interventions, and implications. InGoogle Scholar
  49. L. E. Powers, G. H. S. Singer, and J. Sowers, (Eds.), On the road to autonomy: Promoting self-competence in children and youth with disabilities (pp. 53–68). Baltimore, MD: Paul H. Brookes.Google Scholar
  50. Kokkonen, J. Saukkonen, A. L., Timonen, E., Serlo, W., and Kinnunen, P. (1991). Social outcome of handicapped children as adults. Developmental Medicine and Child Neurology, 33, 1095–1100.Google Scholar
  51. La Greca, A. M. (1990). Social consequences of pediatric conditions: Fertile area for further investigation and intervention. Journal of Pediatric Psychology, 15(3), 285–307.Google Scholar
  52. Laurence, K. M., James, N., Miller, M., and Campbell, H. (1980). Increased risk of occurrence of pregnancies complicated by fetal neural tube defects in others receiving poor diets, and possible benefit of dietary counseling. British Medical Journal, 281, 1152–1594.CrossRefGoogle Scholar
  53. Lavigne, J. V., Faier-Routman, J. (1993). Correlates of psychological adjustment to pediatric physical disorders: A meta-analytic review and comparison with existing models. Developmental and Behavioral Pediatrics, 14(2), 117–123.Google Scholar
  54. Liptak, G. S. (1997). Neural tube defects. In M. L. Batshaw (Ed.), Children with disabilities ( 4th ed., pp. 529–552 ). Baltimore, MD: Brookes.Google Scholar
  55. Lyle, R. R., and Obringer, S. J. (1983). Muscular dystrophy. In J. Umbreit (Ed.), Physical disabilities and health impairments: An introduction (pp. 100–107 ). Columbus, OH: Merrill.Google Scholar
  56. Lynch, E. W., Lewis, R. B., and Murphey, D. S. (1992). Educational services for children with chronic illnesses: Perspectives of educators and families. Exceptional Children, 59 (3), 210–220.Google Scholar
  57. Mackie, R. (1969). Special education in the United States: Statistics 1948–1966. New York: Teachers College Press. MacMillan, D. L., and Hendrick, I. (1993). Evolution and legacies. In J. I. Goodlad and T. C. Lovitt (Eds.), Integrating general and special education (pp. 23–48 ). New York: Merrill.Google Scholar
  58. Marsh, H. W. (1988). Self-Description Questionnaire-I. San Antonio, TX: Psychological Corporation. Marshak, L. E., and Seligman, M. (1993). Counseling persons with physical disabilities: Theoretical and clinical perspectives. Austin, TX: PRO-ED.Google Scholar
  59. McDermott, S. Coker, A. L., Mani, S., Krishnaswami, S., Nagle, R. J., Barnett-Queen, L. L., and Wuori, D. E. (1996). A population-based analysis of behavior problems in children with cerebral palsy. Journal of Pediatric Psychology, 21 (3), 447–463.Google Scholar
  60. Mehnert, T., Krauss, H. H., Nadler, R., and Boyd, M. (1990). Correlates of life satisfaction is those with disability conditions. Rehabilitation Psychology, 35 (1), 3–17.CrossRefGoogle Scholar
  61. Meissner, A. L., Thorsen, R. W., and Butler, A. J. (1967). Relation of self-concept to impact and obviousness of disability among male and female adolescents. Perceptual and Motor Skills, 24, 1099–1105.PubMedCrossRefGoogle Scholar
  62. Meyers, A., and Weitzman, M. (1991). Pediatric HIV disease: The newest chronic illness in childhood. Pediatric Clinics of North America, 38, 169–194.PubMedGoogle Scholar
  63. Miller, F., Moseley, C. and Doreska, J. (1992). Spinal fusion in Duchenne muscular dystrophy. Developmental medicine and Child Neurology, 34, 775–786.PubMedCrossRefGoogle Scholar
