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Adolescents with Chronic Kidney Disease pp 17–42Cite as

Psychological Aspects and Challenges of Living with Chronic Kidney Disease for Adolescents

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Abstract

Adolescents with CKD and their families must simultaneously navigate normative developmental stressors while also managing a significant medical regimen burden. These youth tend to exhibit higher rates of medical non-adherence and are at risk of sustaining serious associated consequences including accelerated disease progression, prolonged dialysis, or loss of transplanted kidney graft. Relatedly, adolescents with CKD are at higher risk for negative psychosocial experiences including elevated symptoms of depression, anxiety, neurocognitive sequelae, sleep disturbance, social stress, family stress, and poorer quality of life. Because these psychological symptoms are also related to medical non-compliance and poorer health outcomes, it is crucial to properly assess and intervene in a timely manner. In this chapter, we summarize literature on psychological aspects of living with CKD including adherence, psychiatric comorbidities, neurocognitive effects, sleep, quality of life, social functioning and peer relationships, caregiver needs, and transition to adulthood.

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Authors and Affiliations

  1. Department of Psychology, Children’s Hospital of Orange County (CHOC Children’s), Orange, CA, USA

    Sabrina A. Karczewski

  2. University of California, San Francisco (UCSF) Benioff Children’s Hospital, Pediatric Nephrology, San Francisco, CA, USA

    Molly Keane & Nishita Agarwal Berla

  3. Pacific Graduate School of Psychology (PGSP)/Stanford PsyD Consortium, Palo Alto University, Palo Alto, CA, USA

    Nishita Agarwal Berla

Authors
  1. Sabrina A. Karczewski
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  2. Molly Keane
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  3. Nishita Agarwal Berla
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Correspondence to Sabrina A. Karczewski .

Editor information

Editors and Affiliations

  1. Department of Pediatric Nephrology, UC Davis Medical Center, Sacramento, CA, USA

    Maha N. Haddad

  2. Department of Pediatrics, Division of Nephrology, University of California San Francisco, San Francisco, CA, USA

    Erica Winnicki

  3. Department of Pediatrics, UC Davis Children’s Hospital, Sacramento, CA, USA

    Stephanie Nguyen

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Karczewski, S.A., Keane, M., Agarwal Berla, N. (2019). Psychological Aspects and Challenges of Living with Chronic Kidney Disease for Adolescents. In: Haddad, M., Winnicki, E., Nguyen, S. (eds) Adolescents with Chronic Kidney Disease. Springer, Cham. https://doi.org/10.1007/978-3-319-97220-6_2

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  • DOI: https://doi.org/10.1007/978-3-319-97220-6_2

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