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To Challenge or to Accept

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Experiences of Adults Following an Autism Diagnosis

Abstract

Our participants express an inherent ambiguity with respect to the diagnosis of autism. On the one hand, it offers an explanation and a possible way out of the existing problems. On the other hand, it is impossible to completely coincide with a phenomenon that is as heterogeneous as autism. The danger exists that you will regard yourself solely as defined by the diagnostic label. Is it true that ‘accepting’ the diagnosis means that you accept a disorder which, according to certain interpretations, is a life sentence? The distinction that originates in formulating and discovering ‘being different’ is therefore of vital importance, more than ‘being autist’.

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Notes

  1. 1.

    Lester (2012).

  2. 2.

    Singh (2016).

  3. 3.

    “Please tell us something about yourself. How would you describe yourself?”

  4. 4.

    Baron-Cohen (1997).

  5. 5.

    Huws and Jones (2008).

Bibliography

  • Baron-Cohen, Simon. 1997. Mindblindness: An Essay on Autism and Theory of Mind. Cambridge, MA: MIT Press.

    Google Scholar 

  • Huws, J.C., and R.S.P. Jones. 2008. Diagnosis, Disclosure, and Having Autism: An Interpretative Phenomenological Analysis of the Perceptions of Young People with Autism. Journal of Intellectual & Developmental Disability 33 (2): 99–107. Informa.

    Article  Google Scholar 

  • Lester, Jessica. 2012. A Discourse Analysis of Parents’ Talk Around Their Children’s Autism Labels. Disability Studies Quarterly 32 (4). The Ohio State University Libraries. http://dsq-sds.org/article/view/1744/3176.

  • Singh, Jennifer S. 2016. Parenting Work and Autism Trajectories of Care. Sociology of Health & Illness 38 (7): 1106–1120. Wiley.

    Article  Google Scholar 

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Hens, K., Langenberg, R. (2018). To Challenge or to Accept. In: Experiences of Adults Following an Autism Diagnosis. Palgrave Pivot, Cham. https://doi.org/10.1007/978-3-319-97973-1_7

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