  64. Noll, R. B., LeRoy, S., Bukowski, W. M., Rogosch, F. A., and Kulkarni, R. (1991). Peer relationships and adjustment in children with cancer. Journal of Pediatric Psychology,16(3), 307–326.Google Scholar
  65. Noojin, A. B., and Wallander, J. L. (1996). Development and evaluation of a measure of concerns related to raising a child with a disability. Journal of Pediatric Psychology, 21 (4), 483–498.PubMedCrossRefGoogle Scholar
  66. Olson, O. C. (1988). Diagnosis and management of diabetes mellitus ( 2nd ed. ). New York: Raven.Google Scholar
  67. O’Moore, M. (1980). Social acceptance of the physically handicapped child in the normal school. Child: Care, Health, and Development, 6, 317–337.Google Scholar
  68. Perrin, E., and Gerrity, P. (1984). Development of children with chronic illness. Pediatric Clinics of North America, 31, 19–31.PubMedGoogle Scholar
  69. Perrin, J. M., MacLean, W. E., and Perrin, E. C. (1989). Parental perceptions of health status and psychologic adjustment of children with asthma. Pediatrics, 83, 26–30.PubMedGoogle Scholar
  70. Perrin, E. C., Ayoub, C. C., and Willett, J. B. (1993). In the eyes of the beholder: Family and maternal influences on perceptions of adjustment of children with chronic illness. Developmental and Behavioral Pediatrics, 14(2), 94–105.Google Scholar
  71. Powers, L. E., Singer, G. H. S., and Sowers, J. (1996a) (Eds.). On the road to autonomy: Promoting self-competence in children and youth with disabilities. Baltimore, MD: Brookes.Google Scholar
  72. Powers, L. E., Sowers, J., Turner, A., Nesbitt, M., Knowles, E., and Ellison, R. (1996b). TAKE CHARGE: A model for promoting self-determination among adolescents with challenges. In L. E. Powers, G. H. S. Singer, and J. Sowers, (Eds.), On the road to autonomy: Promoting self-competence in children and youth with disabilities (pp. 275–322 ). Baltimore, MD: Brookes.Google Scholar
  73. Pritchard, D. G. (1963). Education of the handicapped. London: Routledge and Kegan Paul.Google Scholar
  74. Rich, Y., Linor, M., and Shalev, M. (1984). Perceptions of school life among physically disabled mainstreamed students. Educational Research, 26 (1), 27–32.CrossRefGoogle Scholar
  75. Rosenthal, M. (1988). Psychosocial evaluation of physically disabled persons. In B. W. Heller, L. M. Rohr, and L. S. Zegans, (Eds.) Psychosocial interventions with physically disabled persons (pp. 43–57 ). New Brunswick, NJ: Rutgers University Press.Google Scholar
  76. Rubenstein, A. (1989). Background, epidemiology, and impact of HIV infection in children. Mental Retardation, 27, 209–211.Google Scholar
  77. Sandford, M. K., Kissling, G. E., and Joubert, P. E. (1992). Neural tube defect etiology: New evidence concerning maternal hyperthermia, health, and diet. Developmental Medicine and Child Neurology, 34, 661–675.PubMedCrossRefGoogle Scholar
  78. Saylor, C. F., Castro, G., and Huntington, L. (1996). Predictors of developmental outcomes for medically fragile early intervention participants. Journal of Pediatric Psychology, 21 (6), 869–887.PubMedCrossRefGoogle Scholar
  79. Schalock, R. L., Keith, K. D., and Hoffman, K. (1990). 1990 Quality of Life Questionnaire: Overview and standardization information. Hastings, NB: Mid-Nebraska Mental Retardation Services, Inc.Google Scholar
  80. Schlieper, A. (1985). Chronic illness and school achievement. Developmental Medicine and Child Neurology, 27 (1), 75–79.PubMedCrossRefGoogle Scholar
  81. Shapiro, J. P. (1993). No pity: People with disabilities forging a new civil rights movement. New York: Times Books.Google Scholar
