Zusammenfassung
Nach Angaben des Statistischen Bundesamtes versterben jährlich in Deutschland ca. 4000 Kinder und Jugendliche bis zum 18. Lebensjahr. Ungefähr 60 % dieser Todesfälle ereignen sich im 1. Lebensjahr, davon 2/3 in der Neonatalzeit. Somit stellen Neugeborene die größte Gruppe innerhalb aller Todesfälle im Kindes- und Jugendalter dar. In diesem Kapitel werden allgemeine Grundlagen (Definitionen, Epidemiologie etc.) und Besonderheiten einer palliativmedizinischen Betreuung im Kontext der Peri- und Neonatologie vermittelt. So werden grundlegende Aspekte sowohl der prä- als auch der unmittelbar peri- und postnatalen Betreuung von Kindern mit lebensverkürzenden und -bedrohlichen Erkrankungen und deren Eltern dargestellt.
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Literatur
Boss R, Kavanaugh K, Kobler K (2011) Prenatal and neonatal palliative care. In: Wolfe J, Hinds P, Sourkes B (Hrsg) Textbook of interdisciplinary pediatric palliative care. Elsevier Saunders, Philadelphia, S 388–392
Brosig C, Peirucci R, Kupst MJ, Leuthner SR (2007) Infant end-of-life care: the parents’ perspective. J Perinatol 27:510–516
Catlin A, Carter B (2002) Creation of a neonatal end-of-life palliative care protocol. J Perinatol 22:184–185
Craig F, Abu-Saad Huijer H, Benini F, Kuttner L, Wood C, Feraris PC, Zernikow B (2008) IMPaCCT: standards of paediatric palliative care. Schmerz 22(4):401–408. [Article in German]
Fraser LK, Miller M, Draper ES, McKinney PA, Parslow RC, on behalf of the Paediatric Intensive Care Audit Network (2011) Place of death and palliative care following discharge from paediatric intensive care units. Arch Dis Child 96:1195e8
Friedrichsdorf SJ, Menke A, Brun S, Wamsler C, Zernikow B (2005) Status quo of palliative care in pediatric oncology – a nationwide survey in Germany. J Pain Symptom Manag 29:156–164
Garten L, Daehmlow S, Reindl T, Wendt A, Münch A, Bührer C (2011) End-of-life opioid analgesia administration on neonatal and pediatric intensive care units: nurses’ attitudes and practice. Eur J Pain 15(9):958–965
Garten L, Ohlig S, Metze B, Bührer C (2018) Prevalence and characteristics of neonatal comfort care patients: a single-center, 5-year, retrospective, observational study. Front Pediatr 6:221
Hellmann J, Knighton R, Lee SK, Shah PS, Canadian Neonatal Network End of Life Study Group (2016) Neonatal deaths: prospective exploration of the causes and process of end-of-life decisions. Arch Dis Child Fetal Neonatal Ed 101(2):F102–F107
Mayer EC, Ritholz MD, Burns JP, Truog RD (2006) Improving the quality of end-of-life care in the pediatric intensive care unit: parents’ priorities and recommendations. Pediatrics 117:649–657
van Mechelen W, Aertgeerts B, De Ceulaer K, Thoonsen B, Vermandere M, Warmenhoven F, Van Rijswijk E, De Lepeleire J (2013) Defining the palliative care patient: a systematic review. Palliat Med 27(3):197–208
Milstein J (2005) A paradigm of integrative care: healing with curing through-out life, „being with“ and „doing to“. J Perinatol 25:563–568
Nolte-Buchholtz S, Garten L (2018) Perinatale Palliativversorgung. Monatsschr Kinderh 166:1127–1142. [Article in German]
Rellensmann G, Hasan C (2009) Empfehlungen zum Vorgehen in Notfallsituationen. Monatsschr Kinderheilkd 157:38–42
Soni R, Vasudevan C, English S (2011) A national survey of neonatal palliative care in the UK. Infant 2:162e3
Stephens BE, Tucker R, Vohr BR (2010) Special health care needs of infants born at the limits of viability. Pediatrics 125(6):1152–1158
Truog RD, Meyer ED, Burns JP (2006) Toward interventions to improve end-of-life care in the pediatric intensive care unit. Crit Care Med 34(11):S373–S279
Verhagen AA, Janvier A, Leuthner SR, Andrews B, Lagatta J, Bos AF, Meadow W (2010) Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and the Netherlands. J Pediatr 156(1):33–37
Vickers J, Thompson A, Collins GS, Childs M, Hain R, Paediatric Oncology Nurses’ Forum/United Kingdom Children’s Cancer Study Group Palliative Care Working Group (2007) Place and provision of palliative care for children with progressive cancer: a study by the pediatric oncology nurses’ forum/United Kinddom Children’s Cancer Study Group Palliative Care Working Group. J Clin Oncol 25:4472–4476
WHO Definition of Palliative Care (2018) . www.who.int/cancer/palliative/definition/en/. Zugegriffen am 06.01.2019
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Garten, L. (2019). Grundlagen peri- und neonataler Palliativversorgung. In: Garten, L., von der Hude, K. (eds) Palliativversorgung und Trauerbegleitung in der Neonatologie. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-58945-8_1
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