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Personal Health Train on FHIR: A Privacy Preserving Federated Approach for Analyzing FAIR Data in Healthcare

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Machine Learning, Image Processing, Network Security and Data Sciences (MIND 2020)

Abstract

Big data and machine learning applications focus on retrieving data on a central location for analysis. However, healthcare data can be sensitive in nature and as such difficult to share and make use for secondary purposes. Healthcare vendors are restricted to share data without proper consent from the patient. There is a rising awareness among individual patients as well regarding sharing their personal information due to ethical, legal and societal problems. The current data-sharing platforms in healthcare do not sufficiently handle these issues. The rationale of the Personal Health Train (PHT) approach shifts the focus from sharing data to sharing processing/analysis applications and their respective results. A prerequisite of the PHT-infrastructure is that the data is FAIR (findable, accessible, interoperable, reusable). The aim of the paper is to describe a methodology of finding the number of patients diagnosed with hypertension and calculate cohort statistics in a privacy-preserving federated manner. The whole process completes without individual patient data leaving the source. For this, we rely on the Fast Healthcare Interoperability Resources (FHIR) standard.

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References

  1. General Data Protection Regulation (GDPR): Final text neatly arranged. https://gdpr-info.eu/. Accessed 09 July 2019

  2. China Data Protection Regulations (CDPR)—China Law Blog. https://www.chinalawblog.com/2018/05/china-data-protection-regulations-cdpr.html. Accessed 26 Mar 2019

  3. Data protection - GOV.UK. https://www.gov.uk/data-protection. Accessed 09 July 2019

  4. The Personal Information Protection and Electronic Documents Act (PIPEDA) - Office of the Privacy Commissioner of Canada. https://www.priv.gc.ca/en/privacy-topics/privacy-laws-in-canada/the-personal-information-protection-and-electronic-documents-act-pipeda/. Accessed 09 July 2019

  5. Beyan, O., et al.: Distributed analytics on sensitive medical data: the personal health train. Data Intell. 96–107 (2019). https://doi.org/10.1162/dint_a_00032

  6. Intelligent Edge – Future of Cloud Computing—Microsoft Azure, https://azure.microsoft.com/en-us/overview/future-of-cloud/. Accessed 15 Feb 2020

  7. Konečný, J., McMahan, H.B., Ramage, D., Richtárik, P.: Federated optimization: distributed machine learning for on-device intelligence. arXiv:1610.02527 [cs] (2016)

  8. Hagstrom, S.: The FAIR Data Principles. https://www.force11.org/group/fairgroup/fairprinciples. Accessed 12 Mar 2019

  9. Using TFF for Federated Learning Research | TensorFlow Federated. https://www.tensorflow.org/federated/tff_for_research. Accessed 15 Feb 2020

  10. DICOM Standard, https://www.dicomstandard.org/. Accessed 15 Feb 2020

  11. Oemig, F., Snelick, R.: Healthcare Interoperability Standards Compliance Handbook: Conformance and Testing of Healthcare Data Exchange Standards. Springer, Cham (2016). https://doi.org/10.1007/978-3-319-44839-8

    Book  Google Scholar 

  12. Tapuria, A., Bruland, P., Delaney, B., Kalra, D., Curcin, V.: Comparison and transformation between CDISC ODM and EN13606 EHR standards in connecting EHR data with clinical trial research data. Digit Health 4 (2018). https://doi.org/10.1177/2055207618777676

  13. Leroux, H., Metke-Jimenez, A., Lawley, M.J.: ODM on FHIR: towards achieving semantic interoperability of clinical study data. 10

    Google Scholar 

  14. Boussadi, A., Zapletal, E.: A Fast Healthcare Interoperability Resources (FHIR) layer implemented over i2b2. BMC Med. Inf. Decis. Making. 17, 120 (2017). https://doi.org/10.1186/s12911-017-0513-6

    Article  Google Scholar 

  15. Mandel, J.C., Kreda, D.A., Mandl, K.D., Kohane, I.S., Ramoni, R.B.: SMART on FHIR: a standards-based, interoperable apps platform for electronic health records. J. Am. Med. Inf. Assoc. 23, 899–908 (2016). https://doi.org/10.1093/jamia/ocv189

    Article  Google Scholar 

  16. Deist, T.M., et al.: Infrastructure and distributed learning methodology for privacy-preserving multi-centric rapid learning health care: euroCAT. Clin. Transl. Radiat. Oncol. 4, 24–31 (2017). https://doi.org/10.1016/j.ctro.2016.12.004

    Article  Google Scholar 

  17. Jochems, A., et al.: Distributed learning: developing a predictive model based on data from multiple hospitals without data leaving the hospital – a real life proof of concept. Radiother. Oncol. 121, 459–467 (2016). https://doi.org/10.1016/j.radonc.2016.10.002

    Article  Google Scholar 

  18. HAPI FHIR. http://hapi.fhir.org/. Accessed 16 Feb 2020

  19. HL7 FHIR API—Synthea, https://synthea.mitre.org/fhir-api. Accessed 16 Feb 2020

  20. IKNL/VANTAGE6. Integraal Kankercentrum, Nederland (2020)

    Google Scholar 

  21. Docker Hub. https://hub.Docker.com/. Accessed 16 Feb 2020

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Correspondence to Ananya Choudhury .

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Choudhury, A., van Soest, J., Nayak, S., Dekker, A. (2020). Personal Health Train on FHIR: A Privacy Preserving Federated Approach for Analyzing FAIR Data in Healthcare. In: Bhattacharjee, A., Borgohain, S., Soni, B., Verma, G., Gao, XZ. (eds) Machine Learning, Image Processing, Network Security and Data Sciences. MIND 2020. Communications in Computer and Information Science, vol 1240. Springer, Singapore. https://doi.org/10.1007/978-981-15-6315-7_7

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  • DOI: https://doi.org/10.1007/978-981-15-6315-7_7

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