  82. Shears, L. M., and Jensema, C. J. (1969). Social acceptability of anomalous persons. Exceptional Children, 35, 91–96.Google Scholar
  83. Stainback, S., and Stainback, W. (1992). Schools as inclusive communities: In W. Stainback and S. Stainback (Eds.), Controversial issues confronting special education: Divergent perspectives (pp. 29–43 ). Boston: Allyn and Bacon.Google Scholar
  84. Turk, D., C., and Kerns, R. D. (1985). Health, illness, and families: A life-span perspective. New York: Wiley.Google Scholar
  85. Turnbull, A. P., and Turnbull, H. R. (1996). Self-determination within a culturally responsive family systems perspective. In L. E. Powers, G. H. S. Singer, and J. Sowers (Eds.), On the road to autonomy: Promoting selfcompetence in children and youth with disabilities (pp. 195–220 ). Baltimore, MD: Brookes.Google Scholar
  86. Wallander, J. L., Vami, J. W., Babani, L., Barris, H. T., and Wilcox, K. T. (1988). Children with chronic physical disorders: Maternal reports of their psychological adjustment. Journal of Pediatric Psychology, 13, 197–212.PubMedCrossRefGoogle Scholar
  87. Wallander, J. L., Feldman, W. S., and Varni, J. W. (1989a). Physical status and social adjustment of children with spina bifida. Journal of Pediatric Psychology, 14(1), 89–102.Google Scholar
  88. Wallander, J. L., Varni, J. W., Babani, L., Banis, H. T., and Wilcox, K. T. (1989b). Family resources as resistance factors for psychosocial maladjustment in chronically ill and handicapped children. Journal of Pediatric Psychology, 14(2), 157–173.Google Scholar
  89. Ward, M. J., and Kohler, P. D. (1996). Teaching self-determination. In L. E. Powers, G. H. S. Singer, and J. Sowers (Eds.), On the road to autonomy: Promoting self-competence in children and youth with disabilities (pp. 275290 ). Baltimore, MD: Brookes.Google Scholar
  90. Wasserman, A. L., Thompson, E. I., Wilimas, J. A., and Fairclough, D. L. (1987). The psychological status of survivors of childhood/adolescent Hodgkin’s disease. American Journal of Diseases of Childhood, 141, 197–212.Google Scholar
  91. Weissberg, R. R, Gesten, E. L., Carnrike, C. L., Toro, P. A., Rapkin, B. D., Davidson, E., and Cowen, E. L. (1981). Social problem solving skills training: A competence-building intervention with second-to fourth-grade children. American Journal of Community Psychology, 9, 411–423.CrossRefGoogle Scholar
  92. Weitzman, M., Walker, D. K., and Gortmaker, S. (1986). Chronic illness, psychosocial problems, and school absences: Results of a survey of one county. Clinical Pediatrics, 25 (3), 137–141.PubMedCrossRefGoogle Scholar
  93. Winter, R. J. (1983). Childhood diabetes mellitus. In J. Umbreit (Ed.), Physical disabilities and health impairments: An introduction, pp. 195–205. Columbus, OH: Merrill.Google Scholar
  94. Wright, B. A. (1983). Physical disability: A psychosocial approach. New York: Harper and Row.CrossRefGoogle Scholar
  95. Youssef, N. M. A. (1988). School adjustment of children with congenital heart disease. Maternal Child Nursing Journal, 17 (4), 217–302.PubMedGoogle Scholar
  96. Yuker, H. E. (Ed.) (1988). Attitudes toward persons with disabilities. New York: Springer.Google Scholar

Copyright information

© Springer Science+Business Media New York 1999

Authors and Affiliations

  • Sherwood J. Best
    • 1
  1. 1.Department of Special EducationCalifornia State UniversityLos AngelesUSA

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