Abstract
Learning to manage treatment and therapies is important to young people with jRMD and core to self-management training and transitional care. Adherence is often considered in the context of medication, but it is also relevant to self-management activities like blood test monitoring, hospital appointments, therapy exercises and healthy lifestyle advice. Adherence also may vary according to the task and is associated with better health outcomes, but it is a challenging area for young person, family and professional alike. This chapter will explore the terminology of adherence, the particular challenges facing young people with rheumatic disease, provide examples of how to assess adherence in the clinical situation and present useful strategies to try with young people to help them optimise adherence.
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References
Tong A, Jones J, Craig JC, Singh-Grewal D. Children’s experiences of living with juvenile idiopathic arthritis: a thematic synthesis of qualitative studies. Arthritis Care Res (Hoboken). 2012;64(9):1392–404.
Horne R, Weinman J, Barber N, Elliott R, Morgan M, Cribb A. Concordance, adherence and compliance in medicine taking: report for the National co-ordinating Centre for NHS service delivery and Organisation R & D (NCCSDO). London: NCCSDO; 2005.
Hanghøj S, Boisen KA. Self-reported barriers to medication adherence among chronically ill adolescents: a systematic review. J Adolesc Health. 2014;54(2):121–38.
Gray NJ, Wood DM. The role of medication in supporting emotional wellbeing in young people with long-term needs. Healthcare (Basel) 2017;5(4). pii: E84. https://doi.org/10.3390/healthcare5040084.
Doukrou M, Segal TY. Fifteen-minute consultation: communicating with young people -how to use HEEADSSS, a psychosocial interview for adolescents. Arch Dis Child Educ Pract Ed. 2018;103(1):15–9.
Naar-King S, Suarez M. Motivational interviewing with adolescents and young adults. New York: Guildford Press; 2011.
Motivational Interviewing Network of Trainers. http://www.motivationalinterviewing.org/. Last accessed 2 Feb 2018.
Slater H, Campbell JM, Stinson JN, Burley MM, Briggs AM. End user and implementer experiences of mHealth technologies for noncommunicable chronic disease management in young adults: systematic review. J Med Internet Res. 2017;19(12):e406.
Stinson J, Ahola Kohut S, Forgeron P, Amaria K, Bell M, Kaufman M, Luca N, Luca S, Harris L, Victor C, Spiegel L. The iPeer2Peer program: a pilot randomized controlled trial in adolescents with juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2016;14(1):48.
Santo K, Richtering SS, Chalmers J, Thiagalingam A, Chow CK, Redfern J. Mobile phone apps to improve medication adherence: a systematic stepwise process to identify high-quality apps. JMIR Mhealth Uhealth. 2016;4(4):e132.
Gray NJ, Christie D, Coyne I, Fonseca H, Philippe CD, Sawyer SM, Tuchman LK, Versnel J. The use of medication by adolescents and young adults: a position paper of the Society for Adolescent Health and Medicine. J Adolesc Health. 2017;61:396–9.
Gray N, Shaw KL, Smith FJ, Burton J, Prescott J, Roberts R, Terry D, McDonagh JE. The role of the pharmacist in the care of young people with chronic illness. J Adolesc Health. 2017;60(2):219–25.
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McDonagh, J.E., Gray, N.J. (2019). Can’t Do or Won’t Do? Adherence in Adolescent and Young Adult Rheumatology. In: McDonagh, J., Tattersall, R. (eds) Adolescent and Young Adult Rheumatology In Clinical Practice. In Clinical Practice. Springer, Cham. https://doi.org/10.1007/978-3-319-95519-3_19
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DOI: https://doi.org/10.1007/978-3-319-95519-3_19
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